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Crohn's Disease Forum

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  1. Titanette

    Humira Club Support Group

    I feel for you. I am not sure how I have continued to work. It is basiclly the only thing I do. I finally got the Humira protection plan and now just awaiting the pharmacy/insurance approval. This cannot happen soon enough. After a 100 phone calls, come to find out the doctors office sent the...
  2. Titanette

    Humira Club Support Group

    Finally got insurance, got in to see my GI Doctor, ran all the tests and she called me in a starter pack to get me back on the humira. My pharmacy had it ready for pick up. YAY! Got there and to my surprise I owe $8,000. What the hell? I called me doctor spent hours trying to figure out a plan...
  3. Titanette

    Humira Club Support Group

    They go right through me like everything else and give me the horrible pain. I just do not eat during the work day, when I get home i am eating egg whites and toast. I know those two will not kill me, do not stay with me long, but do not kill me.
  4. Titanette

    Humira Club Support Group

    I was on Humira for over a year and lost my insurance, therefore lost the Humira. I have been able to keep my Crohn's under control up until the last three weeks. It has gotten bad. I just do not eat in order to work. I see my doctor on Tuesday (not soon enough). I am assuming I will go back on...
  5. Titanette

    Uninsured Crohnies Support Group

    I lost my job back in November of last year, have been without insurance since then. Finally have a new job and get insurance after 90 days. I have held my Crohn's in place pretty well over the last 7 months, but have been in such a major flare the last two weeks. Already dropped 13 pounds...
  6. Titanette

    Humira Club Support Group

    I a very sorry to hear that your 10 year old has Crohn's. I lost my insurance and then of course lost the Humira coverage. But, while I was on it I can tell you that shot week was always a dread, but luckily the pain pretty much goes once the shot is over. I too have my daughter pinch my skin...
  7. Titanette

    Humira Club Support Group

    I have to go off the Humira for now due to the staph infection. I am not going to lie, this makes me nervous.
  8. Titanette

    Humira Club Support Group

    I got my results from all of my red bumps and I have a staph infection. My mom was sick and in the hospital for three months, my doctor says with my low immune system I more than likely picked it up there. I have contacted my GI to find out if I continue my shot of Humira and if it is ok to...
  9. Titanette

    Humira Club Support Group

    Of course. So they are calling it an allergy, but not to humira? I hope your get your joint pain gets figured out. I thought Humira was also given for arthritis as well as Crohn's.
  10. Titanette

    Humira Club Support Group

    Has the cream and shampoo helped you? I will find out tomorrow from my doctor what the next step is. I have not had joint pain, but I have read where others have.
  11. Titanette

    Humira Club Support Group

    My doctor is currently clueless. She stuck a needle in one and is going to have it tested. Could be a bacterial infection of some kind due to the immune supresser in Humira, could not be. I will get results in a week, she did not want to put me on medication of any kind with me having Crohn's...
  12. Titanette

    Humira Club Support Group

    Agent99, I have had red bumps since starting the Humira, they started on my back, chest, and shoulders. While my chest has improved, my back remains the same, I am now getting them all over my legs. I have brought it to my GI's attention twice and she said it has nothing to do with Crohn's or...
  13. Titanette

    Humira Club Support Group

    Just breathe! It is not the greatest feeling, but it is also not unbearable. It goes faster than you think it will as well. I also cook with coconut oil now and I will never go back. My biggest issues are red meat, vegetables, and berries (fruit). It does not matter how much I cook down...
  14. Titanette

    Humira Club Support Group

    I am newly diagnosed as well and was scared when my only option was to be on Humira. I have been on it a year and have not gotten sick. I do take vitamins every day, and I drink lots of water. Get your flu shot, also a pneumonia shot. I am a single mom and I feel like I never stop, and even that...
  15. Titanette

    Humira Club Support Group

    Very sorry to hear that Muddajo. How long have you been taking the Humira? I use to get really tired and have headaches for the first three months of starting, it subsided. I have not had nausea so I do not have any suggestions for that. Hopefully this is just a beginning effect for you that...
  16. Titanette

    Humira Club Support Group

    ey218, It is amazing the parts of your life Crohn's puts a strain on. I feel like this is the only community that really gets it. I wish you all the luck and support. When I was in such constant pain and unable to eat for so long I really learned who my friends were (i'm single). Not every one...
  17. Titanette

    Humira Club Support Group

    I have never had alergies, been on Humira a year next week. I have in the last two months fought sinus issues as well as my eyes being real runny. I assumed it was from Humira, now reading this I'm guessing it for sure is. It is the only side effect I have outside of when I first started I did...
  18. Titanette

    Humira Club Support Group

    I too have suffered high blood pressure since going on the Humira. I had never had that problem before. I asked on here without much response so I am not sure, but now that I know it has happened to someone else it makes me think what I originally thought, it has to be related.
  19. Titanette

    Humira Club Support Group

    Thanks for that info smack116. After reading all the info on it I do not feel it is something I have to have to, at least right now. I let my doctor know how I felt and she has now backed up some and said I do not have to do it at this time. I do not think these doctors understand the cost of...
  20. Titanette

    Humira Club Support Group

    I had so many crap doctors in the process of trying to figure out what the heck was wrong with me that I no longer trust any of them. I feel like they just want to pump you up with a bunch of crap. All my blood work came back good minus the inflamation, but it was lower than the blood work just...
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