Worm therapy... Interesting read & exciting research

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Haven't finished the whole article but I've read about this before, one of the scientists advocating this therapy wanted to make a point of how safe it was and so took worms himself.

It would be nice if it were that simple, only time and proper research can tell.
 
I had a GI tell me about this in 2004. I think I'd try it. Makes a certain sense if you listent to theory behind it.
 
I agree that this makes sense based on the theory. This is the best article I have found :) I have more than one auto immune disease and if I wasn't fighting a Crohns flare I would want to do this right away :) I did find a dr in Wenatchee WA. Who is part of the study to get FDA approval. Lets hope they can find something to help us all!
 
I have a friend from highschool who lives in Wenatchee! I have at least one other autoimmune disorder myself, lol, we are prone to them I think.
 
CLynn, I hear ya on the other auto immune diseases! I was cracking up at your comment on lucky to have psoriasis as I am blessed with that too :/ darn it! Also, allergic to myself when stressed. nice, i know... lol The Imuran for my Crohns helps the psoriasis a little :) hoping the worm study gets approved so I can drink the worms and let them trick my immune system with their magic juju :)
 
How long have you had Crohn's, Heidi? I feel the same, I would have tried it back then if it had been an option. At this point, after all the medicines over all the different flares, I'd rather try and keep it settled naturally than take another medicine. I had been on Imuran 16 years ago, it worked fantastic for me. But then, last winter was on Azathioprine, didn't do as well. It did settle my Crohn's right down, but was messing up other blood levels, etc. so I came off on my own.
 
CLynn said:
How long have you had Crohn's, Heidi? I feel the same, I would have tried it back then if it had been an option. At this point, after all the medicines over all the different flares, I'd rather try and keep it settled naturally than take another medicine. I had been on Imuran 16 years ago, it worked fantastic for me. But then, last winter was on Azathioprine, didn't do as well. It did settle my Crohn's right down, but was messing up other blood levels, etc. so I came off on my own.
Click to expand...

I have had Crohns for several years but officially diagnosed three years ago. Went through three GI docs before they finalized the diagnoses. All the startup meds didn't work so I have been on Imuran for the last year & steroids about every three months, lol. Just doubled my meds last week so I am hoping to not flare as much in 2013 :) I hope you are able to keep the flares down too!
 
Was looking online for a new GI yesterday. I really miss my first GI, the one who diagnosed me. He left soon after my resection in 2004, haven't found another one that I gel with like him. Saw one online yesterday, a patient review said the GI has Crohn's also, sounds like the perfect one to go to. Who could understand us more than another Crohn's patient?
 
These worms are microscopic. The same size as the bacteria that already lives inside you. I don't think they can get stuck.
 
That's a good point. My doctor mentioned that as a concern. Unless he meant hundreds getting stuck at once? I don't know.
 
I guess that if it is possible that they could get stuck somehow, then you could just kill them with antibiotics. But I think that them just being there is supposed to be beneficial so if they were stuck then maybe that's a good thing? Instead of the intestines becoming enflamed because it can't deal with whatever it doesn't like, it focuses on the worms instead.

from the article
"People who host helminths can still mount an inflammatory attack on pathogens," Parker says, "but they don't set off self-destructive immune bombs against harmless substances or their own cells. Helminths don't make our immune system lazy or less effective—they make it smarter."
Click to expand...
 
They're probably thinking about tapeworms, which I believe were a more viable option because they are better adapted to living in a human environment and won't die in a short manner of time, but have the ability to grow much larger.
 
Well my GI is very knowledgeable I think he knows exactly what study I was referencing. Anyways, I am considering this and will make a decision after my colonoscopy.
 
I am considering joining this TSO clinical trial, so I emailed the closest center in Austin, TX today. They were quick to reply and told me it is a pain to get enrolled for the trial, many hoops to jump through but the benefit is that everyone gets TSO for the second 6 weeks of the trial vs 50/50 for first 6 weeks. They offer compensation for time and travel of $600.

I think it might be a good idea for me, diagnosed in April but symptoms since 2009. Strongest med I have been on is a 40mg Pred taper that I have almost completed. Thinking I would rather try this than a biologic which is likely the next step per my GI.
 

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