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I have been tapering down since December went from 6 tablets a day then to 5 then 4 3 then down to 2 and stayed on 2 for about a month then went to 1 and then finished so I have slowly come off them I was told to come off them by my surgeon because of my up and coming surgery but as they have...

Hey all I have come off prednisolene 7 days ago I felt ok at first but yesterday and today have felt awful! blinding headache, a rash all over my face and chest itchy sore eyes and pain...really bad pain in my stomach along with the loudest gurgling noises ever!! i have a stricture and am...

Great to hear these positive stories xx

thanks so much for all your advice yep my way of dealing with needles is to just look away! I am having blood tests all the time so am use to them and I recently had an MRI scan were I had to have an IV put in my hand so at least I have had that done before. I have only been on steroids since...

I have been on steroids a while too:shifty-t: how long had u been on them, for them to have weakened your tissue? sorry to have asked so many questions on your post Kate hopefully they are things you are wondering about to :) xx

Thankyou 4 all the advice I seen an anaesthetist a couple of days ago he said as I was having my resection lapriscopic I would not need the epidural I'll be treated with some morphine and pain killers I am releived I just don't like the thought of it being left in my back and I am terrible with...

Hi Kate just wanted to say good look Im 25 and have my 1st resection coming up in the next few weeks as well I am so scared! I 2 have the same concerns about a bag also I am really worried about the possibility of an epidural 4 pain relief afterwards! from experience does anyone have any advice...

thanks 4 the advice Archie that's cheered me up anyway :) I'm terrified of having surgery but really the sooner it's done the better just hope I am as well as u afterwards xxx

Just a quick and silly question :soledance: How long after a resection do u think It'd be before u cud go out and drink? I'm due to have my 1st surgery in march but usually go to aintree 4 the horse racing every year this year it's on April 13th if I have my op fairly early in march do u think...

Thankyou for the advice! The narrowing is caused because of inflammation I think I have been on pred since november and while it is working wonders my consultant keeps telling me I can't stay on it and every time I get to the point were I have to stop it I flare and am really ill! I have...

surgery and meds concerns!! hi everyone Were do I start I have so many questions! after being in constant severe pain with vomiting almost every other night and weight loss because of this I was finally given a CT scan and x ray and told they could see a narrowing in my small intestine! since...

Ps: no I haven't had a TPMT test done what is this? and thanks for advice on having a bag after surgery also I am glad to know if it does finally come to that point there is a chance it may not be necessary xxx

Hi dusty thanks for your reply. I have been reading about your children since I joined the forum I'm so glad they are both doing well now! I live in Liverpool in the uk not sure what the rule about the likes of remicade and humira is like here. I was started on 2 azathioprine tablets a day...

i havent tried or been told about remicade or humira this is interesting as I was told at my latest consultation that I had 2 options try the azathioprine again if that failed there was nothing else they could do but surgery! funny you say that both these drugs are so expensive it's as though...

So far I am taking pentassa and now am back on the azathioprine I am also taking Prednisoloene still but coming down gradually each week down to 4 a day this week. My crohns is in my small intestine ileitis they said when I was diagnosed through a CT scan and a colonoscopy. My large intestine...

hi all Just wanted 2 ask a few questions hope you don't mind. At my last consultation I was told my crohns was very active and doesn't seem to be settling with meds. the only thing to have settled me so far is prednisolene but at 6 a day they say I can't stay on these! I am now trying...

I wish you all the luck in the world I really do my mum is my rock my best friend and the person who is always there 4 me through this illness. I am trying to support my mum too while her brother, my uncle is battling stage 2 cancer he is in bristol while we live in liverpool so the travelling...

Thanks amy ur reply means a lot. I am already taking pentassa and was tried on azathioprine 4 a little while but felt worse than ive ever felt once i started on that and the flare ups were getting worse plus i come out in a horrible rash all over my tummy so i have stopped them now. I have a...

feeling very very low Hi everyone Hope you dont mind me having a vent on here. I dont know who I can talk to nobody understands and im starting 2 feel like i cant cope! After constant flare ups keeping nothing down night after night of agony being doubled over in pain no sleep not being able...

oh god i have never even heard of the sigmoidoscopy but doesnt sound good i will take ur advice an try 2 avoid that at all costs ha ha thanks xx