It's been a long time since I posted here, as I had been in remission following my surgery. But things have been getting worse and worse for the past several months and right now I just need some support.
In the past two weeks, I've been to the ER twice, urgent care twice and seen my GI doc once. Ive been experiencing excruciating pain that starts in my gut and shoots into my groin and anus area. I'm physically exhausted and can't eat more than a few bites a day. I have 3-5 days of constipation, followed by a day of bloody, loose stool, then back to constipation. My temperature is close to normal, although I feel like I'm running a low grade fever with chills. I'm like 75% sure I have a fistula (or multiple fistulas) forming, but no one believes me.
When Ive gone in, they've ran CT scans, blood tests and x-rays and all that shows up is a slightly elevated WBC count... No strictures or narrowing, no obstruction, no fistulas. So my doctors put me on Prednisone for a minor flare and said there's nothing to be worried about. My GI is tired of hearing from me and keeps saying I have to wait til late April for my colonoscopy before he'll look at any treatment options.
After the weekend, things hadn't gotten better, so I tried calling the doc I saw in urgent care to see if we could run an MRI or ultrasound, but he refused to talk to me on the phone (he's exclusively an Urgent Care doc) and had his receptionist tell me just to go to the ER.
I really don't want to deal with another ER trip, as last time they didn't find anything wrong with me and I was treated as a drug seeker, despite not being on pain medication for 2+ years prior to my ER visit. I'm really struggling right now,and don't know where to turn. I've got my first shift at work tomorrow after missing two weeks and almost losing my job (it's a restaurant with less than 15 employees, so ADA doesn't apply) and I really don't know how much longer I can make it like this. Seeing another GI isn't out of the picture, but it would take far too much time, as I perceive this to be a pretty urgent matter.
I feel stuck and lost and wrongly judged and betrayed by doctors who are supposed to be there to help me. it's wearing on my mental health and I just want some answers or support. And fast.
In the past two weeks, I've been to the ER twice, urgent care twice and seen my GI doc once. Ive been experiencing excruciating pain that starts in my gut and shoots into my groin and anus area. I'm physically exhausted and can't eat more than a few bites a day. I have 3-5 days of constipation, followed by a day of bloody, loose stool, then back to constipation. My temperature is close to normal, although I feel like I'm running a low grade fever with chills. I'm like 75% sure I have a fistula (or multiple fistulas) forming, but no one believes me.
When Ive gone in, they've ran CT scans, blood tests and x-rays and all that shows up is a slightly elevated WBC count... No strictures or narrowing, no obstruction, no fistulas. So my doctors put me on Prednisone for a minor flare and said there's nothing to be worried about. My GI is tired of hearing from me and keeps saying I have to wait til late April for my colonoscopy before he'll look at any treatment options.
After the weekend, things hadn't gotten better, so I tried calling the doc I saw in urgent care to see if we could run an MRI or ultrasound, but he refused to talk to me on the phone (he's exclusively an Urgent Care doc) and had his receptionist tell me just to go to the ER.
I really don't want to deal with another ER trip, as last time they didn't find anything wrong with me and I was treated as a drug seeker, despite not being on pain medication for 2+ years prior to my ER visit. I'm really struggling right now,and don't know where to turn. I've got my first shift at work tomorrow after missing two weeks and almost losing my job (it's a restaurant with less than 15 employees, so ADA doesn't apply) and I really don't know how much longer I can make it like this. Seeing another GI isn't out of the picture, but it would take far too much time, as I perceive this to be a pretty urgent matter.
I feel stuck and lost and wrongly judged and betrayed by doctors who are supposed to be there to help me. it's wearing on my mental health and I just want some answers or support. And fast.
