Update and diagnosis!

[Badtummy4]

Hi, so finally after a year I have been diagnosed with severe Crohn's disease. I ended up having a colonoscopy and and upper endoscopy. The upper endoscopy showed nothing but the colonoscopy showed severe inflammation and redness and ulcers. I am currently in hospital because they wouldn't let me go home because of how severe it was. They put me on a drip which gives me steroids and antibiotics for half an hour and two other medicines for an hour. Three of them get infused 3 times a day and the other once a day. They are keeping me in hospital next week and on Monday I can only eat what they give me.

The drip is so painful, any tips on getting rid of the pain a bit and also my bandage is very tight so that didn't help

 

[scottsma]

Hopefully your inflammation will settle down with the intensive meds.Tell the staff about your drip pain and tight bandage,you shouldn't be in discomfort on top of everything else.
You're in the right place and you wouldn't be there if it wasn't necessary,so chin up.
Hope you start to improve soon.

 

[Charlotte.]

So sorry to hear that you suspected the correct diagnosis by yourself already... BUT it's good to know what is going on so now you will feel better very soon hopefully, even though you make very small progress first or you have to find the right treatment first.

What do you mean by painful drip? The cannula itself? Maybe it gets better by slowing down the drip (you can ask the nurse if that is an option), otherwise some veins are more sensitive than others. Probably the medication itself could trigger some slight pain in the veins (I had some slight pain when I had my last iron infusion done, one week ago, I usually feel that pain from the iron infusion; also had some pain while being on TPN just from the liquid itself).
If it does not get better at all, you could ask if you can get a new venous access, maybe trying the other arm (it's in your arm currently, or hand?). That usually helped me in that situation when I was on peripheral TPN for a few days.

Hope you feel better soon! Feel free to ask anything here online, it's a lot of information, questions and concerns after diagnosis but bear in mind, you will get better from now on.

 

[ronroush7]

Hi. I am sorry for the pain you are going through. I agree about letting the staff know.

 

[Aarxl180]

How are you doing now?