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Sorry, wish I could advise you. Entyvio worked 1/2 the time until it didn't. Hope it all works out and someone can give you some insite, that's the best thing about this site.

I have always loved poems. I remember my grandmother reading them and throughout my life writing them to get through difficult times in my life. You're making me want to hunt for my poem book. Love it, great distraction.

Ya trying to keep moving it's hard but can't freeze up my legs. I forgot how fun Meat Loaf is and how crazy he would look when preforming. His songs told such stories. Fun. https://www.youtube.com/watch?v=_wO8toxinoc

Back down to 65 after our glorious 70 something yesterday. It felt great sitting in my wheelchair with the sun on my face waiting for my ride. The one positive of yesterday....see I can be positive. :-)

I changed from bacon to turkey bacon and love it now. The only one that kills me is Honey Baked Ham at Christmas that my sister got....smelled soooo good. But knew I couldn't do it so went to her horses instead when that was out to distract me. Most the time it sounds gross to me thinking...

Haven't watched that in a long time, will look up. I love dumb humor....what about Bob was a classic. Since I got a fish and when I went sailing with the wounded warrior I've been thinking about that one. “An arrow can only be shot by pulling it backward. So when life is dragging you back...

Ya drug induced lupus from the vedolizumab just like what I got a long time ago from Remicade. It's so much pain in my knees I can barely walk on two arm crutches. It's so frustrating because there isn't nothing much they can do besides pain management and waiting for the medication to leave...

Ya I got the itchy scalp and bad pitting nails too. Got on a medical shampoo that has helped.

Going to hospital soon, hopefully they can do something.

https://www.youtube.com/watch?v=ZaI2IlHwmgQ Ok sorry love the Black Eyed Peas...turn it up...turn it up....great wake up song....ok awake most of the night but still. :-)

https://www.youtube.com/watch?v=uuwfgXD8qV8 Ya love it!

I freakin love this video....Pink is amazing....it reminds me of sparing in Karate in a way...I miss it....."you got to get up and try try try" need those words today. https://www.youtube.com/watch?v=yTCDVfMz15M

Life is short. You have to be able to laugh at our pain or we never move on. Jeff Ross Something I try to continue to do....getting harder lately. Time for a funny movie.

Please pray for my pain in my legs, they are pretty sure it's drug induced lupus from the Vedolizumab. I go to doctor tomorrow for more tests.

Yep I had to give up pork about 15 years ago. I had really bad swelling from it could hardly move my fingers I remember. Egg plant. cauliflower and kiwi is the only things I'm allergic to so far. Swiss cheese is ok for me, softer ones don't work all well in my system, the wonderful slinky...

Man I love that song....it's been awhile in my country phase...into it again....pain so bad in my knees especially I want to cut my left leg off....have any of you had drug induced lupus? Ok can't have my mom or sister clean up that mess so I'll go back to distracting my brain and trying not to...

It is sunny again yea 73 degrees wow!! So nice to see blue sky again.

Loved that old rap song....all I need is the air that I breathe....yep some days....that's what is so good about music....scream with frustration to Kiss....chill with Sade....Kick it up with Country....I have a huge genre....all important for the feelings of the hour...

Well it's dark....and cold...zzzzz....yep cannot sleep again from pain....hoping to have a good weather day to drive to Portland for my grand daughters birthday....pray I get at least 4 hours sleep altogether...the military trained me to live with that amount anyway....can someone tell me how to...

https://www.youtube.com/watch?v=1ZYbU82GVz4 Trying to see if this will get me to sleep it's beautiful photography.