What exactly do we mean by Remission?

[Kuwabara]

Its seems were all searching for this utopian state of 'remission'. But what is it exactly? Why does remission seem to happen?(well what are the possible explanation's). Do the doctors have any idea why remission may occur in certain case? Does that mean that Crohn's is simply a switch between 'flare' and 'remission'?

I may be stupid and be asking 'How do you cure Crohn's disease?' here. But I don't know - its just something that was bugging me.

Brothers and sisters...do enlighten me

 

[shazamataz]

Lots of threads on that here and lots of different opinions. To me it would be no symptoms like I have right now, though mine weren't that obvious to begin with so hard to tell!

 

[Wiles]

My understanding is that the disease never really goes away but can go into a remission state, a state in which the disease is inactive. For different people this has been achieved by various means, meds, diet, surgery etc... Crohn's can greatly vary from person to person. Some people are able to achieve remission by the milder of the medications, while others don't respond to medical treatment well at all. How long remission lasts is also variable.

I've been in what I consider remission twice - 3 months while on remicade and once again after surgery. While on remicade it was the drug that was maintaining this remission state, but after surgery my body has been able to maintain this state on its own. I still have symptoms, but they are not symptoms caused by active Crohn's, they are symptoms caused by the damage that the disease has done to my body over the years and by the surgery I had. For me remission isn't really a utopian state, but it is probably as good as it gets. I'll never be normal again but as long as I am enjoying a better quality of life I am happy!

 

[CrohnieCarolyn]

I agree with Wiles. For me, if I am not having night sweats, vomiting, burning diareeha, no energy, can't eat...then I know I am not in remission. If I can function but don't have all the above mentioned except the diareeha - which I know I will probably have the rest of my life then I consider myself in remission...In other words "when flaring - no remission" "when not flaring - remission" The longest I went was almost 8 months with the Remicade...twas Utopia indeedie!

 

[imisspopcorn]

Hey James,
Here is one of the other threads...There are quite a few floating around here lately...I hope that is a good sign
http://www.crohnsforum.com/showthread.php?t=7775

 

[Kuwabara]

Interesting thoughts. Cheers guys.

Mispopcorn what is your proper title? I feel an idiot using Misspopcorn. Especially when you're so helpful to people like me - You know the type that couldn't outwit a used teabag.

p.s Utopia is a great word isn't it. Its up there with 'Glockenspiel' and ' Mamihlapinatapai' (look it up)as one of my favourites. But then again I am quite sad.

 

[shazamataz]

Misspopcorn was actually christened that - convenient huh?

 

[Kuwabara]

Some parents are just cruel are they not?

 

[shazamataz]

Well yes they are, I mean what sort of person calls their kid Kuwabara?

 

[Nickyj05]

I would have to agree with the previous posts. Remission is for the most part symptom free. I still have whiley bowels from time to time after I eat certain foods or drink lots of booze, but my normal day to day is not very affected by Crohns (consider myself in remission for the better part of 3 years). I couldn't live when I was in an active state of Crohn's. Which leads the question of: is a flare up considered active crohn's or just a temporary relapse in which the person will eventually return into remission.

 

[Kuwabara]

Is all a bit chicken and the egg isn't it Nick?

As for you Shaz - I wanted to be called Hercules Rockafeller, Rembrandt Q. Einstein or Handsome B. Wonderful. James Robert Deacon isn't a bad name. a bit dull perhaps.

Its Kuwabara! Kuwabara! ( you have to say it twice)

http://en.wikipedia.org/wiki/Kuwabara_kuwabara

 

[shazamataz]

I know! I just looked it up - nice!

And I still curse my parents for calling me Shazamataz - they must have been drunk

 

[Kuwabara]

Yeah it looks like they were playing Scrabble when they named you.

How about 'Shazmataz'? Triple word score!
You know darling, I think that would make for a terrific name for our soon to be born child don't you?
Why yes, one wonders why one did not think of such a alias on an occasion prior!
Yes one does wonder that. So it is settled then.
Indeed it is.
Right my go.... how about 'd-o-g' - 5 points.
It's not quite as good as Shazmataz is it?
No not really. I hate to be a terrible bore but are you sure Shazmataz is in the dictionary?
Yep.
Really?
Yes...so that's 110 points to me and...
5 to me.


(your parents did speak in the manner of 18th Century Lords and Ladies, least they do in my head)

 

[shazamataz]

:ylol2: :ylol2: :ylol2: :ylol2:

Well they may not have spoken EXACTLY like that but they did have Northern irish accents.

Must correct you though its ShazA mataz, not Shazmataz. You left out a whole entire sylable which would change the meaning of the word completely.

Shazmataz - is a very unusual but interesting knitting stitch dating back to the 16th cemntury

ShazAmataz - golden angel of pure and beautiful light.

See? Big difference

 

[shazamataz]

And to add, I now have the song 'Cookaburra sits in the old gum tree, merry merry king of the bush is he....' with Kuwabara substituted in. Very annoying!

 

[Kuwabara]

I stand humbled by my own human fallability and your own brilliance.

 

[shazamataz]

I stand humbled by my own human fallability and your own brilliance.

Good. At least now you know your place

 

[imisspopcorn]

Good. At least now you know your place

Feisty kiwi.......get em'

 

[wild_one353]

the medical definition of remission is used so not as to assume a cure.

wouldnt want to use the term cure so lightly, so they use the term remission, such as for cancer and such, while cancer does have a tendancy to dissappear, they still say remission, not cure.

 

[Crohn's 35]

My understanding is that the disease never really goes away but can go into a remission state, a state in which the disease is inactive. For different people this has been achieved by various means, meds, diet, surgery etc... Crohn's can greatly vary from person to person. Some people are able to achieve remission by the milder of the medications, while others don't respond to medical treatment well at all. How long remission lasts is also variable.

I've been in what I consider remission twice - 3 months while on remicade and once again after surgery. While on remicade it was the drug that was maintaining this remission state, but after surgery my body has been able to maintain this state on its own. I still have symptoms, but they are not symptoms caused by active Crohn's, they are symptoms caused by the damage that the disease has done to my body over the years and by the surgery I had. For me remission isn't really a utopian state, but it is probably as good as it gets. I'll never be normal again but as long as I am enjoying a better quality of life I am happy!

Couldnt of explained it any better in my opinion too!