Steroid Injection for Sacroilitis Treatment

[PsychoJane]

Sooo,
I was aware that was probably what I was dealing with but I saw the rheumatologist this morning which also believe that I have sacroilitis as a EIM of Crohn(still waiting on Xray and/or MRI). My crohn is not active, it is just a new symptoms to come along with the rest. Anyway, as NSAID aren't recommended for CD patients, we don't have much options down the road. I was given the choice of local cortisone infiltration or anti-TNF. Seriously, as long as I can handle my pain and walk there is no way I would go back on anti-TNF unless dealing with active crohn. So, I was wondering how satisfied have you been of your steroid injections? Would you recommend it? Has anything specific brought you great relief?

 

[KayleighMeek]

The first steroid injection I had was into my knee late last year maybe November time and it seems to work until a couple of months ago when that joint started flaring again. I have also had a steroid injection just under the skin which worked well the first time I had it done and lasted for a couple of months but I had another around 3 weeks ago and after a week and a half the pain and swelling was back but it was in multiple joints so this may be why it wasn't as effective. Personally I would try steroid injections again if I needed to as the pain can be horrible and its worth it for the relief. Did they suggest any other treatments?
Hope you start feeling better soon

 

[PsychoJane]

Thanks for you answer Kayleigh,
As for other treatments, well, she started to talk about going back to Humira or trying Remicade [Based on the fact I have CD, I don't think she would have the tendency to set me on any other than these as long as I have not try them so there was no reference to Enbrel or Simponi, or else]. Obviously Nsaid were not an option even though Celebrex can be handle by some (but I am allergic to sulfa and apparently there is some incompatibility relatively to that). The other option were the injections which seems to be the more logical idea for me at the moment. My pain is annoying but not to the point I would agree on Anti-TNF therapy yet, especially due to the fact I build antibodies rather quickly... I'll be taken into a physiotherapy program to help this out in the meantime. I am also determined on going back on my hypotoxic feeding habits even though it drives me nuts sometime to get ride of gluten and dairy, and prefer low temperature cooking... Epicurian self does not want to give up on delicious food but can handle the pain haha! Ok, let's face the irony.

Other than this there was no divine alternatives that were offered to me. I kinda was crossing my finger that there would some ways that I would not have considered that would be brought up to me.... I knew that it was not likely to be the case but you know, we live in hope! That's why I'm hoping to find out something else... If my food helps me again (it helped back in the day), I'll let you know... It just sucks to need to be picky with food when it is not the CD that needs it.

 

[KayleighMeek]

I get frustrated as well my crohns is not as bad as it has been in the past it still causes a few problems but nothing major but the joint pain is horrible and when the GI keeps telling you that when your crohns is in remmision that the arthritis will too it get your hopes up but it never happened for me.
It's good to keep positive even when it's tough. Hope something works for you soon