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I started the self injection version of entyvio too. It’s great , it saves a lot of time for us patients and for doctors and nurses.

That’s a great news. Do you have more details on the exclusion diet?

I would stay away from industrial snacks if that was the kind of snack you mentionned. all the nasty things inside can really impair our guts, and trigger flares

I think overall biologics are a much better option than azathioprin in terms of results, risks and side effects

For adults it may be different regarding the dossge it’s a bit excessive to look for a second opinion for the pred dose. i’d whether ask why pred and not a biologic? If biologic is not an option with your actual doctor, then yes ask for a second opinion

Hello, My advice would be to prepare the appointment with notes on all your intestinal symptoms and extra intestinal symptoms (fever, fatigue, muscular pain, etc…). Then ask questions and take notes of his answers if needed. Sometimes doctors give a lot of information and tips that may be hard...

Yeah it’s still a kind of mistery I think, why crohns is active only in few spots and not in the entire bowel tract. So when you cut out one on these spots, it’s very likely the disease will come black near there if it does.

Regarding surgery, you right there may be recurrence, that’s why surgery is the last option (in case of more osbtruction for example…). Also recurrence is not 100% guaranteed. Not sure there is a favourite biologic. Will depend on your case i guess. Hopefully in the close future dna or other...

Hi Joleen, I hope you’ll feel better soon. The questran should help with BM. Regarding the iron you could also ask your doctor about injection, it’s much quicker to reach high levels. Is your disease under control with medicines now?

Great idea! Not available in europe though?

Hope you’ll feel better after this surgery. You can fight this and you will. Let us know how you are soon.

Dont think those medications, imuran or biologics, will dramatically change your life. It didnt change anything in my case, except having regular check ups (mainly blood exams) which is not that bad at the end... We have to go on living normal lifes even with those medications. Most of the...

Hi older crohner and welcome, I have a similar story, been on aza, humira and entyvio now, but still have symptoms and calpro higher than 1000. Did they decide to switch to therapy because of calpro result only? You’ll be on stelara every 4 wks?

I also had many skins and strange nose conditions (very dry inside leading to infections, i had to put specific hydrating gels continuously) while on Humira. I’m feeling much better with entyvio on that side (no more skin or nose issues).

Reward are greater than risks I think. If you start a biologic treatment like entyvio, you’ll have periodic check up to prevent the risks, so you’ll be under control. That’s not the case if you dont follow any treatment. But you should discuss the options on the table with your GI or another one...

what are your symptoms ? usually surgery election depends on symptoms too. If there are bearable, maybe another treatment as you mentionned like entyvio could make it better

That’s great. Hope you keep improving

The only drug with worst side effect than the disease itself could be steroids in the long term at high dose, otherwise I disagree with you... i had very few side effects with azathioprin and biologics, and they were much much better than the disease uncontrolled

I had very positive experiences with modulen. After my crohn’s onset at 16 I used if for months, as i was to young for steroids, and it helped me to heal. Few years ago I used it again as meal replacement to regain strength and trust in my bowel... The only issue is that taste is not good. My...

For ferritin deficiency, without an iron infusion it takes a while to get back to normal levels, so be patient on this, or ask your gi if you can get an infusion.