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Hi Gustaff! I'm so glad you found the forum. I am fairly new too and have found it invaluable! I go to a wonderful therapist and she is always on my side but having others who go through very similar experiences is important to me! And it has been helping me to feel more connected and not so...

Hi again!i feel like I'm burning my computer out posting here..hope I'm not burning you all out too!(: I need some advice.. The er doctor didn't seem too impressed that I have wall thickening and inflammation in my terminal ileum with these enlarged lymph nodes in my right groin. I'm going to a...

Again,can you call the docktr who did the scope?it sounds like your symptoms are out of control for you!hoping you feel better

I've done the movie prep and not had any ill effects from it. My poop is clay colored sometimes and I have incredible far in it which I think is malabsorption. Do you use probiotics?this may help as my thinking is that when they do a colonoscopy after that huge prep, it washes all the good...

Wow!did they give you pain medicine for after your surgery I hope?! I can't take tramadol either..didn't work and I ended up having two seizures and fell during one of them fracturing my forehead!cripes!! NSAIDs are out, paracetamol helps a bit for me but I do take hydrocodone. I am also a...

Sorry to double post..meant to add I'm a bit worried because I have been on biologics for like ten years..I'm sure it's inflammation in my gut but still..I'd like to know for sure it's not the rare but dreaded side effect of lymphoma!trying not to worry too much about it!

I'm actually having swollen lymph nodes in my right groin and abdomen that are pretty painful..first time for me other than when I had an infected mosquito bite in africa!crud..I do hate this illness!!

Aww AuntieEm!I hope you have a speedy recovery! I know this illness is really hard sometimes.. I get so frustrated and st this point I don't know what to do or what to take..hear so many different opinions from doctors. At the er last night, they found a duodenal ulcer(crohns related or just...

I so understand your frustration and hear you loud and clear!is there any possibility of going to another er?is there another gi doctor to can consult?because I have been misdiagnosed and not treated appropriately so much..and I'm a nurse so I understand the system well..I just refuse to stop...

Oh crud!now I have stranding seen on a cat scan tonight with a duodenal ulcer. Anyone else have duodenal disease?is this your garden variety ulcer or crohns?i also have thickening in my ileum with enlargEd lymph nodes with stranding also in the ileum..of course, all my blood work is...

Hi Kristina!i am so glad to hear you went for trstmen!that is a sign of great strength in my opinion!slthough you may feel shame or guilt or like you aren't doing your best I hope you can listen to all the people here who give you support and know you ARE enough and doing the very best you...

Thank you so mic for the info cat!(: I have tried all the oral crohns meds, been on remicade until I built antibodies, humira, and now cimzia itch Entocort. Although my numbers look great..never had inflammatory markers, and my recent cat scan showed inflammation in th ileum region, I'm still...

Yes it's for a couple of appointments at the IBD clinic there and with a surgeon to talk about options..I hope there are some options!!i have to believe it gets better than how I feel at th moment. I don't mind taking the bus so much. I was going to drive but te thought of doing that for 5-7...

Hi Sam!as for the pain medicine issue, states vary on what they allow. In Kentucky, we now have to go to a pain specialist which I do. It may be worth it to ask your gi doctor what your states regulations are and what they are comfortable doing.

Hi Paul!so sorry to hear you Have had such a hard time of it. Incidentally, I was also seen by the surgeons on the isle of wight in the spring for a flare up whilst vacationing visiting friends there..small world indeed!(: I have had the same thing said to me by a surgeon who did my last surgery...

That's horrible!it boggles the mind what some doctors will say. No, dr Cohen is excellent. He is co director of that IBD clinic and took so much time with me back in 2000. I'll give you an update after next Thursday! When I was in the hospital in Portugal, the doctor questioned my diagnosis...

My sudden onset happened in London when I was 20 in 1983..felt fine,went to a concert and started having back pain. I awoke the next morning with the sheets soaked and pain way deep in my pelvis..I knew something was really wrong. Was in the hospital for four weeks there and had emergency...

I too am a big chicken!thats why I get propofol and fentanyl during the procedure...she's in and out and I don't even know it until I come to!the prep is a mother though!(: just sayin!

That is soo funny!!the hover round!!would be even funnier has I not received an email recently saying I could qualify!!hey!!im not that stinking old!!i have an older brother I'm going to emulate..he got a Ducati at 57!(:

I hear ya kev! I have had 13! Cat scans this year alone..I feel like can er woman walking!