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Crohn's Disease Forum

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  1. J

    Short term immune response just before infliximab infusion starts

    Hi, at my last two infliximab infusions (I have had more than 30) during prep (when they insert the canula, and take some bloods) but before they start infusing the drug, I have had noticeable scratchy throat, a wee bit of difficulty in breathing, fast heart rate and feeling faint. It passes...
  2. J

    Scarring on Colon

    Hi, was diagnosed with UC two years ago and as was quite ill went straight onto infliximab. At my recent colonoscopy was told had scars on the hepatic and splenic regions of colon/large bowel. (This probably explains stomach pains I get). Is scarring quite common in UC? Does it progress onto...
  3. J

    Has anyone made a claim against the NHS?

    You would need good evidence that they were negligent in misdiagnosing the form of IBD you have. Some IBD sufferers have a mixture of both (about 5%) and you may fall into this camp.
  4. J

    How quickly develop resistance to Infliximab and what happened next ?

    Thanks for reply. Hope Humira works for me as it has for you. They are going to wait for a bit before moving me across. Give me a higher dose more regularly.
  5. J

    How quickly develop resistance to Infliximab and what happened next ?

    Hi, just found out that developing antibodies to Infliximab about 10 months after starting this treatment. Like to know how long others had before starting to develop resistance. Also, after developing resistance how soon afterwards started to get flares and symptoms recurring. Thanks in...
  6. J

    Anaemia - what's severe?

    Very good point. Also, if on proton pump inhibitors that affects iron absorption.
  7. J

    Anaemia - what's severe?

    I got two infusions of iron with a Hb value of 9.3 (UK). With Crohn's issue is not just that anaemic but how to fix it. If gut inflamed you cannot absorb iron well so IV infusion best option ?
  8. J

    Diagnosed at age 50 & over Support Group

    Thanks for reply. Maybe have been too complacent. All good so far. Have a good New Year.
  9. J

    Diagnosed at age 50 & over Support Group

    Diagnosed with indeterminate IBD (mixture of Crohn’s and UC) at 54 years old. Had an endoscopy as part of bowel screening programme in Scotland and was diagnosed with UC. Had had bad diarrhoea, was losing weight and anaemic. Initial diagnosis was mild to moderate UC following and given...
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