What problems can scarring in the small and large intestines cause
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:/ im worried becuase i had a lot of bleeding and lots of ulcers and i started remicade. they say remicade can make you heal fast, which i guess it did for me(not completly unfortunatly) and i think i may have lots of scar tissue now...
i always have lots of slushing noises in my gut, espeically when i lay down on my back, and when i lay on my sides even more so. and my stools that are formed now are much thinner than they used to be. i also still get pains that last for about a minute and make me grab my lower belly left side, where most of the inflammation is(thank god no more perianal pain i couldnt even sit, this is what made me admit myself to the hospital twice, lots of ulceration and fistulas in sphincter). i just had a scope done before starting the remicade in the hospital so we are def not going to do another one to look for scar tissue(at least i hope not) but is there anyway i can tell that i have scarring and narrowing? :depressed:
ontop of that i have a swollen lymph node on my back that i had ultrasounded. we have to keep a very close eye on this now also due to the threat of cancer. i dont know if i can take all of this at 19 especially since im sort of a perfectionist and and think way too much all this is literally eating me alive mind and body. thanks for the help
i always have lots of slushing noises in my gut, espeically when i lay down on my back, and when i lay on my sides even more so. and my stools that are formed now are much thinner than they used to be. i also still get pains that last for about a minute and make me grab my lower belly left side, where most of the inflammation is(thank god no more perianal pain i couldnt even sit, this is what made me admit myself to the hospital twice, lots of ulceration and fistulas in sphincter). i just had a scope done before starting the remicade in the hospital so we are def not going to do another one to look for scar tissue(at least i hope not) but is there anyway i can tell that i have scarring and narrowing? :depressed:
ontop of that i have a swollen lymph node on my back that i had ultrasounded. we have to keep a very close eye on this now also due to the threat of cancer. i dont know if i can take all of this at 19 especially since im sort of a perfectionist and and think way too much all this is literally eating me alive mind and body. thanks for the help
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ekay03
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Well I certainly hope you dont get cancer. It sounds like you are on top of things and that is good. That is hard to do at 19. For what it is worth, with proper care, things get better. I was diagnosed at 22. That was 20 years ago. Bob I wish you the best and stay strong 
my gi doc called me since we havent talked in awhile anyway, and i mentioned this to hear. she told me i was correct that healing, and fast healing as the remicade causes can produce scar tissue, but she said i shouldnt worry about it becuase it is usually not seen with younger cases, and more as you get older...
i didnt want to argue with her but does that sound correc to any of you? i have tons of scars on my skin from being a young male, so why wouldnt my large intestine? hopefully the intestine has a better way of healing than the skin though, and thats what im praying for. i wish it was like the liver
i didnt want to argue with her but does that sound correc to any of you? i have tons of scars on my skin from being a young male, so why wouldnt my large intestine? hopefully the intestine has a better way of healing than the skin though, and thats what im praying for. i wish it was like the liver
Well young people scar the same amount that older people do. It really depends on how bad your wounds are that determine the size of the scar ya know? I don't know how bad things were in there or how long the inflammation went on for (inflammation can cause scarring when left untreated) but saying that you're too young to be dealing with serious issues sounds like bumpkiss to me. I was told I was too young to have CD or heart conditions but as you can see I have both and am being treated for both. When you're older your chances of getting cancer and all sorts of health problems increase but that doesn't mean its impossible for younger people to be affected by the same illnesses or the same amount of scarring in their intestines.
Every time they do a scope or an x-ray or anything that shows pictures, ask your doc to explain them to you. Point things out and ask, "what's this?" If they brush you off or don't even show you the images, that's not a doc worth seeing.
Every time they do a scope or an x-ray or anything that shows pictures, ask your doc to explain them to you. Point things out and ask, "what's this?" If they brush you off or don't even show you the images, that's not a doc worth seeing.
i dont even know what to take of this. i really hope i dont have scarring starting already. the wounds were pretty bad, i did look at my colonosopy pics, and actually have them in color. a lot of the damage is in the sigmoid and rectum though which is why i guess there is always tons of blood with bms
Blood would mean an unhealed wound. I should hope you're getting proper treatment for that. I was diagnosed when I was 9 years old and had a bowel resection when I was 17 I believe. Medication wasn't working and there was no way to heal the scar tissue. Yes, I had scarring when I was 17 and probably younger too. Scarring is a possibility. It happens every time a wound heals like on your skin but some scars are bigger or thicker than others depending on the wound. If you don't trust your doctor, you can always try to get a second opinion from another GI. I've seen a few different GI docs myself because some simply don't care about their patients at all or don't know what they are doing/talking about half the time.
i appreciate your replies. since starting the remicade (i had my third infusion last wednesday) i have healed to the point where the blood has stopped, but unfortuantly not fully as i still have extreme urgency and random bouts of pain. also the churrnging noises but i dont know whats causing what. i know inflmmation is causing some but im worried that scar tissue is also causing a lot of this, so im really concerned about scar tissue. i had extremly bad ulcerations fully in the rectum, all the way up the sigmoid and across the trasverse. i also had a fistula form in my sphincter and not sure where else becuase this time around i didnt have a ct scan, just a colonoscopy and my gi said that fistulas are sometimes hard to see on scopes. im also concered becuase i hate all this medicine and there are a lot of side effects i know but im really upset that my hair is thinning so much ever since starting the remicade which is weird ? maybe i just noticed it now becuase ive been on asacol for awhile and i know that is a side effect. it is much thinner on the top of my head
? maybe i just noticed it now becuase ive been on asacol for awhile and i know that is a side effect. it is much thinner on the top of my headI didn't know that was a side effect of Asacol. I took that for over 10 years. I don't know much about Remicade so I have no idea how many infusions are normal before they decide to try something else or if surgery is the best option. So far you say its helping so let's hope it finishes up the job cause bleeding isn't good.
Scar tissue may cause pain because it makes the intestinal walls more narrow which makes it harder for food to pass through. Here's some reading on scar tissue/strictures: http://www.medicinenet.com/inflammatory_bowel_disease_intestinal_problems/page4.htm
From what I read in that link, barium x-rays (upper and lower (lower is less fun than upper)) seem to be a good way to see any scar tissue/strictures. Perhaps you could talk it over with your GI.
Sadly, medication is needed to keep the inflammation under control even after having surgery. Hopefully there will be a cure within our lifetime so we won't have to anymore.
Scar tissue may cause pain because it makes the intestinal walls more narrow which makes it harder for food to pass through. Here's some reading on scar tissue/strictures: http://www.medicinenet.com/inflammatory_bowel_disease_intestinal_problems/page4.htm
From what I read in that link, barium x-rays (upper and lower (lower is less fun than upper)) seem to be a good way to see any scar tissue/strictures. Perhaps you could talk it over with your GI.
Sadly, medication is needed to keep the inflammation under control even after having surgery. Hopefully there will be a cure within our lifetime so we won't have to anymore.
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