Unsure

[Kyle's mom]

K has had 2 bowel obstructions in the past 8 months. Steroids have cleared inflammation, colonoscopy an MRE were normal. K has been on Remicade and methotrexate for some time now. In my opinion the Remicade is not working but GI is only increasing dose. What are everyone's thoughts?

 

[Brian'sMom]

In our experience the GI always increases dose or time inbetween etc before changing meds. They told us they are told over and over not to give up too soon on a med because then you cross one off the list

 

[my little penguin]

Same here DS needed a higher dose and shorter frequency for remicade to keep working for him.
Humira same thing higher dose was needed .
Good luck

 

[Farmwife]

Yes, same thing. Give it more time, increase dose and hopefully it will help.:hug:
The hard part for me is the waiting.:ymad:

 

[Maya142]

Same as above - M is on a very high dose of Remicade every 4 weeks.
Have they done the antibodies test for Remicade?
Waiting is the absolute worst!

 

[Kyle's mom]

Same as above - M is on a very high dose of Remicade every 4 weeks.
Have they done the antibodies test for Remicade?
Waiting is the absolute worst!

He has been tested twice for antibodies and he has none so far.