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Crohn's Disease Forum

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  1. valleysangel92

    Starting liquid diet -what to have?

    Hello, In my experience a liquid diet for that amount of time is usually an elemental diet, which uses specially formulated supplement drinks. These drinks contain all of the nutrients we need and are full of protein for healing as well as having a high calorie contents to meet the needs for...
  2. valleysangel92

    Help for husband/patient who had J pouch in 1989 serious problems now.

    Hello, welcome to the forum. I don't have any personal experience of your husbands specific situation, but I can sympathise with regards to pain and being worried about medications. I think one of the most important things is trying to open up an honest discussion between you, your husband...
  3. valleysangel92

    Christians!!!

    We do already have a prayer and spiritual support group which is open to all faiths, have you tried that? I can see what you're saying but I can also see where cross-stitch is coming from, it could be a sensitive subject for some and it may feel to some as though we're singling out a particular...
  4. valleysangel92

    Should I go tho the ER or wait until the morning?

    Hey, sorry I'm late coming in on this Do you still have the appointment on wed/thurs to go see your doctor? If so, I would suggest that you make a diary over the next few days of all of your symptoms and what you're eating/drinking. Score any pain from 1-10, keep a record of bowel movements...
  5. valleysangel92

    Putting a Name to my Illness (new and undiagnosed member)

    Hello and welcome to the forum, I'm really sorry to hear of everything you're going through but I'm glad you've found us, you'll find lots of people here who are going through similar and you'll get lots of support and advice. Unfortunately its pretty common for people with IBD to first be...
  6. valleysangel92

    Hello all

    Thankyou for the support all :) Layla - Entyvio is gut selective, it targets specific parts of the immune system found in the gut, so it doesn't act on the joints unfortunately. Inflectra did wonders for my joints and did help my Crohns too, but unfortunately I had a severe allergic reaction...
  7. valleysangel92

    Hello all

    Hey guys, So I thought it was about time for an update on how things are going with me. As some of you will know, I have had quite a hard time finding a treatment that works for me which I don't react to in some weird way. I have tried Pentasa, Prednisolone, Budesonide, Azathioprine...
  8. valleysangel92

    How can I make it? No insurance either

    Hello, welcome to the forum. I am lucky enough to live in the UK so I don't have any experience with the insurance problems you're facing and therefore I unfortunately can't offer any advice there, but I wanted to let you know someone is listening. There are many amazing people on this forum...
  9. valleysangel92

    ER Checklist

    This is a great thread, There are a couple of things I would add for a UK hospital - I think the blanket may be a good idea here, as in the past I've been forced to spend nights hooked up to an IV in the waiting area as there hasn't been a trolly or bed available, and they haven't always...
  10. valleysangel92

    **

    I'm so glad you finally managed to get seen by a specialist. I don't think the codeine should interfere with the test results as long as you dont take them for a few days before doing the colonoscopy prep. I once accidentally took two 30mg cocodamol tablets the day before a scope and it still...
  11. valleysangel92

    Gluten free diet for crohns

    Yep that's totally fine
  12. valleysangel92

    Gluten free diet for crohns

    Glad I could help. I'm not trying to put you off, but have seen the extremes of a diet change like this for myself and know how taxing it can be on you mentally and physically. There's a lot they didn't tell me when I went gluten free that I wish they had, like the issues with the sugar in the...
  13. valleysangel92

    Gluten free diet for crohns

    To be honest in the UK the general advice is that a gluten free diet can do more harm than good unless you medically need it. Most gluten containing foods have a higher sugar content to make up for the lack of taste, and many are high in fibre. By cutting out large amounts of foods, you cut out...
  14. valleysangel92

    Gluten free diet for crohns

    I've got coeliac disease, I was diagnosed with it when I was 14, so I've been on a gluten free diet ever since. My first noticeable crohns symptoms started when I was 15.. So going gluten free didn't make a difference in my case. Of course I can't say whether my crohns would be worse if I...
  15. valleysangel92

    No Canula; No Infusion

    It is available off license at the moment (mostly in England) but you have to make a special case to the health board. I only know of one person in Wales on it (which is where I am) as our rules are different to England. It's been approved for use in crohns, and is going through the final...
  16. valleysangel92

    No Canula; No Infusion

    I can completely understand, I was diagnosed at 19, after almost 5 years of not being listened to, and I'm now 24 and still trying to find the correct treatment even after having surgery. I've been on the vedolizumab about 16-17 weeks and still not noticing a massive amount of difference. So I...
  17. valleysangel92

    Colonoscopy normal despite scarring on outside of terminal ileum

    Hello, I apologise for the delayed reply. Scarring can cause all sorts of problems and often narrows the intestine, so it would make sense for this to be the cause of your symptoms, especially if its worse when you eat specific foods as this suggests that the pain and sickness could be caused...
  18. valleysangel92

    Brand New to CD and Forum

    Hello and welcome to the forum, I'm sorry I've only just seen your post so apologise on the delayed reply. Being newly diagnosed is a very scary time and it's totally ok to have nerves, try to remember though that the drug side effects are only a maybe, of the hundreds of thousands of people...
  19. valleysangel92

    No Canula; No Infusion

    I feel for you, I have horrible veins and am on Vedolizumab (entyvio) which is the next drug on from the anti TNFs. It's an infusion just like infliximab and they always struggle getting a cannula in. The nurses in the department think I should be on self inject, but my consultant says humira is...
  20. valleysangel92

    I'm struggling with this

    Hello and welcome to the forum, I'm so sorry to hear of everything that you are going through but i'm really glad you've found us. Are you meaning to say that your scope will be in March 2017? If so and you haven't been told when to take the diazepam then I would recommend calling the...
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