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Crohn's Disease Forum

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  1. O

    What they dont tell you

    barelyalive : I'm sorry to hear you are having such a difficult time! I can't say for sure having a bag will turn it all around, but I can certainly say that it turned it all around for me. My life prior to the bag revolved around using the bathroom or making plans to use the bathroom. I...
  2. O

    What they dont tell you

    Downsides? Stitches in the backside sucked for about the first two weeks for me. Once the stitches were gone I basically forgot that anything had changed back there. Not being able to easily tuck in a dress shirt without the bag being obvious can be a nuisance. I do miss being able to sleep on...
  3. O

    Super gassy since my obstruction

    Hi, I've had some changes myself over the last several months in regards to gas. It started suddenly, but not immediately after an obstruction. I don't know what caused it. I can't ever recall it being this bad. I have since had an ileoscopy and antibiotics. Nothing showed up in the scope, and...
  4. O

    Skin peeling in mouth

    I also had this happen to me years and years ago. I can't say it was as serious as yours, but I do remember small pieces peeling. It likely coincided with the period of time when I was on a wide collection of drugs, so I can't say that I would associate it necessarily with one or any of them...
  5. O

    Hi

    Thanks! I'll keep my fingers crossed.
  6. O

    Hi

    I saw my specialist July 6th, the surgeon July 27th, and have surgery booked for Sept 23. I can't really complain that it's taking long, although they had both said it was urgent enough that I had expected it to happen sometime in August.
  7. O

    Ostomy Reversal - Anyone with experience?

    I'm married with kids, so the ostomy doesn't really play into the dating scene or otherwise. The surgery I'm having this time isn't as a direct result of active Crohns, so I can't help but wonder how long I could gone without if the hernia didn't develop. If I get reconnected, I can only...
  8. O

    Hi

    Thanks for the support! This seems like a very welcoming online community. I've also had the thought of "If it isn't broken...", but then I'm about to have surgery due to the fact that my ostomy has played a part in allowing a hernia to develop where it likely wouldn't have otherwise. This is...
  9. O

    Ostomy Reversal - Anyone with experience?

    Thanks for the advice! I've also posted this in the "Your Story" forum. Should I be deleting this thread?
  10. O

    Hi

    Hi, I'm new to the forum and looking for some advice. I got diagnosed with Crohns in 1998, got a bowel resection and "temporary" colostomy in 2000, and had another surgery or two before a total colectomy, an ileostomy and a rectal stump sometime before 2002. I was doing so-so with the Crohns...
  11. O

    Ostomy Reversal - Anyone with experience?

    Hi, I'm new to the forum and looking for some advice. I got diagnosed with Crohns in 1998, got a bowel resection and "temporary" colostomy in 2000, and had another surgery or two before a total colectomy, an ileostomy and a rectal stump sometime before 2002. I was doing so-so with the Crohns...
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