Symptom Changes

[JohnathanO]

I needed to write this to see if anyone out there is having or did have the same symptoms as I have now. I have had Crohn's for approx. 15 years and it was tolerable. In the last 6 months or so I started to get more symptoms in which I haven't had in the past. I was on humira for a while but there was no change. My GI put me back on Remicade since in the past it had worked and I have had my second treatment with no changes. I always feel sick to my stomach with the nausea and burning between my ribcage and belly button. This pain or irritation only seems to lessen when I lay down. I have a lot of gas and constant gurgling noises and diarrhea. I dont see any blood but that dosen't mean that it isnt there. My routine blood tests show low Iron and Albumin levels. My Albumin got so low that I started to retain water in my legs and waist. I had to be put on diuretics for a few weeks to assist in the removal of the water and my Albumin slowly came back up but not to where it should be. I am on iron supplements for 3 months to bring those levels back up also. I also will have back pain across my mid back. I have never seen my stomach expand and contract so much. When i lay down it looks like a softball is running through my intestines, thats how high my tummy extends. I just finished a 24 hour urine test for protein loss (unsure what that tells him) i guess kidney condition. In all of the full blood tests, all that show up is the iron and albumin levels. I just don't know what to think ,to be honest I always think the worst (Big C). I have a CT scan of my intestines next Monday and am releived that something will be done but scared of the results. Can anyone relate to this??? Any words of encouragement ??? Help.

 

[Trysha]

Hi Jonathan,
Sorry you have all these problems and it can be a frightening maze to wade through.
It could be that your body is reacting to the remicade, which does contain a foreign protein.The protein loss could relate to your kidney function among other things.
I would be asking the doctors to explain to you what all the tests mean and could it be a reaction to medication.
Its a good thing that you have a CT scan soon and that will help to establish what is going on inside.
There will be a solution and try to relax mentally, I know it will be difficult to do this physically with all the pain and discomfort that comes with crohn's.
Feel better soon
Hugs and best wishes
Trysha

 

[Gwkctjh]

Sounds like your body is really out of sorts at the minute! Your in the best hands so keep your chin up. Try and stay positive. I know your scared but there is lots of people sending you positive vibes.

Keep us posted on your progress x