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Crohn's Disease Forum

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  1. K

    Frustrated!

    Hi Annette, I have been seeing Dr Potts for over 12 years. I have tried Imuran, Methotrexate, Infliximab, Adulimumab and finally Thalidomide. All without success. Banned from Steroids now as they cause other major problems. Can't have more surgery so this would be my last hope at the moment...
  2. K

    Frustrated!

    Update I have not had the time due to problems with my son who is autistic and then general Crohn's problems. Really annoyed. Got results from all my tests and I have widespread ulceration throughout my small bowel. My consultant confirmed this on 25th March 2011 and said he would refer me to...
  3. K

    Working from home, any ideas?

    I can totally relate to all of this. I'm currently finishing my degree online at home but it's hard going. I really want to be able to work but haven't been able to work for anything more than a few months without getting really sick. My degree is in Scottish Culture Studies but I have done some...
  4. K

    My stem cell transplant

    Just wondering how Adrian is getting on? I'm being referred to Edinburgh to have this treatment and I'm interested to know how it's going for him. Kers. :)
  5. K

    Hi everyone!

    Hi Echoes, I'm also in the Highlands. I've not been on the forum for a while due to the crohn's playing up major style. I got word today that they are referring me eventually. Just wondering where you are as far as referral is concerned? There is no other options left for me and apparently...
  6. K

    Frustrated!

    Hi thanks for that. Feeling a bit better today. Just resting and see what the bloods are like on Monday. Not been sick today which is good. Dr Potts is great but I think the delay now is the fact he doesn't know what to do with me. I can't take prednisolone any more as I'm having severe...
  7. K

    Frustrated!

    It just seems you have to be at deaths door to get anywhere. I see Dr Potts but I have seen the other two. Don't think much of the registrar tbh. IBD Nurse is lovely though but he can only do so much. Well if I get any worse I will go straight to Casualty or wait till Monday and get my GP to...
  8. K

    Frustrated!

    Unfortunately I can't as I don't have private health care and he is the best there is as I have already dealt with other G.I. Docs. He is the best and I do trust him but the pressures of Funding cuts and clinic hours being cut I understand that he might be busy and I'm not the only person on his...
  9. K

    Frustrated!

    Went to my practice nurse to get bloods taken this morning and she could see I'm in agony and looking a lot sicker than the last time I was in. She knows I'm still waiting for the hospital to tell me what's happening so she decided enough was enough and called my consultants secretary. I'm...
  10. K

    Hi New here -My Story

    Thanks :)
  11. K

    Hi New here -My Story

    Hi folks, My name is Kerrie. I have been diagnosed with Crohns since Dec 1999 with 2 years of problems prior to that. Crohn's was initially in my duodenum which was by pass in a Gastroenterostomy in Nov 2000, where they attached my stomach straight to my Jejunum. I had 2 good years of...
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