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Crohn's Disease Forum

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  1. L

    Hematoma/blood clot in intestine

    My 3 yr old had an upper GI today. She has had throat and gut issues for a while, hoarseness, food refusal, regressing to baby food, stomach pains, constipation. She also has gluten intolerance, so she did a gluten challenge to check for celiac disease. Her dad has crohns so it is a possibility...
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    Dr orlee guttman

    I'm not sure up we were told her genetic test came back positive so not sure whether it's dq2, dq8 or both, I'm going to call her old gastro and find out as I'm curious especially as her uncle has just been diagnosed with celiac disease.
  3. L

    Dr orlee guttman

    We are in canada, thankfully our province does the gene testing along with other blood work. Our eldest has the genes for celiac so we were told the second probably does too.
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    Dr orlee guttman

    We've been told 1 slice of bread a say for 10-12 weeks. We've been down the celiac route with my eldest, some people have been told as much as 4 slices of bread a day! We are getting gluten into her in many ways whilst giving her sister the gluten free alternative, muffins, cinnamon raisin...
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    Dr orlee guttman

    Well we saw doctor guttman and my faith in the medicl profession has been restored. Someone actually listened! They are pretty sure she has EoE, and want to scope for it. Mentioned her gluten intolerance, and they said as the scope is in march stick her back on gluten and they'll scope for...
  6. L

    Asthma (non-IBD)

    Medic alert bracelets are expensive and you have to buy a new one every time medical issues change as they are engraved. We bought our 5 yr ok'd a bracelet from IDonme, you can write on the paper inside,they are waterproof and are inconspicuous unless you recognize the medic alert symbol. Our 5...
  7. L

    New symptoms

    Sounds like an allergic reaction, you don't always have a reaction the first time you have something.
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    Dr orlee guttman

    I know, we had a good laugh at the name!
  9. L

    Dr orlee guttman

    We have met an allergist, she has been tested for all sorts of allergies, her total IgE was really low, but they are still considering the possibility of EoE, or EGE. She is often hoarse which is why the original consideration was EoE. Our eldest actually has always had high IgE counts even...
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    Dr orlee guttman

    We are seeing doctor orlee guttman at bc children's in vancouver canada, but she used to work at toronto sick kids, anyone have any experience with her? We were expecting yo see the doc who deals with EoE, but are being sent to her as she is the IBD docked given her dad has crohns they want to...
  11. L

    Crohns in young females

    Well, I was all set not yo even bother showing up for our gastro appointment next month for DD2. We were so sure we were just going to be dismissed by the docs like we were with our eldest. But we got a letter from the local kids hospital and we are being sent to theIBD and liver specialist! I...
  12. L

    Crohns in young females

    Thankfully number 3 was fast and drug free! I was good to go after an hour! My in laws have been awesome taking one or two of them at a time so it can get stuff done, and usually they are all out for the count by 9. Number 3 sleeps well which is a huge help, and willing takes a bottle which the...
  13. L

    Crohns in young females

    Thanks everyone. I'm very jaded with the gastros here, our eldest had such bad diahreea it peeled the skin off her body wherever it touched and they said it was caused by too much juice, she had never had juice ever! We ended up taking her to timer because she was so worn out she just lay...
  14. L

    Crohns in young females

    Oh believe me I will! Our ped called 3 times to ask what the heck was taking so long. He even trailed zantac as that is what usually happens with a first visit. We have trailed and failed so hopefully the initial consult will be more than she's growing fine it's just reflux and being a toddler...
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    Crohns in young females

    Just got a call from our local children's hospital have GI appointment jan 13th for dd2. Any suggestions what to make sure we ask? Would love to go else where but husband is in hospital waiting on a resection as his crohns is no longer in remission an he had a stricture so his bowel is only 2mm...
  16. L

    Crohns in young females

    Both girls are on a bowel management scheme they go to the bathroom no problem, they just have trouble when they get there. We've tried reintroducing gluten but one bite of bread is enough to make them both ill. Our local kids hospital is done with our eldest. They disagree with taking gluten...
  17. L

    Crohns in young females

    Thanks everyone for your input. DD1 has been on PEG since 18 months for chronic constipation. She has tried a high fibre diet, prunes, additional fluids etc we worked with a child dietician. Nothing worked. PEG keeps things under control. As regards to the stool withholding, we saw none of the...
  18. L

    Crohns in young females

    My husband has crohns and we are starting to get worried our just turned 5 yr old has it, and our nearly 3 yr old. We raised concerns with our GI as our eldest suffered from chronic constipation and weird rashes. We were told there was no way she could ever have crohns as she is female, young...
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