Totally aggravated

[sickofbeingsick76]

I really don't know what to do anymore. This is my second time posting anything, the first one was introducing myself. After my colonoscopy September 2011, my new gastro indicated that he wanted to try the Remicade again. I stopped using it because I was scared of all the side effects. Im at the point that I dont care what side effects it has. I can't continue feeling this way. I decided that I would wait to start it until I met with a specialist in NYC to see what she recommends. I made the appoinment for October 19, 2011 (which is tomorrow). Thank god that I called today to confirm the appointment because they indicated to me that no such appointment was scheduled!!! I thought I was hearing wrong. So now my appointment is scheduled for Nov. 14. Nothing sooner. Everytime, I use the bathroom its like shards of glass coming out. (Im sorry for the TMI). Im in extreme pain. The tramadol doesn't do anything. My gastro won't prescribe me anything stronger. I take Asacol and Entocort. I just started Flax seed oil supplements and Marshmallow root supplements. Nothing is helping me at all. Everyday that I deal with this, I get extremely depressed. I just want to be normal. Many doctor's dont want to help because they say my condition is too difficult. Im at a loss...

 

[hannaho]

Poor u it's horrible i get depressed as well and sometimes feel like there is no break from being ill. Like urself im in lost of pain now and the painkillers are just not doing anything im passing some blood to. It is so fustraating when u have to wait so long to see ur doc.
I hope u feel better soon.x

 

[xJillx]

I am so sorry you have to wait until mid-November to see this new doctor. Most would may say it's not far off, but for those in such pain, it feels like a lifetime away. I can understand why you are feeling depressed.

I sure hope you start feeling better soon and your upcoming appointment goes well!

 

[Grant]

Ho sickofbeingsick76, sorry to hear your so unwell. With regards to the shards of glass pain perhaps you either have a fissure or hemorrhoids. A trip to your local Dr could give you some relief. Colifoam in particular reduces rectal inflammation & is very good.
Hope this helps & you feel better soon.
Best Wishes
Grant

 

[sickofbeingsick76]

I really don't know how to respond to everyone individually, so Im gonna do it like this...sorry lol. Im not tech savvy.

@hannaho...it really stinks feeling this way, many people who dont have this dont understand what we go through. I didn't go to work today because of the horrendous pain that I'm in. All I want is to be normal, but unfortunately thats not gonna be a possibility. I just took two tramadol, it usually kicks in 6 hours later. Im waiting for my dr's office to schedule the remicade in the meantime. I spoke to them yesterday and they said someone should reach out to me by Monday. It seems like worlds away. I hope you feel better soon. Hopefully, soon there will be something out there that can help us all.

@xJillx - Next month does feel like forever away. I was so upset that they messed up with the appointment, i should've wrote down the name of the person that I spoke to. I dont' know why I didnt think of it. Hopefully this month goes by fast. In the meantime, I hope the remicade gets scheduled asap. Thanks for the reply..

@Grant...when I had the colonoscopy last month, my gastro indicated that my colon was covered in ulcers, which would cause the pain when going. This guy is so inexperienced he has already indicated to me that he does not know what to give me to help me with the pain. Ive had this problem before and my old gastro gave me these suppositories which worked as an anti-inflammatory which cured the problem. Its too bad that I dont know what they were called. Is colifoam a prescribed medication or is that something that can be bought in the pharmacy?

 

[Grant]

Prescribed here in UK. Either that or PredSol Suppositories which are VG as well. But the Colifoam for me eases things a tad quicker & would be my 1st choice.
Rgds
Grant

 

[sickofbeingsick76]

Unfortunately, we dont have Colifoam in the United States. I just checked on google for PredSol and I don't see it either in the states. Thanks for getting back to me..

 

[hannaho]

I know just a few days the doctors think but to us when were in agony a few days is like a life time. I know some people just dont get it and it is so annoying but then when im in a postive mood i think well there is sicker people out there but that dont help with the pain or all the other awful things that come with it.I hope u feel beetter to and that everything goes well on monday.xx

 

[sickofbeingsick76]

I try to have a positive attitude and Im like you wherein I tell myself that there are sicker people out there, and you are right it does not help with the pain at all. Sometimes it just makes it worse for me. Thank you..I will keep everyone updated..

 

[Trysha]

Cortifoam is the name used in Canada and probably in USA.
Made by MF (Medical FuturesInc., Richmond Hill, Canada,) "Colifoam" is a UK name for the same product.It is 10%hydrocortisone acetate rectal foam.Needs RX.
It is amazingly effective within 5 - 6 days, tremendous relief I have experienced on a number of occasions.
It is a steroid foam and rapidly anti inflammatory.
Hope you will get some help sooner , I really feel for you.
Hugs and best wishes
Trysha
PS try googling Cortifoam

 

[sickofbeingsick76]

Lol, I just googled it. Thank you so much Trysha, I will definitely call my gastro first thing in the morning so i can get him to prescribe it to me. I really need it cause the pain is unbearable.

 

[hannaho]

I know totally agree it so fustrating.x

 

[KaLa]

Canasa are prescription anti-inflammatory suppositories and Rowasa is a prescription anti-inflammatory enema (same medicine - Mesalamine). I use the Rowasa enemas to keep the inflammation down. I have ulcerative colitis. Hang in there. We have all been in your shoes at one time or another and it is such a horribly difficult place to be. Just know that you will feel better once you find a doctor who is experienced and who can get you on a proper treatment plan.

 

[sickofbeingsick76]

KaLa, I believe Canasa was what my previous gastro prescribed for this problem. It helped me right away. I think Im gonna end up going back to him, cause he unlike my gastro now was on top of things. Thank you for replying.