Very nervous about seeing Gi tomorrow

[porter89xxx]

Hi everyone just thought i would ask peoples advice on seeing the dreaded doctor tomorrow.

I havent been diagnosed of having crohns but pretty much fit all the symptoms and got told i did have it last year until they put me on steriods and did the tests afterwards which showed nothing, i then got told i had a dysfunctional bowel. So im seeing this Gi tomorrow and i just feel like im going to get knocked down on everything i say, since seeing him last year i have now started bleeding and my weight has still been going down, i have been getting steadily worse and had to give up my job so the thing is how can i let him no how i feel without him making me feel as if i should just accept what he says? I dont have a clue and im like one of these people where i dont stand up for myself but rather sit there and cry lol

 

[Rebecca85]

If you are bleeding, that means it cannot be IBS. Is there someone you could take with you? How about writing everything down, then you can just give him the paper if you don't feel able to talk directly to him.

 

[porter89xxx]

I have wrote everything down its just that ive told my regular gi about the bleeding and they make it sound like you have hemmoriods or a tear when you have watery diareah that possibly couldnt cause tears and the bleeding is dark in colour mixed with mucus, i just am prepared for them to shoot me down and it makes it so much harder to sit there and listen to the crap

 

[Rebecca85]

Tell them it's dark blood then! Take a photo or sample if you have to! Or try turning it round and ask them to run tests to prove it's just IBS.

 

[porter89xxx]

Yes i think i will tell them its dark blood they have done a mri scan and a flexi sigmoid just this year but the pain is on the right hand side they have never repeated the test that found the crohns before but they say we have run alot of tests and its ok it makes you think your going mad

 

[Rebecca85]

What test was it before?

 

[BLM]

I find when I stand up to my drs and dont show them weakness by crying, they take you more seriously. Ive actually had to practice what and how I was going to say things before I went to see my dr. While being so strong, it is so easy to cry at the drop of a hat when a dr tells you no, or its in your head, or the tests show nothing so your fine....I switched drs and went in on my first visit with my new dr and told her what I wanted and what I didnt want!! She has fully listened and coplied with my drectives as her patient. You deserve to be heard, stand up for yourself!!

 

[BigUglyCat]

I agree with Rebecca85, taking someone with you is a great help.

Some of what they say is too emotional to be heard sometimes, especially when it flys against what you feel is true. I've only had one doc who was in sync with that response and after giving me devastating news actually said "ok, I'm going to stop talking now because I find that people do not hear what I say anyway'" He was incredibly sensitive to how I was feeling. But in 33 years, and I can't count the number of docs, he was the only one. Good luck!

 

[xoxava]

What I found that worked for me was taking my mom with me since she saw everything happening and I wrote down every symptom and when/how often it occured. I'm on my 3rd GI. My primary care doctor is the one who dx my crohns. The GI I am seeing now offered to do the blood ibd7 test and a new colonoscopy. But if its something you don't want done, just tell them. I know its hard and it feels as if they blow you off but eventually they will start listening. I hope everything goes well with your apt keep us posted!

 

[Jennifer]

Writing down symptoms and questions is always good. Bringing someone with you is a plus cause they may have other questions to ask that you didn't even think of. See how the visit goes and if you're still getting nowhere, then a 2nd, 3rd or 10th opinion may be in order. Bleeding isn't normal and doesn't always mean hemorrhoids. I had sores that were bleeding bright red in my ileum. I don't know why my doctors took that so seriously yet I hear people on here talking about their doctors simply brushing it off as normal or nothing to worry about. Boggles my mind.

 

[Nica]

Good Luck with your G.I.

On another note, if you can't talk to the G.I. you are seeing maybe you should go to someone else. I have found that doctors have personalities just like everyone else. Finding a match to your personality when dealing with a chronic disease that keeps us going to the doc pretty much all the time is important.

 

[Rebecca85]

How did it go?

 

[porter89xxx]

Hi everyone so i saw him today, he was very rude and was just trying to dismiss everything but i stood my ground and told him what i was unhappy with and what didnt make sense my mum also come into the room with me and backed me up on the bleeding and the weight loss etc and he has scheduled for another colonscopy for 2 and a half weeks time so at least that is something, considering he is not my normal GI he was very brash about things and acted like he knew all about me

 

[DustyKat]

Good on you!!! And good on Mum!!!

I'm glad you got something out of him and good luck with your upcoming test.....................

:goodluck::goodluck::goodluck:

Dusty.

 

[porter89xxx]

Thanks dustykat im just really hoping this will be the test x

 

[Astra]

Hiya Amy!

sorry I'm late with this, I've missed it!
really hope this doc gets you sorted, and soon. You've suffered enough hun
love lots and fingers crossed for you
xxx

 

[Manzyb]

Go mum!!

They are awesome for helping stand your ground :0) I hope you get some answers soon. Docs are so intimidating sometimes!

 

[Jennifer]

Good for you and I'm glad that you brought someone with you as well.

 

[BigUglyCat]

Good news, good for mum and great for you. Glad you stood your ground. I look forward to hearing how it goes.