Strictureplasty...how is one planned?

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Nov 14, 2008
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Hello all

It looks like a strictureplasty is in my future. I have a bad narrowing due to Crohns in my duodenum as well as a fistula. It was seen with the scope 2 weeks ago. I see a surgeon next week to figure out the game plan.

My question is...my GI said they might have to map out the bowel with an upper GI. I had an upper GI in November and it was all clear despite a scope in Nov as well saying there was inflammation going on. So I have to wonder if an upper GI will be useful. Are strictures able to be spotted outside the bowel? I expect I may have more than one stricture...is it common to have more than one strictureplasty done in the one surgery?

Will he even operate around inflammation??

These are questions for the surgeon next Thursday but they are on my mind now! lol
 
Hi Brad! My strictures were an EXTREME CASE and may not reflect what's in your future. I had adhesions, another term for scar tissue, all over my small intestine due to previous surgeries. The adhesions caused strictures and blockages which were extremely painful because it seemed as though once food left my stomach it just stopped. Which turned out to be exactly what was happening. Parts of my intestines were so narrow that the food would not go through, sometimes for up to 3 days. Now remember I said that mine was an extreme case so only take some of the info into consideration. I had a Jpouch which is when the colon is removed and the part of the small intestine is fashioned into a fake colon (doesn't quite work the same way in terms of absorption). It's sort of like a cut and paste and keeps having to have an ostomy bag at bay. This worked for 6 years and was great but suddenly I began to feel incredible pain due to the blockages. The doctor performed a 4 hour surgery and removed so many adhesions. He stopped just before he got to the pouch so he wouldn't damage it causing me to have a permanent bag. Unfortunately, he didn't get all of the adhesions and I did have to get the bag because there was simply no other choice. I'M NOT SAYING THIS IS YOUR FUTURE. It's my experience and truthfully it's much better than living the way I was living. The pain was indescribable and I didn't want to live it was so bad. I guess my point is that adhesions and strictures and blockages CAN BE REPAIRED AND YOU CAN LIVE YOUR LIFE AGAIN. My surgeon tried not to operate when I was inflamed but just before surgery I became blocked so he didn't have a choice. I was actually thankful for the timely blockage because I knew he'd at least be able to see it clearly. And, yes, it is common to have more than one stricture handled during surgery. I also had 2 fistulas and the remainder of an abscess which was still continuing to drain. All of it got handled during the my surgery in January. I'm not sure if GI tests can spot strictures outside the bowel but there are other tests that can be done to detect them. Write down all of your concerns and talk to your doctor about all of them. If your doctor seems hurried or won't make the time to answer your questions in detain - get another doctor. You deserve to feel confidant before going on the operating table. I would get every test your doctor recommends even if it's inconvenient. The more information your doctor has about your condition the better prepared he/she is to handle repairing you.

If you do have surgery take good care of yourself, as best you can, before and after. Listen to your body. I can't stress this enough. If you need to sleep then sleep. It doesn't matter if you sleep 2 days straight. Rest is so important when it comes to healing. Go easy on yourself. You might feel lazy because you don't have the strength to wash a cup. Leave the cup in the sink. Your body will tell you what it needs. Listen to it. Let others help you through this. People that love you often feel helpless watching you suffer. It makes them feel better if they can help you get well. Let them. Talk to people you trust. Talk, cry, scream, laugh...do all the things you need to do and you will recover faster. What you're going through isn't easy and you need to recognize this and respect it.

Take good care, Sharon
 
Thanks for that reply Sharon. I see a little more clearly now what it is all about. I had a resection 1.5 years ago so I know what recovery is all about and pushing yourself to get back on your feet.
 
Brad--Good luck with your surgery...Sharon OMG! I have a J Pouch, and your story scares the bejesus out of me! I have had my pouch for abt 4 years, life was good, well okay, few bts of pouchitis..and then bam..Crohns diagnosedthis past November. Are you good now? Sue
 
Sue - My situation is really rare my doctor tells me. I wouldn't worry about it happening to you. I'm doing much better now thanks. I did end up having to get the dreaded bag but after 3 months I'm adjusting, I'm out in the world and things are getting back to a new version of normal. But really, I honestly wouldn't worry if I were you. Relax and enjoy your Jpouch. When I had mine, if I wanted to eat something I knew would keep me in the bathroom, I would call it TAKING THE HIT and just made sure I would be home for the evening. Stay well, Sharon
 
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