Uc or cd?

Crohn's Disease Forum

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Do you have uc or cd

  • CD

    Votes: 61 85.9%

  • UC

    Votes: 8 11.3%

  • Other from of IBD

    Votes: 1 1.4%

  • My partner has UC

    Votes: 0 0.0%

  • My partner has CD

    Votes: 1 1.4%
  • Total voters
    71
I have Crohns most likely but the Pathologists results say it could be either UC or CD.
 
I get the feeling I'm in a minority lol.

That's the way I like it :D Unique (or a freak whatever lol)
 
I was told from biopsies 3 years ago it was Crohns, but since Im in remission, and the inflamation is all but gone, the latest biopsies didnt show any CD.. so not sure.. still on all the same meds, and they have finally worked, so I will just stick with that for now.
(my Dr said pathology would only be important for me, if and when surgery comes into play)
 
I had uc for 5 years then had a ileo at 18 n then j-pouch created 6 months later n now have a j-pouch
 
I guess I'm a lucky.:yfaint: one Have crohns starting at the end of small intestine thru large to end, but also have UC.
 
I was told they (pathologists) couldn't tell whether it was Crohn's or Ulcerative. I'd been told by someone that if I was lucky, it would turn out to be UC, because according to that source, UC is curable/Crohns is not. Thought that was the story, but my research since says that, altho different... neither is
"curable"[un-quote]. Distinctive characteristic is the level of the scarring.. apparently scars run deeper in crohns... Mine apparently too imature to tell. (hmm, wonder if that's because I still don't act my age??) UC, CD, IBD, it's all the shits as far as I'm concerned... (but doc thinks it's CD)... So, what do I win? Tell me
Click to expand...
 
I've got Crohns but I've just been told that my biopsy results showed active Colitis aswell so I guess I'm just greedy
 
Lee1975 said:
I've got Crohns but I've just been told that my biopsy results showed active Colitis aswell so I guess I'm just greedy
Click to expand...

im the same i have both so im not sure which one to tick, My consultant says it the UC that they used to have probs controlling not the crohns even through the crohns is worst.
 
Age old question... And there are so many variations.. and then there are some of us who no one knows for sure which version or combo of IBD they got. I wish I (or my GI's, or the lab work, scopes, CT's, X-rays, biopsies, welll, you get the idea)
could say for sure which 'version' I got... It certainly would be nice to know before I someday face the ostomy issue.. In the meantime, does it really matter all that much? Like, regardless of whether you or I have UC, CC, CD, or whatever... think we have much more in common than the little pigeonholes a doctor may use to distinguish between us. Anyone else feel the same way I do?
 
my 11 yr old was recently dx'd w/ crohn's disease :( were waiting on pathology to see how advanced the cells are so treatment can begin. we have the follow-up visit next week.
 
Hi w4sted. welcome to the forum. Having this happen to one's children can be a very hard issue for parents to deal with. You'll find other parents on here, even some folks who contracted/diagnosed at similar ages.. we even have a regular on here who is only 14 (but an amazing 14 year old). The 'good' news (if I can use that phrase) is that this is typically a 'life' altering disease, not a life ending one. I hope you can draw some comfort from that, and hope N stength from the other members on here, their stories. Be sure to let us know how you make out.. There's an introductory segment on here called My Story.. Drop in there and tell us a little more about yourself.. your child.. Once again, welcome!

and, to reiterate my earlier point about... well, my issue with pigeonholing our colective 'disease'... anyone who hasn't should take a look at our newest IBD member. Originally pigeonholed with Colitis, dr's later discovered (big shock) it was wrong dx.. It was crohns.. and the J-pouch surgery wasn't the big 'cure'.

I personally think 'WE' have to watch out for pigeonholing.. so we don't fall into the 'trap' of telling someone who has been mis-labeled (mis-diagnosed) as it being CC, UC or whatever.. that they can be 'cured' if they just do this/that.

I HAD that happen when I was originally mis-diagnosed with Diverticular Assoc. colitis. told that my resection would be the end of this nitemare. It wasn't. And I wouldn't want anyone else, even my worst enemy, to suffer the incredible dissappointment that I went thru when my disease CAME back, worse N ever!!

end of sermon.. (I promise)
 
Kev said:
Hi w4sted. welcome to the forum. Having this happen to one's children can be a very hard issue for parents to deal with. You'll find other parents on here, even some folks who contracted/diagnosed at similar ages.. we even have a regular on here who is only 14 (but an amazing 14 year old). The 'good' news (if I can use that phrase) is that this is typically a 'life' altering disease, not a life ending one. I hope you can draw some comfort from that, and hope N stength from the other members on here, their stories. Be sure to let us know how you make out.. There's an introductory segment on here called My Story.. Drop in there and tell us a little more about yourself.. your child.. Once again, welcome!

and, to reiterate my earlier point about... well, my issue with pigeonholing our colective 'disease'... anyone who hasn't should take a look at our newest IBD member. Originally pigeonholed with Colitis, dr's later discovered (big shock) it was wrong dx.. It was crohns.. and the J-pouch surgery wasn't the big 'cure'.

I personally think 'WE' have to watch out for pigeonholing.. so we don't fall into the 'trap' of telling someone who has been mis-labeled (mis-diagnosed) as it being CC, UC or whatever.. that they can be 'cured' if they just do this/that.

I HAD that happen when I was originally mis-diagnosed with Diverticular Assoc. colitis. told that my resection would be the end of this nitemare. It wasn't. And I wouldn't want anyone else, even my worst enemy, to suffer the incredible dissappointment that I went thru when my disease CAME back, worse N ever!!

end of sermon.. (I promise)
Click to expand...
hi kev :)

thanks for the welcome and the information!

wow, its been a very busy month and a half!

my daughters dx is crohns, she is now on predisone/pentasa/purinethol (6-MP)
shes showing some side effects already, and having kidney issues now too...

i guess ill look around more, learn some and post a little.

:)

eta doses: (per day)
predisone 40mg/pentasa 2000mg/purinethol 50mg(6-MP)
 
Last edited:
i think uc when hole large bowel is infected but crohns is when might be just some part of bowel is infected. not sure
 
Ah - thanks Pen. Mike had written that it is hard to distinguish between the two, and I thought that Mazen wrote it IS in the T.I. I added the word is - whole different meaning.
 
The ileum is in the small intestine, there are 5 subtypes of crohn's and yes, crohn's can affect any part of the GI tract from mouth to anus but there are 5 common places that it generally affects...

Types Of Crohn's Disease

There are five subtypes of Crohn's disease, distinguished by the gastrointestinal area in which the disease occurs. While Crohn's disease lesions can appear anywhere in the digestive tract, lesions rarely occur in the mouth, esophagus, and stomach unless there are also lesions in the lower parts of the tract (intestines).

Gastroduodenal CD - Gastroduodenal Crohn's disease, which affects the stomach and the duodenum (the highest, or beginning, portion of the small intestine), is often misdiagnosed as ulcer disease. The correct diagnosis frequently is not made until various ulcer treatments have failed, or until Crohn's disease is identified farther down the gastrointestinal tract. Symptoms of gastroduodenal CD include loss of appetite, weight loss, nausea, pain in the upper middle of the abdomen, and vomiting.

Jejunoileitis - Jejunoileitis is Crohn's disease of the jejunum (the longest portion of the small intestine), which is located between the duodenum and the ileum. Symptoms include mild to intense abdominal pain and cramps after meals, diarrhea, and malnutrition caused by malabsorption of nutrients. (The majority of nutrients are absorbed in the jejunum.) Fistulas (abnormal openings in the intestinal tract) may form. These can link a diseased area of the small intestine to another area of the intestine or another organ, such as the bladder. Fistulas may increase the risk of developing infections outside of the GI tract.

Ileitis - Ileitis affects the ileum (the lowest, or last, part of the small intestine). Symptoms include diarrhea and cramping or pain in the right lower quadrant and periumbilical (around the bellybutton) area, especially after meals. Malabsorption of vitamin B12 can lead to tingling in the fingers or toes (peripheral neuropathy). Folate deficiency can hinder the development of red blood cells, putting the patient at higher risk of developing anemia. Fistulas can develop, as can inflammatory masses.

Ileocolitis - Ileocolitis is the most common type of Crohn's disease. It affects the ileum (the lowest part of the small intestine) and the colon (the large intestine). Often, the diseased area of the colon is continuous with the diseased ileum, and therefore involves the ileocecal valve between the ileum and the colon. In some cases, however, areas of the colon not contiguous with the ileum are involved. Symptoms of ileocolitis are essentially the same as those present in ileitis. Weight loss is also common.

Crohn's Colitis (Granulomatous Colitis ) - Crohn's colitis affects the colon. It is distinguished from ulcerative colitis in two ways. First, there are often areas of healthy tissue between areas of diseased tissue; ulcerative colitis is always continuous. Second, while ulcerative colitis always affects the rectum and areas of the colon beyond the rectum, Crohn's colitis can spare the rectum, appearing only in the colon.

Crohn's colitis is not the same as having crohn's and/or ulcerative colitis...ulcerative colitis affects the colon/rectom only.

:)
 

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