White House Petition to Add IBD to Social Security Administration's Compassionate Allowance List

[Polaris]

Please sign this petition for all of us having trouble getting approved for Social Security benefits.

More than 1.6 million Americans live everyday with Crohn’s disease, ulcerative colitis, and indeterminate colitis, three chronic, incurable, and debilitating inflammatory bowel diseases (IBD) that cause crippling abdominal pain, persistent diarrhea, rectal bleeding, fever, and weight loss, among other symptoms. IBD often prevents patients from working or attending school. Frequently, they end up hospitalized with life-threatening complications.

Every year, the Social Security Administration holds hearings to add illnesses to its Compassionate Allowance List (CAL). We urge the White House to require the SSA to convene a hearing to add IBD to this list in order to expedite the approval of benefits for patients living with these chronic, incurable, and debilitating digestive diseases.

https://petitions.whitehouse.gov/pe...ulcerative-colitis-its-compassionate/hKmNg13f

Also please repost and/or ask family and friends to sign this important petition. Thank you!

 

[wild_one353]

Seems like a good thing. But I'm not sure i get it, it's already a condition that is recognized. what more would this achieve?

Well it seems maybe it would just make it easier to get disability http://www.ssa.gov/compassionateallowances/cal_faqs.htm#a0=6

 

[Polaris]

Seems like a good thing. But I'm not sure i get it, it's already a condition that is recognized. what more would this achieve?

Well it seems maybe it would just make it easier to get disability http://www.ssa.gov/compassionateallowances/cal_faqs.htm#a0=6

Exactly, it would expedite applications (waiting weeks instead of months), and would increase your chance of being approved on the first try. Right now it can take years, several appeals, hearings, lawyers, and basically ending up with financial ruin before we're approved.

 

[xmdmom]

The compassionate allowance link says:
The Compassionate Allowances (CAL) initiative is a way to expedite the processing of SSDI and SSI disability claims for applicants whose medical conditions are so severe that their conditions obviously meet Social Security's definition of disability.

The conditions on the list are disorders in which everyone or almost everyone with these conditions is disabled. That's not the case for IBD so I don't think there is much of a chance for IBD to be added.

Please don't get me wrong. I am not against people with IBD getting disability.

 

[Polaris]

The compassionate allowance link says:
The Compassionate Allowances (CAL) initiative is a way to expedite the processing of SSDI and SSI disability claims for applicants whose medical conditions are so severe that their conditions obviously meet Social Security's definition of disability.

The conditions on the list are disorders in which everyone or almost everyone with these conditions is disabled. That's not the case for IBD so I don't think there is much of a chance for IBD to be added.

Please don't get me wrong. I am not against people with IBD getting disability.

I don't understand the negativity around this.. I think it would be an amazing thing for us if passed, given the horrible process we now face trying to get benefits. I guess I was wrong to post it, I apologize.

 

[afidz]

You weren't wrong to post it you don't have to apologize for doing so. It is a long shot, but its worth a try. If nothing else it brings IBD to the government's attention. If you don't want to sign the petition, then don't.

 

[Polaris]

You weren't wrong to post it you don't have to apologize for doing so. It is a long shot, but its worth a try. If nothing else it brings IBD to the government's attention. If you don't want to sign the petition, then don't.

Thank you.

 

[afidz]

The petition has increased by almost 600 signatures since I signed it yesterday

 

[Polaris]

I'm so glad, I've been checking it too. I just want to point out that I didn't create this petition, but heard about it and believe in it.

 

[nogutsnoglory]

Signing.

 

[Cross-stitch gal]

I signed it just now. (there's a few at work that may sign it as well)

 

[DougUte]

Signed it. And I would not have known about it if it was not posted here. Thanks stellarjess!

 

[poopaholic]

Signed it, just waiting for email verification. Done

 

[Farmwife]

Signed

 

[Cross-stitch gal]

I copied the info to the website of the petition & have already taken in 10 of them for people at work (and gave them all away) and sent an email to another who's interested as of 1/2/15 and 1/3/15.

Looks like I'll also be taking more of my copies in within the next few days!!!

 

[Polaris]

Thanks everyone

 

[wild_one353]

just a thought, this section of the crohn's forum has low traffic, it could benefit us all to repost this in a higher traffic section in the hope to obtain more signatures.