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Crohn's Disease Forum

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  1. R

    Surgery scheduled in March, need support

    Hi I had my bag fitted 2 years ago as an emergency but had to have my colon removed back in nov as I had bad perianal fistulas that couldn't be healed. This was part elective in the fact I was sick of trying things that weren't working and we were just putting off the inevitable. I have never...
  2. R

    Surgery date finally

    Good luck you'll be surprised how well your body deals with it. Take each day slowly our bodies are amazing. Take care :)
  3. R

    Surgery date finally

    Did they discuss pain relief with you? Maybe they will discuss before surgery if not it might work different to the uk. I had to have my rectum removed as there had been a lot of disease in that area in 09 and I had to perianal fistulas that they're were unable to fix so needed to removed the...
  4. R

    Surgery date finally

    Hi I had my large bowel and rectum removed 8wks ago and have made great process. I had a mobile epidural which unfortunately didn't take properly so I had a period of a lot of pain but the pain team quickly sorted me out with a pump. I had already had my stoma for 18 months as I had been v ill...
  5. R

    Colon&rectum removed- fertility worries (still)

    Your gp might be able to help you first anyway good luck x
  6. R

    Colon&rectum removed- fertility worries (still)

    I had the exact surgery 8wks ago. I already have a little girl but was warned that I may have problems. 2yrs go I had septacmia which was in my pelvis so they are not sure if that has done an damage. Before my recent surgery my surgeon advised my that this particular operation can affect the...
  7. R

    Scared of Surgery

    I had surgery 8wks ago today and feel great. I already had my bag for 18months before having my colon and rectum removed. I was also cut own my belly I can honestly say that the first couple o f day were tough but I was so amazed how quickly the body heals I was up within 2 days of the op. Lots...
  8. R

    Uk suppliers

    They said they couldn't send the convex ones as I need to see my stoma nurse and get her to authorise me to have convex even though I currently use them and they supply them!! I'll try some of the ones above and see if they're more helpful
  9. R

    Uk suppliers

    Brilliant thanks Cindy :)
  10. R

    Uk suppliers

    Hi all Can you let me know what suppliers you are using, I'm currently using charter health care for a one piece drainable convex and have been quite happy for 18months but have asked them for some other convex samples but they won't send me any only the current one I'm using. Thanks
  11. R

    Surgery planned 24 jan scared !!!!!!

    I had open surgery 3.5 wks ago to remove my large bowel, back passage and rectum and feel pretty good. I tried the mobile epidural but unfortunately it only took full effect on one side so I switched to a pump which was not morphine (something similar to epidural drug) I would def give the...
  12. R

    Panproctocolectomy in 11 days

    Am on 3 different painkillers which seem to be doing the job. Even when I trim the flange it's still to close as I need to use the convec bags so just gonna have to wait I think as it's only one edge I'm not too worried as the wound is healing really well so don't think it will be too long...
  13. R

    Panproctocolectomy in 11 days

    Hi I came home yesterday after 10days in hospital. Things went well but unfortunately the epidural didn't work very well so I had to switch to a pca for a few days. I had alot of weeping from my backside which is taking twice daily dressings and this area is v painful along with my tummy cut but...
  14. R

    My panproctocolectomy

    I'm at university college hospital in London they are very good there. What's a collar? The ones I use are Coloplast from charter healthcare they r non sting I think there is another cream u can get too they can send u some samples. These ones remove all traces of the glue so the skin is...
  15. R

    My panproctocolectomy

    You've done loads today you will sleep well :) when my skin is sore I use the barrier wipes which are good just leave 30secs before sticking ur bag. Which hospital did you have your op at? Hope you have a lovely time with your friends!
  16. R

    My panproctocolectomy

    Lol :)
  17. R

    My panproctocolectomy

    I'm intriguged.....What's the ice cube experiement??
  18. R

    My panproctocolectomy

    I luckily have the coil fitted so don't have to deal with that as well as everything else :)
  19. R

    My panproctocolectomy

    There r times my husband and have laughed so hard at the noise's mine makes :) my little girl is very intrigued and likes to have a good look when I'm changing my bag sometimes she asks where her 'percy' is :)
  20. R

    Incision location/stoma

    Brilliant thanks think it maybe ok as it won't actually be touching the wound just the area where the dressing will go so maybe a bit of cutting will help :)
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