This is my story with Crohn's Disease

[agirlwithadisease]

In February 2010 I was starting not to feel good. I was Hunched over like really bad and Yes I was still in School in my Senior Year of High School. I felt sick and i kept missing school. A little while after that i started throwing up my food and drinks. each day while i was in school and out of school i kept throwing up things and had trouble eating foods.

So after a couple weeks i went to see my PCP and she thought it was IBS (Irritable Bowel Syndrome)...

Then I had to go to therapy cause of what happened to me when i was younger, and my therapist told me if i wanted to go to the hospital and i was scared to go because it was to go to SP (Sheppard Pratt) cause she thought it was an eating disorder.
So i went to that place and i was in there for 2 weeks but i hated it there because if you eat all your meals then you are fine but if you through it up you have to drink 3 Ensures and if you eat 50% of your meal you drink 1 Ensure and if you don't eat any then you drink 2 Ensure but like i said if you throw in up you have to drink 3 Ensure. On April 22 2010 i pasted out on the floor with a 104.2 temp and i was malnutrition and very hot. They called 911 and then the people got here to take me to the hospital and that is when they found out i had Crohn's Disease.

I had 2 Large Abscess the size of Softballs and 20 Fistulas that were connected to my outer wall inside my stomach and connected to my bladder. If the doctors didn't find it then i would have Died. I stayed in the hospital for 2 Month before my surgery because i had a Sever case of Crohn's Disease. The doctors said that i had a 15% chance of living and i was getting scared but then i knew that God was on my side and i prayed every night hoping that he can heal me to make me better.

my weight went from 115pounds to 83 in less then 1 monthale:

In May They put me on Clear Liquids for 3 Months and they put me on TPN (Total parenteral nutrition) and Pain meds ( Which were great LOL =D)

On June 1st was my graduation and YES i did graduated which made me VERY HAPPY.....

On June 15th was my 1st Surgery and i was Scared but i knew it was going to be okay. The surgery lasted 5 hours and yes there was complications and i lost a lot of blood and so after the surgery when i was in the recovery room and when i woke up all i wanted was my mom and i kept asking for her. So they brought her in and she was a feared to touch me because she knew i was hurting really baldy. I had 43 staples in my stomach and to be honest when they pulled them out it didn't hurt at all....

I'm afraid of not being able to find someone that want's to be with me and finding friends to talk about what i have been thur and there stories

I've been in Remission for 3 Years now =D

 

[David]

Welcome! It's great to have you here. And that's quite a story you have! It's terrible that you ended up at an eating disorder clinic. Good grief. I'm so sorry you went through that

Well, if you were worried about finding friends to talk to about this stuff, that worry can be crossed off the list. You're among friends now. Friends who understand.

Again, welcome!

 

[agirlwithadisease]

Welcome! It's great to have you here. And that's quite a story you have! It's terrible that you ended up at an eating disorder clinic. Good grief. I'm so sorry you went through that

Well, if you were worried about finding friends to talk to about this stuff, that worry can be crossed off the list. You're among friends now. Friends who understand.

Again, welcome!

Hey David thank you for reading my post! Yeah it was Horrible and i still have nightmares over it :frown:

you are right i can cross that off my list

 

[Angrybird]

Hello and welcome to the forum. I am sorry to see that you had to go through so much, it is so frustrating when docs see a young girl with tummy problems and immediatly think it's an eating disorder

Glad you have decided to join us though, there is such a great bunch of people here and we are here for you :hug:

AB
xx

NB Glad you are in remission, if you do not mind me asking what meds are you on?

 

[mickey]

Congratulations on surviving this to date! You are a remarkable person. You can contact your local hospital and see if they have support groups that may meet monthly. Talking to people in person may be helpful to you, in addition to this forum.

Finding friends as you get older and out of school is more difficult than when you are with a group of people all day, but use this as an opportunity to be more selective of your friends. If someone can not understand an illness or be compassionate, then that is probably not the kind of friend you want anyway. Look into groups that share the same interests (i.e., gyms for working out, running groups, volunteer work, etc.) and you will begin to meet people who share your same interests. You have a whole new world to create around you. Congrats on the remission! Keep going!

 

[agirlwithadisease]

Hello and welcome to the forum. I am sorry to see that you had to go through so much, it is so frustrating when docs see a young girl with tummy problems and immediatly think it's an eating disorder

Glad you have decided to join us though, there is such a great bunch of people here and we are here for you :hug:

AB
xx

NB Glad you are in remission, if you do not mind me asking what meds are you on?

well i am only on 1 which is 6MP at 50mg