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Crohn's Disease Forum

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  1. gatheringroses

    Undiagnosed Club Support Group

    lsgs, sorry to hear you're having a rough day. I hope that it doesn't impact your job. How is everyone else doing? I've actually got a question related to sleep. I am on some pretty strong sleeping pills, but I've used them so much that they don't work anymore... I am, however, in A LOT of pain...
  2. gatheringroses

    Undiagnosed Club Support Group

    I recommend that you download the article I posted in my last post, and read it. See if it resonates with you. :) If it does, feel free to message me, and I can connect you with more resources. I am really fascinated (academically) with high intelligence and health, so there are a few resources...
  3. gatheringroses

    Undiagnosed Club Support Group

    Oh, also PM me when you've downloaded the article/if you don't want to read it. I don't know if I am allowed to leave it online indefinitely :)
  4. gatheringroses

    Undiagnosed Club Support Group

    Well, based on my (para-profesional :P) knowledge, chances are, you're still pretty smart (if you tested high young). Intelligence is pretty stable, but I think more after the age of 4. I've attached the article I wanted to send you. If it rings true to you, let me know, and I'll connect you...
  5. gatheringroses

    Suspected IBS, any info please?

    Have you travelled anywhere recently? It could be a parasite (even if you have not travelled). Some doctors don't do comprehensive parasite testing before giving an IBS diagnosis. I read a study recently where many IBS cases (up to 1/4th? Maybe not that high, but a significant number) were...
  6. gatheringroses

    Suspected Crohns

    Good luck! Keep us posted on the results! :)
  7. gatheringroses

    Afraid, fed up, in need of tests with long wait list, and feeling alone

    That's good advice!! I will for sure do that if I feel like I am at a dead end again. :) I don't think I was ever presenting clear "uh-oh" symptoms that would have indicated I was possibly dying (like blood), but if I had, I would have gone in for sure. Great idea! Glad to hear your daughter...
  8. gatheringroses

    Afraid, fed up, in need of tests with long wait list, and feeling alone

    Hi UnXmas, Sorry to hear that you have gastroparesis + additional problems... I don't get really full-feeling, but I do get bloated, and I've lost tons of weight. They made the diagnosis because, when doing the endoscopy, they found my dinner in my tummy still (which I had consumed more than 12...
  9. gatheringroses

    Afraid, fed up, in need of tests with long wait list, and feeling alone

    Thanks for your support, everyone!!! They actually have a WORKING DIAGNOSIS (!!!) for me. Gastroparesis caused by a bacterial or viral infection!!! However, I don't see how this relates to my lower GI pain... Anyways, I see the doctor again in two weeks to go over the results from the...
  10. gatheringroses

    Tonsil stones

    Urgh, I have tonsil stones, and I believe they're related to the fact that mono destroyed my tonsils. I am not sure if they're related to Crohn's, but they're also really common. Here are some things I've done to get rid of them: - Ask the dentist for one of those injector things (irrigators?)...
  11. gatheringroses

    Suspected Crohns

    Hi Kasparky, sorry to hear you're not feeling well.... I am not a doctor/new to all of this, but the positive ANA is interesting to me (it can indicate a lot of things, I think). Do you have any GI pain or symptoms? The weight gain is also interesting. Have you been tested for Celiac? I gained...
  12. gatheringroses

    Undiagnosed Club Support Group

    Hey guys, all of the traits you're describing related to Asperger's are also considered psychologically "normal" traits of many highly intelligent people; a lot of highly intelligent people are misdiagnosed with the DSM because these behaviours mimic symptoms of disorders in people with average...
  13. gatheringroses

    Undiagnosed Club Support Group

    Cat - sorry to hear they are discontinuing the drug that you need... possibly crazy idea if the stronger pill doesn't work.... road trip to Canada/mail order from Canada? I could be wrong (I did a quick google to see if Canada was still going to have it- I read that we sell a generic brand...
  14. gatheringroses

    Afraid, fed up, in need of tests with long wait list, and feeling alone

    Niks, I hope you get some answers for your daughter soon!! It sounds like we have similar symptoms. It's a shame that doctors are so quick to assume it's all in your head; I am really sensitive to this (unless, of course, all biological causes are legitimately ruled out) after 3 years in bed...
  15. gatheringroses

    I wrote about all of you on my blog

    Oh, Cat, glad you're feeling better! I hope that it lasts a long time. :) Or, if you do get sick again, that you can get some answers.
  16. gatheringroses

    I wrote about all of you on my blog

    Thanks for the post. I enjoyed your blog entry. :) I know I've only been around for a short time, but knowing that there IS a community for people experiencing similar struggles has been so helpful. "Though you don’t have a diagnosis, they will be welcoming and offering of support. That is what...
  17. gatheringroses

    Afraid, fed up, in need of tests with long wait list, and feeling alone

    Hi Everyone! Thanks for your support. :) I've been feeling like I am in a bit less pain...I ate a full dinner tonight, including a small salad!!! I have yet to vomit, but I still feel like there is a razor blade in marshmallow stuck inside of the right and/or left side of my gut... I don't...
  18. gatheringroses

    Afraid, fed up, in need of tests with long wait list, and feeling alone

    So, the GI doctor (despite having really good reviews) was pretty rushed, and I don't think the history she took was really comprehensive. She thinks it could be refractory celiac (whatever that is?), or an infectious disease from Ecuador. I have an upper GI scope next week, but I'd really like...
  19. gatheringroses

    Fed Up and Feeling Alone

    I am sorry to hear you're having a rough time. I agree with everyone else when they say to get another doctor. Have you considered Celiac/been tested for it? Even if your test came back negative (blood), have you had a biopsy of your small intestine? Otherwise, you could maybe have a severe...
  20. gatheringroses

    Afraid, fed up, in need of tests with long wait list, and feeling alone

    Hi everyone, I actually have good news!!! The GI had a cancelation, and I am seeing her on Friday! She's one of the best-rated GIs in Vancouver, so I am really hopeful she won't shrug, and go "IBS." Since then, I've also had some new symptoms; the most worrying one was waking up in the night in...
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