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Before going back to remicade or humira you need to have antibodies test run. Since you have been on them previously the risk is higher that your body has developed antibodies making the drug ineffective and causing a reaction.

I'm one of the parents tagged by Maya. My kiddo was dxed at 15 now 20. He hasn't been in remission since dx. Up until a month ago he had spent over 3+ years asymptomatic. Still, the disease was raging on and he eventually required surgery. He's 2+ years out from small bowel resection(location...

Also since your mother has AS and you both are hla b27 positive couple with the back pain and joint pain I would see a rheumatologist. CD has joint extra intestinal manifestations but also some forms of SpA or AS have GI inflammation that isn't IBD. I'm going to tag maya142 as she can direct...

I don't think she is talking so much about official stages and maybe not even progressive stages. Just that sometimes POTs has phases or flares and with those can come other issues (sometimes without) like gut issues, allergy stuff etc. At least, I read that some people just flare that way...

Have you investigated the lower back pain with a rheumatologist? I'm going to tag maya142. There are some joint conditions that occur with IBD. But there are also some joint diseases that have gut inflammation as a component. Maya142 has more knowledge about this. Hopefully she'll be by.

So sorry you are struggling. Have you spoken to your GI about the issues you are still having? How long have you been on remicade? What is your dose? What is your infusion schedule? Have you had tests to check levels of remicade in your system or to make sure body hasn't built antibodies? What...

Trumps doing an interview on 60 Minutes to night. I think he has stated there or in another interview that there wouldn't be lag between the repeal and the replace. Meaning you wouldn't be left uninsured if you had a market place plan. But even after saying all that, I have to imagine it would...

My little penguin may can give you some insight. I do know it's usually paid for through the durable medical equipment clause but I think the intake has to be a certain percentage?

I really think it has something to do with his lower back, and he says it's really low low, so maybe SI joints. He also thinks the legs are related to the back but he hasn't said exactly why. Maya142, I'm going to ask the GI about voltran gel and get the okay so maybe add it to the arsenal when...

I'm also hoping and decidedly forcefully advocating for an MRI for C at the rheumatologist of his lower back/SI joints. We have e yet to find a rheumatologist that does them at least annually so C has never had an MRI to see what's going on. Always with last two rheumatologist it's been xrays...

I can let the GI nurse know. I thought about talking to the GP about it when C goes for a flu shot (my lord the nagging that has taken!) but my insurance doesn't require referrals so I could look for a neurologist.

His B12 was well into the normal range last we checked but probably needs to be done again. His HGB was normal as well. Not even the low normal it used to stay at. Yes, we're going to mention it to the GI when we go. Unfortunately C says that this has been ongoing but maybe not to the present...

Yes, I wonder if it's neuropathy. When I ask if it's tingling he says yes but not really. He said it feels as if he has RLS all day long.. I asked him does it feel as if your legs are "waking up" from going to sleep like numbness and tingling and he says no but he can't explain it either. We're...

Just an update: Maybe 3 weeks ago C had a day of vomiting. He felt nauseated all day and severely fatigued. The fatigue has been continuous since then and the vomiting occurs maybe 1-3 days in 7. GI requested lab work and stool studies. It had been a calamity getting it done between C and...

It can depend on whether the GI you see follows the top down approach or bottom up approach to treatment. Many GIs now follow the top down (starting with the big guns- biologics) because studies have shown that it can lessen the risk of surgery down the road. Also, if the patient has stricturing...

It could be if you've had chronic inflammation in that area that there is narrowing or stricturing due to inflammation or scar tissue. My son's inflammation was located in the TI, specifically at the ileocecal valve. His first two colonoscopit's the GI could get through the IC valve but a layer...

There is a risk of skin cancer with mtx. I know for my son the GI has repeatedly told him to make sure he wore sun screen when oit in the sun. He also sees the dermatologist yearly for a skin check. I've seen other threads on the forum of members posting about BCC and mtx and their experience...

Here's an article on the extra intestinal manifestations of CD, it includes some involved with joints https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3127025/

Yeah I know, I dread when my son, with CD, ages out and has to come off our plan. I think it's going to be a bit of sticker shock for him as it isn't something that is in the forefront of his mind since he doesn't pay it out.

We have never used Imuran with my son, he is 20 dxed at 15. He had been on mtx since about 6 months after his diagnosis. At diagnosis, he was put on remicade then about 6 mos later mtx was added. He's been on both oral mtx and mtx injections. He's had no side effects with either but some people...