Search results

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

  1. S

    Undiagnosed Club Support Group

    gculk just as a heads up. I was tired of being shoved around by my GI so I finally went to a dietitian. She informed me that many people are gluten intolerant particularly if they have IBD or IBS. This is different from celiac in that intolerance doesn't cause intestinal damage. Intolerance...
  2. S

    Fistula or Not

    Thanks for your responses. They have been helpful :)
  3. S

    Undiagnosed Club Support Group

    @Star, I am frustrated for you! Like our system I have never figured out how some guy with a stamp and no medical degree can refuse a service. Sounds like you are having a similar situation over there. How is that doctors get paid so much money to care for us yet they are unable to obtain the...
  4. S

    Fistula or Not

    I have been recently diagnosed with Crohn's. For the past 6 months I have noticed air passing through my vagina. The air doesn't always pass through my vagina but sometimes take the normal route. Sometimes the air is in small amounts and sometimes it is literally a "fart" that is loud and...
  5. S

    Undiagnosed Club Support Group

    @Sunshine I just finished watching your things doctor say videos...so very true and very funny! One time I went to a rheumy and he said to me "well something is wrong with you but you don't look like my typical patient, so you should go back to your gi"
  6. S

    Undiagnosed Club Support Group

    @Star I wish that they would really speed things up for you. I can't tell you how many times in the past year I have considered walking into the ER just to get a different opinion and hopefully a diagnosis. Then I had to remind myself that it is a science and just like what I do everyday...
  7. S

    Undiagnosed Club Support Group

    @Cat I am so glad to hear that you are riding your bike and loving it! I rode my bike this morning to work despite being up from 2 to 430 last night with stomach issues. I had already made plans to ride in with a coworker so such is life. My 3 week biking hiatus really did a number on me! I...
  8. S

    Undiagnosed Club Support Group

    @Flower what is the brand of the coconut milk ice cream? I have been making mine from scratch at home...
  9. S

    Undiagnosed Club Support Group

    @Sunshine, I can't wait to watch the video. I am sure it is hilarious! How have you been feeling? I have had an ovarian cyst since October of last year...I just had an u/s to confirm the status and its still there. I have no idea what they plan to do with it and I won't know until I go back to...
  10. S

    Undiagnosed Club Support Group

    @Cat, its 95% there. I am missing my biopsy to confirm, but I have the bloodwork and ct scan that confirms. The second gi I went to specializes in Chron's and he feels I have a classic case. @Sunshine...Keep going girl. Maybe it is true that pred doesn't work for you. See if there is an...
  11. S

    Undiagnosed Club Support Group

    I had a second opinion yesterday! What a breath of fresh air! The gi has diagnosed me with Chron's but hasn't started a course of treatment until he gets all of my latest bloodwork back, just wants to know what my baseline is! I am so glad that I found a doctor who understands and practices...
  12. S

    Undiagnosed Club Support Group

    @Ever, dicyclomine never worked for me! In fact it made me worse, far worse. Talk to your doctor about it, there certainly isn't a reason to take a drug that does't work. @Allie, sorry you have to spend the next few weeks alone! Sounds like your vacation will be wonderful. @Carrie, I really...
  13. S

    Undiagnosed Club Support Group

    @Star...I hope that it all works out! S orry you recieved bad news :( @Sunshine...Yay! Finally you have a diagnosis that means you can start to heal. Just remember it will take time. It has taken years for your body to get to its current state of distress, it could easily take just as long...
  14. S

    Undiagnosed Club Support Group

    @Carrie...I have an extremely high pain tolerance too! I gave brith to my son without any medication because the contractions didn't bother me...lol. And I rarely take medication for headaches, joint pains, etc. I guess it just go to show that we all handle pain differently. The rheumy...
  15. S

    Undiagnosed Club Support Group

    Hi Everyone! Alot has happened since I was gone! Wew, you guys are going through a slew of test. It is just crazy! On the other hand I feel like some of you are getting closer to a real diagnosis, so YAY! Vacation was good. I had a lot of pain but at least I didn't have any major bm...
  16. S

    Undiagnosed Club Support Group

    @BSMom...good luck with the diagnosis! @Sunshine I am keeping my fingers crossed for you. @Cat I am glad to hear that you are feeling better :) @Star I hope all that suffering was for some good data!
  17. S

    Undiagnosed Club Support Group

    @EverHopeful...no need for a kit! All you need is some milk, one thing of already prepared yogurt. Heat the milk over low/medium until it boils. Remove from heat, cover it and let it cool to room temperature. Then whisk in the thing of yogurt (this gives it the live cultures but you can use...
  18. S

    Undiagnosed Club Support Group

    @Cat I make my own yogurt per the SCD diet...It's lactose free...Might be worth a try! I am originally from florida! I would meet you guys if I still lived there :)
  19. S

    Undiagnosed Club Support Group

    So two days I had a BM with lots of blood, like menstrual cycle type stuff. I am not too excited about that. I am 4 days away from being on a plane to Hawaii. I can't get back in with my GI before then :( The pain is getting so much worse too! I considered going to the hospital but really...
  20. S

    Undiagnosed Club Support Group

    @Carrie, it sounds like doc is reconsidering, but still with a track record like that I would attempt a second opinion. @Cat sounds like your new regiment is working out for you. That is great! @Star, glad to hear you are on the mend too!
Back
Top