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With mild ileal Crohn’s disease, EEN has never worked for me unfortunately. Compliance was not an issue as I really liked it, but most formulas gave me horrible diarrhea and episcleritis as well as increasing calpro. The most I could do was 2.5 weeks tho - I felt its too risky to continue. I...

It's worth a shot. For me the only type of EEN that worked was Compleat Chicken Garden Blend. Recently I am replicating it at home almost all the time, essentially its puree-ing mango, butternut squash, chicken meat, olive oil, and some spices and salt, with pretty good results. I have my...

Your MRE results are consistent with what I had - I am diagnosed with mild Crohn's of my terminal ileum. But those findings are quite non-specific. Some questions: 1. What was / are your calpro results looking like? 2. Did they do ileocolonoscopy with biopsy? You mention colonoscopy initially...

Btw did they launch a new study? I only found this one that got discontinued due to lack of participants which is not very surprising as they seemed to only want to include people who go through ileal resection surgery and then only take their drug to prevent recurrency...

I wouldn't be so pessimistic about that. We are really not that far off from being able to do curative treatments when a specific issue in a gene sequence is identified. Look at the recent huge success of the new gene editing therapies for sickle cell disease, previously essentially deemed...

I had it 3 years ago during ileocolonoscopy. This was 1.5 years before I got diagnosed with Crohns. The doc just said its fairly common in young adults and did not consider it a significant finding at all, the doc doing the exam actually didnt even biopsy it. I do have many food sensitivities...

Yea sugary / acidic drinks, anything with bubbles, or alcohol can also trigger me quite easily. Smart idea to cut back on any potential triggers especially if they serve no nutritional value. Fortunately I do not have so bad symptoms as you do now, but I think I will always prefer continuing to...

Yea normal blood inflammation markers don't mean that much, I also never had them elevated. I was told a low CRP phenotype typically, but not always, indicates a milder disease course. Seems to be true in my case. I do get stool calpro consistently elevated when in a flare tho. MRE is a really...

Would be great to see exactly what your biopsy and colonoscopy reports stated. But I can say that I was also diagnosed with Crohn's based on mild terminal ileitis and 2 small apthous ulcers, coz biopsy showed signs of both chronic and active inflammation.

There are many other options other than infliximab, and even that one has many biosimilars that should be cheaper and have the same efficacy. Depending on your country there should be options to get support for at least some type of biologics or their respective biosimilars. If that is totally...

Some symptoms you mention like brain fog, migraines, could be caused by active Crohn's but also could be due to malnutrition as your intestines may not absorb nutrients in an inflamed state as you would like. Testing for some basic markers such as iron, B12, vitamin D, folic acid, albumin along...

If this happened to me, I would try to switch to pure chicken broth or exclusive enteral nutrition for a few days, to see if it calms things down on the short term while waiting for the medical investigation to progress and your treatment plan to be updated. Perhaps they will put you also on an...

Really happy to hear it worked for you and that now you are in remission, congratulations!!! Why would the doctor tell you that your life expectancy is "small" due to Crohn's? That is highly unusual, to say the least. What other biologics they tried before drawing this very severe conclusion...

There is only one reasonable option left - dressing up as a cow and switching to an Exclusive Grass Nutrition diet. Last time I tried, they didn't let me out of the hospital for a year, was sedated and fed every single day. My slogan: no time for Crohn's when you can be a moose! Never felt so...

It could have been CTE, when I had a normal abdominal CT they only did IV contrast (borderline useless to assess Crohns status but they didnt suspect it back then). The only time I had to drink it was when doing MRE (which is like CTE but with MRI). Probably the results paper should have some...

Agree with essentially everything that was said. This high calpro, serum markers, along with weight loss as well as low iron + albumin levels in a kid, are big red flags for inflammation and potential bowel damage. If his calpro was never lower than 275 I dont really understand why dosage was...

Media coverage: https://www.bbc.com/news/articles/c1wwdd6v2wjo https://www.ft.com/content/06a8ea18-2c92-4606-9b95-e69f614c5c10 Seems like this is the actual study behind it: https://www.nature.com/articles/s41586-024-07501-1 What makes it quite strange, is the authors do not seem to...

What treatment did you receive for your diverticulitis diagnosis and how did it go? BTW I would find it really really hard to believe that multiple GI-s would confuse diverticula with Crohn's, they look totally different on the scope.

1. did they look at your terminal ileum in your colonoscopy? for me colonoscopy was normal in colon but not in the terminal ileum, and biopsies there indicated mild chronic active inflammation 2. CT scan with contrast hasn't really shown much for me although I am mild Crohn's they say - MRE did...

Yes, intuitively I think that one makes a lot of sense and we do see that clearly in anti-tnf-s, you build resistance to a specific antibody and hence its part of clinical practice to offer another from the same class if it worked - what I am really curious about tho is if someone is a primary...