- Joined
- Jun 17, 2011
- Messages
- 105
I am unexpectedly pregnant and miserable.
A quick background on me... About 6 months ago everything was all scheduled for me to have a stem cell transplant to treat the crohns. At my final evaluation it was determined that the medication they had been using to "bridge the gap" until we raised the money for the transplant had helped me enough that I temporarily didn't fit the guidelines and needed to wait for it to wear off and my disease to increase in severity again in order to proceed ( this would have been good news, except I had become allergic to the medicine and couldn't have another dose, so the fact it helped me just felt like it delayed the transplant that was still inevitable).
About 3 months later (3 months ago) I began to feel the disease worsening and felt certain I would be returning for the transplant shortly. Then, within the month my period was late, and surprise surprise... I'm pregnant!i guess the good news about the timing is I had stopped all meds a few months prior anticipating the transplant.
Back to the issue at hand... I am now about 11 weeks along and not feeling so great.
I have read so many happy stories on here of people feeling amazing during pregnancy and was optimistic I too would catch a little break from the pain that is crohns. So far, no such luck. I have such terrible " morning sickness" ( more like morning, afternoon, evening, and night) that I am lucky to keep any food down ( ESP. Fluids, as odd as it seems to me that I can handle dry cereal better than sipping water...anyone else experience this?). And in the event I manage to keep anything down I can count on severe and painful diarrhea and cramping as may reward.
I have called both my ob and gastro. The ob says the crohns doctor needs to treat, and the gastro says he thinks most of it is pregnancy related and to call the ob.
To top it all off I began having excruciating left shoulder pain yesterday. It kept me up all night in so much pain with every movement that all I could do was focus on remembering to breath and adjust positions every 30 seconds. I saw my pcp and he diagnosed the shoulder pain as a rotator cuff problem and prescribed physical therapy. I am questioning this diagnosis because I didn't do anything physically strenuous to have hurt my arm in the first place, and I feel like it is more likely that is relates to the pregnancy somehow because I have never had shoulder problems in the past. (Also, my bp was 84/60, pulse 91, and pulse ox was 95. Normal for me is more like 110/65, 65, and 100. I'm not sure how the difference in pulse rate and oxygenation tie into everything, or that they are even a big deal... and I think the bp is dehydration related, but still the difference in numbers is concerning to me on top of everything else that is going on).
If anyone has similar experiences and can share it would be greatly appreciated. ESP. Regarding the shoulder pain. I feel like I'm going crazy never able to be comfortable and always having something hurting. Any advice or input would be great! Thanks fellow crohnies!
A quick background on me... About 6 months ago everything was all scheduled for me to have a stem cell transplant to treat the crohns. At my final evaluation it was determined that the medication they had been using to "bridge the gap" until we raised the money for the transplant had helped me enough that I temporarily didn't fit the guidelines and needed to wait for it to wear off and my disease to increase in severity again in order to proceed ( this would have been good news, except I had become allergic to the medicine and couldn't have another dose, so the fact it helped me just felt like it delayed the transplant that was still inevitable).
About 3 months later (3 months ago) I began to feel the disease worsening and felt certain I would be returning for the transplant shortly. Then, within the month my period was late, and surprise surprise... I'm pregnant!i guess the good news about the timing is I had stopped all meds a few months prior anticipating the transplant.
Back to the issue at hand... I am now about 11 weeks along and not feeling so great.
I have read so many happy stories on here of people feeling amazing during pregnancy and was optimistic I too would catch a little break from the pain that is crohns. So far, no such luck. I have such terrible " morning sickness" ( more like morning, afternoon, evening, and night) that I am lucky to keep any food down ( ESP. Fluids, as odd as it seems to me that I can handle dry cereal better than sipping water...anyone else experience this?). And in the event I manage to keep anything down I can count on severe and painful diarrhea and cramping as may reward.
I have called both my ob and gastro. The ob says the crohns doctor needs to treat, and the gastro says he thinks most of it is pregnancy related and to call the ob.
To top it all off I began having excruciating left shoulder pain yesterday. It kept me up all night in so much pain with every movement that all I could do was focus on remembering to breath and adjust positions every 30 seconds. I saw my pcp and he diagnosed the shoulder pain as a rotator cuff problem and prescribed physical therapy. I am questioning this diagnosis because I didn't do anything physically strenuous to have hurt my arm in the first place, and I feel like it is more likely that is relates to the pregnancy somehow because I have never had shoulder problems in the past. (Also, my bp was 84/60, pulse 91, and pulse ox was 95. Normal for me is more like 110/65, 65, and 100. I'm not sure how the difference in pulse rate and oxygenation tie into everything, or that they are even a big deal... and I think the bp is dehydration related, but still the difference in numbers is concerning to me on top of everything else that is going on).
If anyone has similar experiences and can share it would be greatly appreciated. ESP. Regarding the shoulder pain. I feel like I'm going crazy never able to be comfortable and always having something hurting. Any advice or input would be great! Thanks fellow crohnies!
