- Joined
- Oct 14, 2012
- Messages
- 10
So I just came back from my New GI Surgeon, and he said I need to take a look while I am under but said from my history I have used all medical options at this point. Unless he finds something unexpected to give him hope, I will have a permanent Ostomy, Which I despise with a great passion. He mentioned taking a flap from my left leg to plug the Stubborn Rectal/Vaginal Fistula I have, but they already did that with my right leg and it failed as well. he also said doing that procedure would destroy control to use the bathroom. So I would have the bag gone but i would constantly be using the bathroom with no control in a diaper for the rest of my life. I would be too embarrassed to make friends, try and date someone, be intimate with them, or just going outside in general. My dream job would be to go to Egypt or even Italy and study ruins and mythology which requires to be on your feet and outside. Im only 20, Im in Constant pain which no doctor cause explain except maybe scar tissue which is pretty much incurable. Im always on high doses of Painkillers, which taken for a lot time causes addiction and Im already having with it but I cant stop taking the meds because I wake up in pain almost every single day. (Reason I had to stop taking Percocet and apparently others of discovered this and some doctor refuse to prescribe it.) I'm on a double edge sword. So I did more research and I was talking about the BCIR with the doctor which at the time seemed like a good idea, but now I hear there a lot of people who were where I'm at and not only lost control to use the bathroom but but also had SBS which is potentially fatal, and with my large intestine removed I already have problems absorbing nutrients. I constantly have to drink Gatorade with electrolytes in it or I'm exhausted. Even then I Cant even go a full day of school, back in HS I could muster the strength to go a half day. This current doctor I have says that a blood test my doctors gave me to see of I have UC or Crohn's is inaccurate so I really don't know what disease I have anymore with so many doctors telling me different things. I don't know what to think. And I don't know what I should do at this point....I don't know what to believe or think. I remember with my first bag came off (The one i'm Wearing is my 3rd) I was perfectly fine for a year aside from chronic pain. That's it. So Why am I having so my trouble now. My current surgeon says my fistula is because of SURGERY not because diease, and he certain I have UC. I don't know what to do anymore, and what to decide, please someone give me advice, anything at all because I'm up against a wall at this point.
