What kind of medication do you want?

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If you could pick crohn's related medications to develop what would they be? Try to be realistic.

What I'd like to see is a liquid pain killer that could be consumed and it would relieve pain as it traveled all the way down the digestive system. It would be a local (sort of like a topical) anesthetic so that it wouldn't have any significant effect outside of the digestive tract but it would remove feeling. Being liquid it would travel very quickly. It could be used as needed so you could just keep a small bottle with you and take it like an alcohol shot.

The only unavoidable side-effects would likely be the inability to feel if you were full so you would have to avoid eating or control how much you eat while the drug was in effect. That, and it would probably numb your tongue and give you a little bit of the post-dentist feeling. Without injecting it and causing swelling though you'd trip over your tongue less so it wouldn't be as bad.

It would be kind of like benzocaine but something you could drink in significant quantities and that would spread its effect all the way through your digestive system.

Anyway.. that's just my little darvocet-induced ramble.
 
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to help with arthritus management, i'd like to see the "deep heat" creams (not sure what they're called in other parts of the world) in a Roll-On or Stick applicator.

it gets really messy on your hands in the tube cream version.
 
Colt said:
Great contribution jed. You've got a good idea.

thanks Colt,

I've actually contacted a few of the pharmaceutical companies that make those type of gels, and they all replied they had no interest it :(
 
Patent it and start selling it. All they put in those creams is menthol which is just an extract from mint. Make a roll-on liquid tube by putting a rolling ball on the mouth of a tube and fill it with menthol from a health-food store and a diluting material of some sort like mineral oil or petroleum jelly and start selling it.
 
I've seen analgesic creams with roll-on applicators. Can't recall the brand. Seen it in healthfood stores.
 
I don't think omitting the word "cure" from my answer SHOULD be unrealistic, sad to say.

No more hopeful bandaids, I want a fix.
 
I want a drug like prednisone that quashes my symptoms almost immediatley but doesn't have the side effects and long-term problems of prednisone (though I rather enjoy the energy boost I get from it!). Love how cheap prednisone is, too!!

Lisa
 
jed said:
thanks Colt,

I've actually contacted a few of the pharmaceutical companies that make those type of gels, and they all replied they had no interest it :(

They make something like this already here in the states. I honestly can't recall what its called right now though.
 
The only pain relief I've seen with an applicator like that (over here) is Hedex, which is designed to be rolled onto the forehead.
 
"HEAD ON APPLY DIRECTLY TO THE FOREHEAD HEAD ON APPLY DIRECTLY TO THE FOREHEAD HEAD ON... I HATE YOUR COMMERCIAL BUT YOUR PRODUCT WORKS!"


I can't stand those commercials...
 
Okay...only because I had the colonoscopy this week (and this is assuming I can't get, say, a cure)...then I would have them invent a TASTE FREE colonoscopy prep. Seriously, sometimes I think having one of those things every couple of years is one of the worst things about this disease (but then, I REALLY hate the prep liquid...really, really, really).
 
ErinDF said:
Okay...only because I had the colonoscopy this week (and this is assuming I can't get, say, a cure)...then I would have them invent a TASTE FREE colonoscopy prep. Seriously, sometimes I think having one of those things every couple of years is one of the worst things about this disease (but then, I REALLY hate the prep liquid...really, really, really).

This one. Genius.
 
ErinDF said:
Okay...only because I had the colonoscopy this week (and this is assuming I can't get, say, a cure)...then I would have them invent a TASTE FREE colonoscopy prep. Seriously, sometimes I think having one of those things every couple of years is one of the worst things about this disease (but then, I REALLY hate the prep liquid...really, really, really).

They can invent special food for the astronauts and we can't get a colonoscopy prep that is tasteless or has a descent flavor. What's up with that!?
 
See okay... the taste is bad... but I think that the TEXTURE is horrendous. I feel like I'm drinking sweaty oil water. Anyone else?
 
And now let me ask the question: Why are the drug companies not working on these things? Being the realistically achievable (and presumably relatively easy to create) drugs wanted by a large group of diseased individuals (IBD is one of the largest groups of the chronically ill) why are these not high priorities in research?
 
What about that Barium stuff...YUK! Why when you have tummy issues do all the tests involve swallowing a good amount of something nasty?

We need a Crohnie to get into the meds business!
 
teeny5 said:
What about that Barium stuff...YUK! Why when you have tummy issues do all the tests involve swallowing a good amount of something nasty?

We need a Crohnie to get into the meds business!


When I have Barium studies done they flavor it for me. They always did it for me when I was in pediatrics but once I went to an adult doctor they tried to give it to me without the flavoring and I refused to drink it so now they flavor it for me and it really isn't that bad as for the colonoscopy prep ew gag I can't even talk about it.
 
For those of us who have done foam enemas we have had the not so pleasurable experience of putting things up the "out only" hole. Since we're semi-used to that they should invent a medicated tampon type cotton insert that would be placed in your bum. It would deliver high dose medications throughout the day. Have I gone too far?
 
butt-eze said:
For those of us who have done foam enemas we have had the not so pleasurable experience of putting things up the "out only" hole. Since we're semi-used to that they should invent a medicated tampon type cotton insert that would be placed in your bum. It would deliver high dose medications throughout the day. Have I gone too far?

i'd happily go for some of them!

i love my suppositories, best meds ever!
 
butt-eze said:
For those of us who have done foam enemas we have had the not so pleasurable experience of putting things up the "out only" hole. Since we're semi-used to that they should invent a medicated tampon type cotton insert that would be placed in your bum. It would deliver high dose medications throughout the day. Have I gone too far?

No, it's not a bad idea. It's quite a good one. The only issue is toxic shock syndrome which is much more likely to occur when the tampon is put in the rectum. Even then, though, a nice butt tampon that doesn't cause toxic shock could be nice for the diarrhea people around here. I doubt you could leave it in very long but it might be nice to get through an entire movie every once in a while.
 
I'd like something that was a combo of Fentanyl and Prednisone without the side effects of either, including the addiction part of Fentanyl and the slowing of the digestive tract owning to the fact that its an opiod. Immediate pain relief while also attacking the root cause inflammation. Or maybe something like Fentanyl, Pred, Cipro and Flagyl combined. In that effort you're combating pain, inflammation and infection all at the same time with one dose. All those drugs are well tolerated by a majority of us otherwise I'd add in something like Humira/Remicade but there seems to be too many folks who have adverse reactions.
 

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