Recent content by Ghostwind

Had my gall bladder out in 2005. They almost refused to remove it because it wasn't "showing gallstones" or giving any readings that something was wrong. When I saw a specialist, he told me that if it looks like duck, sounds like a duck, then it's a bad gall bladder and needed removed. Turns out...

I live in Indiana but sometimes wind up in Columbus for Origins (a gaming convention).

I had my colonoscopy last week and the doctor informed me that I'm in remission. He now thinks the problems I am still having are medicine related although now he is having me do the camera pill test to see if something is up with the small bowel. At least my pain has been reduced to a minor...

My GI mentioned that it's not unusual for Crohn's and acid reflux to go hand in hand.

Good news indeed. :)

Mornings are rough for certain. It takes a few hours for the nausea to go away. I'm usually okay during the afternoons and then things start to crank back up by bedtime.

For me, a flare up equates the pain, diarrhea, nausea and general not feeling good that the medicines fail to offset. Everyone has their own definition because the disease is so individualized.

Congratulations! Glad to hear that at least one member is doing better. :)

I've got a CT enterography scheduled for next week and another colonoscopy next month. Oh joy.

Yes. I've been having a very hard time with it lately. I keep hoping it will get better.

Remicade causes my skin to become really dry to the point where it flakes like a sunburn. I use Lac-Hydrin lotion to counter it.

I'm on 7.5mL/kg every six weeks. I was on eight weeks but then it stopped working. I've been on Remicade for a year now. I"m hoping that it works or else I'm going to be talking to the GI doc on Nov. 3rd about switching to Tysabri.

I suffer from the randomness factor also, but I've noticed that pizza, pasta in tomato sauce, salsa, and corn are definitely my bane.

http://scienceblogs.com/mikethemadbiologist/2008/09/is_crohns_disease_caused_by_a.php New study that talks about a possible source for Crohn's.

He just moved me to six weeks. He wants to see how I respond to it at 6 weeks before moving up the dosage. I see him again on Nov. 3rd so we'll see.