So sick of this..

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Daisy

Joined
Apr 25, 2006
Messages
64
I'm sick of eating and then dumping and dumping and dumping and then I feel so drained, it takes the life out of me. It seems like I will never get better. Since my surgery a few years ago (removed ileum, secum, appendix, last 3 feet of small intestine), I have chronic diarrhea, before that it was diarrhea that was crohn's related, now it's a mixture of the two. My GI prescribed Questran but now that I have a narrowed bowel I can't use it regularily because I have to be careful not to block my narrowed bowel.
I am down, and I don't have an appetite and know that when I do eat, it will be several trips to the toilet. I am really discouraged because I weighed in the 80's the last I stood on a scale. I don't know if I want to look again, my face and my loose pants tell me another story. I seem to have lost my motivation lately to try harder so I would really appreciate some support how to get some weight back even a little.
 
This is hard to grasp but you say you had surgery not long ago and you still have a narrowed bowel? Too bad about not taking Questran because of the narrowed bowel how do they think it will not be a narrowed bowel. You need to get nutrition in you and gain weight. I would try the Ensure to help you. Applesauce helps slow down the D but if you are not eating why stop taking Questran? Hope you get better soon!
 
Daisy I agree with Pen you do need to find a way to get some nutrition in that small frame. What does your doc suggest? I hope you start gaining and get better soon. This is a bad disease and it causes so many problems, but hopefully being on the forum will help lift your spirits and you can see your not alone. There ar so many great people hear to listen and give good advice. If your depression gets any worse you should talk with your family dr. and see if they can give you something to help with that. Hang in there.
:getwell::getwell::getwell::getwell::getwell:
:goodluck: Lots of :ghug:
 
Thanks guys, Pen, I don't understand, what is hard to grasp, as I have written in my post, surgery was a few years ago to remove a large segment of crohn's affected bowel which was also narrowed. Surgery was May of 2003 to be exact. With crohn's a lot of things can happen in a couple years time let alone 7. They discovered a couple of years ago by SBFT that I have narrowing in the bowel at the surgical site, this time they say it's (Scar tissue buildup)
The doctor said it's unclear what the scar tissue is from, whether it was caused from previous crohn's attacks that have healed and formed scar tissue or from the surgery itself.. The last xray this spring showed it's no better or worse from the year before but that a long segment of intestine is involved, by that I'm gathering they mean the small bowel down to where they joined the resection. It gets real discouraging but then again anyone with crohn's and continual intestinal problems with diarrhea would understand. I don't sit and fret about it on a daily basis, I do my best to go on with life regardless but hey, there are times that I have my breaking points too. I have tried to maintain my weight in the past by force feeding myself, not very pleasant to shove food down my throat when I didn't even want it but I did do it, and have managed to bring myself up a few pounds in the past, but this was only good until the next time. I'm in one of these spells that I don't have much incentive to try and need an encouraging boost from my fellow crohnie's.
 
Maybe a liquid diet would benefit you at the moment, even if it's just to get some nutrients and to gain a little weight.
Hang in there, things can only get better :D
 
Hey Daisy,

You mentioned you are down, which is understandable, do you think it has extended beyond that and you are depressed? In view of all you have to put up with day in and day out with a chronic illness I don't think it would be surprising. I know treating depression isn't going to change the fact that you have short bowel syndrome but it may somehow lighten your mood and increase your appetite. Also are you able to speak to anyone professionally about how you feel??
Sorry if I'm off the mark! :eek:

Dusty. :)
 
Thanks and no need to apologize. I am more temporarily discouraged than depressed and was venting because I was feeling down. Diarrhea has been a way of life before the surgery and is a way of life after the surgery. I've learned to cope with it, I tolerate it because I have to, but I don't like the inconvenience it brings or the effect it has on my body weight and social life. Sometimes I really do question the point of eating when it runs right through and probably doesn't get absorbed. It's a question and doesn't mean I'm going to quit eating, but yes, I am sick of it.
 
Totally get where you're coming from. Yesterday I had 2 cornish wafer crackers and 2 packs of snack a jacks. I went 8 times today, it was painful and almost green when I finally gave in and took lopermide. For now am giving up trying to eat anything!

Going through a particularly bad time at the mo (see previous posts).
 
I am sorry Daisy,I just found that most first time people with surgeries have a longer time for remission. I know it is hard. My second surgery never got any relief, either it came back right away because it wasnt all caught initally (general surgeon who was old did it and whilst I was infected) or like multiple surgeries pose a higher risk. I am waiting for a new Gi and teaching surgeon for a possible 3rd surgery which I really don't want to but meds dont work on me, and my life is day to day. I fight it though because I have a wonderful husband who fights with me. I really wish I could of tried Cimzia but not available here any more, trials are over. :hang:
 
Hey Daisy,

I often wonder myself the effect this also has on my daughter. She has short bowel syndrome and I know last year she went through a very difficult period, it was her last year of school and I know the side effects of the surgery played a big part in that. The fatigue, the inability to eat when she wanted, the constant planning to do the most simple of things, the inability to be spontaneous. Of course that hasn't changed but she is in a very happy place within herself at present and I hope it stays that way for a very, very long time. I hope you too find that place again Daisy. You will be in my thoughts and prayers.

Take care, :hug::hug::hug:
Dusty
 
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starGirrrrl I know about the crackerjacks, and the candied popcorn makes my stool red. I thought I was bleeding until I figured it out. The crackjacks just irritates but I do love it and will have occassionally but not often.

Pen, I'm sorry that your surgeries haven't helped much. When they did my surgery they left a crohn's patch further up the intestine because they said it was too far away from the area they had to resect, they would have had to remove too much healthy intestine to get to it. I guess this is what those patches are all about, they skip from one spot to another sparing some in between. Even though I'm complaining about the diarrhea it is nothing in comparison to the pain I was suffering with before my surgery. I was just having a rough day yesterday. Sorry if I sounded miserable. Hope that your next treatment or surgery will put you into remission for a long time, like for ever.

Dustykat, I'm glad your daughter is in a good place for now and hopefully will remain that way. I can only imagine that it would be rougher on a young person who is still in school, it does affect social life and that is important to young people. Some days, I have to run about 8-10 times in a row, no sooner get off the potty, I'm back on it, but TG I'm at home, so young people who are still in school or those who are in a job which requires them to stay put, need a lot of understanding to accomodate their special needs.

Take care.
 
Hmm...something new to me. Sorry for the mix up. In Canada we do not have any snack a jacks. They look mild, they caused you to go eight times??? You should check the ingredients to see if they have some laxative ingredient in them, but then again with crohn's normal things can make us run without reason.
 
Do we? I will have to search the store shelves. I thought anything with rice would be soothing to the intestines. I do have a little problem with sweet things, and will go a long while without and then I get such a craving every once in a while and will pig out on things I shouldn't and then will be good for a long time, ha ha until the next time.
 
My fave is the popcorn flavoured rice cakes really good and not sweet.

I know where all the good foods are ;).
 
Well i've been eating them for a long time and had no ill effects. It's any food in general now, tried today with bread and cheese flavoured crackers, as soon as I had more than a few mouthfuls I was in the loo again.

Do not know what is going on with me now :( I have had untreated IBD now for 4 years with no help in sight, I think my body has simply had enough.
 
StarGirrrrl, sorry to hear, I understand the discouragment and can only imagine what you are going through if the disease is untreated. To you and all who are suffering HUGS
 

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