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  1. Jennifer

    MAP drug trial, does anyone know anything about it?

    HannahR did you or will you (if you haven't started yet) be tested for MAP prior to treatment? I'm sorry you can't participate in the trial JennyT but I'm glad you had testing done to catch that and hope your surgery goes well. :hug:
  2. Jennifer

    Research into Crohn's sufferers and their diet

    This member has been approved by an Administrator to post this message.
  3. Jennifer

    MAP drug trial, does anyone know anything about it?

    You may want to check out this thread: http://www.crohnsforum.com/showthread.php?t=66696
  4. Jennifer

    Urgency to irinate incontinvene

    Hello Ozzyp and welcome to the forum! :) I'm very sorry to hear that you're not feeling well. I hope the colonoscopy gives you some answers. Let us know what the results say when you get them. Did they mention seeing anything during your colonoscopy? Usually we wait for the biopsy results but...
  5. Jennifer

    Stories that Showcase the Difference in Disease Course and Treatment Between Siblings - Please Share Yours

    Not at all Dusty! :) I'll edit the thread title in case anyone else is willing to share a similar story.
  6. Jennifer

    Hi...just wondering if anyone has Celiac disease in addition to Crohn's?

    Paging valleysangel92 as well. :) One thing I've learned from her is to be careful even when products claim to be gluten free.
  7. Jennifer

    Stories that Showcase the Difference in Disease Course and Treatment Between Siblings - Please Share Yours

    My sister and I were diagnosed the same year in 1991. She's 17 months older than me. I was 9 and she was 11. I'll tag her to this thread as well in case she wants to weigh in. tsstarry :) We were seeing the same GI and I believe for a while we were on the same medications. I started out with...
  8. Jennifer

    Disability and Crohn's

    We have many members who are on disability from Crohn's disease, myself included. Check out the support group here: http://www.crohnsforum.com/showthread.php?t=51690
  9. Jennifer

    My painful Story

    I'm sorry to hear that you're in so much pain nativesith. :( It sounds like you may have a stricture which could be from active inflammation or scarring or both. If the Prednisone helped a little at first then it's likely both. At your next doctor appointment is it possible to have them run some...
  10. Jennifer

    Help! Prednisone

    Once you're well again I'm sure you'll start catching up in height. :) Aside from avoiding salty foods like you mentioned the only other things that I'm aware of are the dose and how long you take it. With 40mg for only 4 weeks followed by a fairly quick taper you may not experience much water...
  11. Jennifer

    Help! Prednisone

    Where is your disease located? If it's in the ileum or ascending colon then you could ask your GI if you can take Entocort instead as it has fewer side effects along with a lot less water retention. I've never had moon face while on it. I'm sorry you have to go back on steroids and hope that...
  12. Jennifer

    Dear IBD-ers, You Have Rights Here's my story and why I exercise them regularly

    Thanks for the tag. :) Everyone please remember that this forum is meant for support first and foremost. While debate is allowed it's best to keep it respectful and on topic. If it's getting heated then it's best to walk away and if it's off topic then making a new thread or having discussions...
  13. Jennifer

    Mouth ulcers and Tonsillitis

    Sounds similar to strep throat. I used to get it and tonsillitis often before I finally had my tonsils removed. I even tested positive for type C strep (supposedly gotten from farm animals, I was in art school not on a farm) when most places really only check if you have the more common forms...
  14. Jennifer

    Dumb Doctors

    It's nice to have a GI with a sense of humor. ;) 6MP can take up to 6 months to get into a therapeutic range so maybe you were taken off the steroid a little soon. Depending on your disease location I wonder if you could take Entocort (fewer side effects than Prednisone, some of us didn't have...
  15. Jennifer

    Stoma Help

    I'm just now catching up on this thread and I'm having a hard time believing that all of these people at that hospital think that her stoma looks fine and that she's doing this to herself. HOW???? That stoma looks like it needs to be redone and that may be causing the blood loss. I haven't had...
  16. Jennifer

    Picking your nose - good bacteria?

    When I was a kid I tried it one time because my oldest sister ate them all the time and said they were salty. Sure they were but I thought it was pretty gross. Might be a texture thing, I dunno but I couldn't get myself to eat another one after that. I did get in trouble for wiping them on the...
  17. Jennifer

    Rib pain?

    Cherries and tart cherry juice help to reduce joint inflammation. "In a 2013 article inOsteoarthritis and Cartilage, researchers at the Philadelphia VA Medical Center reported that patients who consumed two 8-ounce bottles of tart cherry juice daily for 6 weeks experienced a significant...
  18. Jennifer

    Last one wins PG version

  19. Jennifer

    Having Extensive Surgery

    Good luck with your surgery marby. I hope everything goes well and that you heal quickly. Hope you're able to sort out work as well but I wonder if maybe applying for permanent disability with SSI and SSDI now (since it takes a long time to get approved) might be beneficial just in case you...
  20. Jennifer

    Mesa

    I did get a proper notification. Very good
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