Terminal ilium "mild crohn's"

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terminal ilium "mild crohn's"

If this is "mild" ??? then I know that what is to come can't get better.
Suffered all of my life live in a small town in the backwoods of Quebec Canada, misdiagnosed, every flareup until Dec 2008. I am FAT so every time I would be sick people and doctors told me it's cause I don't eat right :( they never knew what I ate they just assumed because I am FAT that must be it. I am 230 lbs and 5'4" I have never eaten breakfast or lunch (reason is I always felt sick after I ate) DAH!!! I have the runs all of the time but when I would see "professionals" they always told me "well something is being absorbed" Gee Thanks I never noticed.
Anyway, I am here to look at the bright side of what is happening to me. :yrolleyes:
Whoever discovers a cure is gonna be Rich Rich Rich
I can't believe that some many people are suffering and no one can do anything...oopppss sorry thats not Bright.
I have tried all kinds of drugs and have gone to GP's, GI's and surgeons, etc etc etc... and now I am gonna try all natural and possitive thoughts even if it kills me.
My bones are killing me I can hardly walk, my eyes are popping out of my splitting head that is aching so much can't stand the sun or bright lights, I can projectile vomit and sh!t though the eye of a needle at one hundred yards all at the same time, I have been covered in a rash from head to toe, I have had cankers in my mouth as big as dimes and hermeroids that are as big as the liberty bell, can they say STRESS is one of the contributers, my question is how can you have all of this happen to you and not be STRESSED. I was in a major depression for over three years, I used to be active and artistic and now I can't even be creative in anymore. I cant be angry with anyone for the misdiagnosis because that is just negative energy and I really don't have enough energy to waste and certainly not on negative stuff. It is not until a few weeks ago when I saw Dr. Carl Brown Surgeon in Vancouver Canada he told me that "this is nothing I did". It is not because of what I ate or what I didn't eat it is not because of the lifestyle I had or have. When I heard those words it was like someone took a BIG LOAD off my sholders. Yes there are things now that I can no longer eat and I will never eat again, but I tell myself "self you've had some before you know it tastes great, just remember that and move on, cause if you eat it now your gonna be sorry and it not worth it." So Yup its a Life Style Change, I always have lots of food in my house it is just different than what I used to have before and the way I prepare it is different too, I still have lots of booze in my house I like to offer it to people who come over and I love the smell, I have come up with some great drinks that have no booze for me.
I have made my bathroom and bedroom the two nicest rooms in the house because well we all know that thats where we spend all our time.
Up untill a few weeks ago I was counting the days till I die, thinking my dad died at 80 if I die at 80 then 30 more years and this HELL will be over, and then one day I got this boost to my moral either that or I have completely gone off the deep end, anyway what I am trying to say is. I'm not gonna let this crohns get to me, when my days are going bad I am going to try and find the brightest little ray of light and I am gonna hold onto that, I have very good quality toilet paper and keenex because I deserve that and I need to take care of my bum for all the obvious reasons and my nose because don't let this message fool you I do cry and I need to blow my nose.
So I did not tell you about what I have gone through with this crohn's because I have seen over the past two weeks reading all the messages that we have all gone through the something with this crohn's.
I am pissed off and I am getting back my life from this BULLY, every day I am going to do something to take my life back, I am going to grab a pocket full of kleenex and go for a walk even if it hurts so much it makes me cry at least I will have nice soft kleenex, I will go for a swim I'm gonna crochet, knit, sew, draw, write, all those things that crohn's took from me I am going to take back even if it take the rest of my life, and when it hurts and I look up in agony, I am going to look up and say "Thank God I'm alive"
Crohn's your in for a rough ride cause this Canuck ain't taken no more bullying from you, "Bring it on" and I'm gonna kick some butt and it ain't gonna be mine.
That's my story and I'm stickin to it :)
 
If this is "mild" ??? then I know that what is to come can't get better.
Suffered all of my life live in a small town in the backwoods of Quebec Canada, misdiagnosed, every flareup until Dec 2008. I am FAT so every time I would be sick people and doctors told me it's cause I don't eat right :( they never knew what I ate they just assumed because I am FAT that must be it. I am 230 lbs and 5'4" I have never eaten breakfast or lunch (reason is I always felt sick after I ate) DAH!!! I have the runs all of the time but when I would see "professionals" they always told me "well something is being absorbed" Gee Thanks I never noticed.
Anyway, I am here to look at the bright side of what is happening to me. :yrolleyes:
Whoever discovers a cure is gonna be Rich Rich Rich
I can't believe that some many people are suffering and no one can do anything...oopppss sorry thats not Bright.
I have tried all kinds of drugs and have gone to GP's, GI's and surgeons, etc etc etc... and now I am gonna try all natural and possitive thoughts even if it kills me.
My bones are killing me I can hardly walk, my eyes are popping out of my splitting head that is aching so much can't stand the sun or bright lights, I can projectile vomit and sh!t though the eye of a needle at one hundred yards all at the same time, I have been covered in a rash from head to toe, I have had cankers in my mouth as big as dimes and hermeroids that are as big as the liberty bell, can they say STRESS is one of the contributers, my question is how can you have all of this happen to you and not be STRESSED. I was in a major depression for over three years, I used to be active and artistic and now I can't even be creative in anymore. I cant be angry with anyone for the misdiagnosis because that is just negative energy and I really don't have enough energy to waste and certainly not on negative stuff. It is not until a few weeks ago when I saw Dr. Carl Brown Surgeon in Vancouver Canada he told me that "this is nothing I did". It is not because of what I ate or what I didn't eat it is not because of the lifestyle I had or have. When I heard those words it was like someone took a BIG LOAD off my sholders. Yes there are things now that I can no longer eat and I will never eat again, but I tell myself "self you've had some before you know it tastes great, just remember that and move on, cause if you eat it now your gonna be sorry and it not worth it." So Yup its a Life Style Change, I always have lots of food in my house it is just different than what I used to have before and the way I prepare it is different too, I still have lots of booze in my house I like to offer it to people who come over and I love the smell, I have come up with some great drinks that have no booze for me.
I have made my bathroom and bedroom the two nicest rooms in the house because well we all know that thats where we spend all our time.
Up untill a few weeks ago I was counting the days till I die, thinking my dad died at 80 if I die at 80 then 30 more years and this HELL will be over, and then one day I got this boost to my moral either that or I have completely gone off the deep end, anyway what I am trying to say is. I'm not gonna let this crohns get to me, when my days are going bad I am going to try and find the brightest little ray of light and I am gonna hold onto that, I have very good quality toilet paper and keenex because I deserve that and I need to take care of my bum for all the obvious reasons and my nose because don't let this message fool you I do cry and I need to blow my nose.
So I did not tell you about what I have gone through with this crohn's because I have seen over the past two weeks reading all the messages that we have all gone through the something with this crohn's.
I am pissed off and I am getting back my life from this BULLY, every day I am going to do something to take my life back, I am going to grab a pocket full of kleenex and go for a walk even if it hurts so much it makes me cry at least I will have nice soft kleenex, I will go for a swim I'm gonna crochet, knit, sew, draw, write, all those things that crohn's took from me I am going to take back even if it take the rest of my life, and when it hurts and I look up in agony, I am going to look up and say "Thank God I'm alive"
Crohn's your in for a rough ride cause this Canuck ain't taken no more bullying from you, "Bring it on" and I'm gonna kick some butt and it ain't gonna be mine.
That's my story and I'm stickin to it :)

LMAO!!!!:rosette1: Canadians and Aussies should be neigbours I reckon after reading that!!!! The language is so very familiar!!!!

I just wanted to say Two things.....

1.... I am FAT too... or was... its falling off now that i cant put a peice of chewing gum in my mouth without s&*tting for the next 10 hours straight.... So none of my doctors thought I had crohns... (crohns sufferers are thin dont you know.... your breaking the rules!) Hence the year and a half wait for a change of doctors... which spawned another 6 months of testing....

I too am concidered as a 'mild' case.... WTF!!! THIS is mild!!! Oh god.... the future doesnt seem very bright eh?

and

2...... Good on you for kicking Crohns ass!!!! ... Not alot of people have the courage to say... 'screw you crohnic illness... eat sh&*t and die....' pardon the pun....

All the best on your quest!!!

Jessey
 
Hi and welcome! Your doctor is completely right - you are not responsible for getting Crohn's! Don't think that for a minute!

So, now with that weight off your shoulders and your fighting attitude, I think you are in a good place mentally! However, your symptoms still sound pretty bad. Have you vocalized this with your doctor? What medication are you taking?
 
Hi North Gems and welcome!

Sounds like you have had an epiphany regarding your Crohns! That is great! You are right - you have to take each day as it comes. When you have a good day, or a relatively not horrible day as it sometimes is, you have to do what you can, even if it's just going for a walk or doing something small. Take it one day at a time.

What meds are you currently on? Which ones have you tried that haven't worked?

There are a lot of Canadian Crohnies on here that can offer you advice on how to navigate the system if you need a new doc. Hopefully you are happy with the one you have now and have a treatment plan in place.

If you are looking for positive thoughts and rays of sunshine, you have come to the right place. Even though we like to vent and complain, there is a lot of positivity here on the Crohn's Forum. That's why we keep coming back!

- Amy
 
Hi all and thanks for the warm welcome :)
meds on NONE ask me if I'm scared ?
meds I have been on since Dec 2009
Entocort, Prednisone, methotrexate, immuran ask me if I was scared on these YES all BAD BAD BAD
Do I have a plan? Nope ask me if I'm scared ? You bet ya, I went for some tests the other day and when the tech saw that I had crohns he asked what meds I was taking , when I said none he asked what I was doing and I said I pray and try to bring myself to a happy place he looked at me in disbelief.
My GI is an AWHOLE since Dec 2009 I have seen him a total of 20 minutes.
I have seen a GREAT surgeon in Vancouver BC who told me that I did not need surgery at this time.
I go up to 8 to 10 times a day and up at night if I eat anything past 6p.m. I have sonstant pain upper right side, and all the other stuff I mentioned in my intro. I feel like I am stuck in the system that doesn't know what to do about this illness and we are just guinea pigs. So I am going to try and find out what this is all about and try and help some people if I can and I will be my own guinea pig.
I have been sick since I was a child and wrote a BIG LONG Bla Bla story about it all and I don't want to publish it because it is so SAD...
So I am going to try what ever I can to get better in a natural way and if it works I will be the first to let EVERYONE know.
Well check in on everyone here from time to time and yes I now know what the expression "Scared Sh!tless" now really means.
Oh Yeah another thing I have noticed NO ONE wants to talk about this except others who are sick??? go figure???
 
Hey nearnorthgems. I am too Canadian! I live in NB.

I know what you mean about the doctor being an a-hole. I've seen many doctors, and most just don't seem to care. Our satisfaction does not determine their paycheck, so they can say whatever the hell they want.
 
Wow, the more i read about the Canadian health system, the more I think Michael Moore produced a piece of fiction with his "Sicko" movie!

- Amy
 
Wow, the more i read about the Canadian health system, the more I think Michael Moore produced a piece of fiction with his "Sicko" movie!

- Amy

I do not quite understand. What's the movie about? The canadian health system?

I mean, we don't pay for medical costs (appointments, hospital trips, surgery), but we pay hefty taxes for it. Not that it's not better. The only issue is, it's so hard to find time with the doctor. My Gastroenterologist has a three year waiting list. Surgery takes forever. I can't call my GI and say "lets make an appointment". I call and leave a message. He'll probably call me back a month later :/ And again, our satisfaction doesn't really matter. We're usually just grateful to get an appointment, that we don't care if it's with a monkey who owns a scalpel.
 
The movie is about national health care systems like what you have in Canada and in the UK. As you might know, the US is in a health care crisis. Many people here think having a national health care system will solve all the problems. But when I read about the treatment or lack there of, and the lack of choices that some folks have under NHS, it makes me wonder if it's really better. I can't imagine calling my doctor not calling me back same day, or at least the nurse. He can always squeeze me in in an emergency. I am a patient, but I am still a customer, and I can go somewhere else if I choose.

But I am lucky - I have good insurance and great doctors. Not everyone in the US is so lucky.

Sorry NOrth Gems, didn't mean to hijack your thread!

- Amy
 
I would like to say something about this please, I live in the Backwoods of Quebec in a town of 1500 people and a hospital that has 10 beds and 20 longterm beds. Yes my healthcare is FREE and I think I am very lucky for that, I have access to 5 GP's for a very small town I think that is very lucky for general care, as for specialized care please understand that Canada is not populated the way that the USA is so we have to travel a long distance to get to a large health centre where most of the specialized doctors are. I am sure that in a small town in the USA you will not find a specilized doctor either, another thing is I paid 3.12$ for one months precription for entecort and 7.46$ for months script for metholtrexate, I do not think that this is a price option in USA. When I went to a metropolis i.e. Vancouver BC I saw a fantastic GI in three days and an amazing surgeon the best in BC within three weeks. I LOVE our medical system and I would LOVE it even more if the USA would do the same, I know people in the USA who have had to sell their house to help pay their medical bills, they used to have a cottage up here and they had to stop coming up to the great white north because of the medical expence. I think your health should not be a financial burden your health issue is burden enough. I can get a repheral to any large medical centre in my provence i.e. Montreal where I could have a very large choice of GI's unfortunately as mentioned we do not have the USA population so we do not have the specialized services, it is not because it is free that we dont have the service it is because Canada does have the same amount of doctors.
That is why in the near by town one hour away from my town here is one GI who is an awhole but I can go to a another GI for FREE but it will not be nearby, I have opted to travel out of my county to get the healthcare that I need I will also get reimbursed by the gouvernment for the travel expence because I do not have a specialized doctor in my county. Unfortunately if I did have a doctor in my country I would not get reimbursed but I could still get a referal to see a doctor for FREE. Not sure about the movie but I think out health system is good considering the population of the country I dont think it is because the healthcare is FREE that the doctor choices are bad. We just dont have enough doctors so the wait is long and the dictance is far to get to a metropolis area. :)
All Good
 
ameslouise, no worries sweetheart and no hijack it is good to voice conerns so we can find out if these concerns are something we should really worry about...its all good sweetheart :)
 
Thanks, North Gems! One of the things I like about this forum is reading others' experiences in different countries - health care and med differences, different foods, different holidays, etc.

And reading about the NHS there and in UK gives me something intelligent to talk about when my friends here debate wether an NHS would be good for us too!

- Ames
 

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