Search results

Hey guys, so after my last update things have been a bit rocky for me, I've been really up and down, going from feeling relatively OK to not being able to move with pain and nausea in the blink of an eye. It's really hard to tell if the vedolizumab is having any affect as of yet, as my...

I completely feel your frustration. One of the many cruel things about this illness is that it impacts people in so many different ways and no two people are affected in the same way. It's frustrating because it means that when we visit doctors they often say we must be doing ok because we...

Hello, im sorry you're having so many problems. I live in the UK, so I don't have any experience with insurance etc but just wanted to let you know that someone is listening to you. Hopefully there will be someone along who knows more about this soon, for the mean time I'm sending you hugs...

When I had my resection they warned me that if the disease was more advanced than they thought or if the reconnect failed it was likely I would need a Stoma. They always have to tell patients this is a possibility so that they are aware of the risk and avoid it being a traumatic shock if it is...

Hey all, I just realised I totally forgot to let you know what's happening with my heart! When I went in for my jaw surgery, the anaesthetist tracked down the results of all my tests and found that the Echo came back clear. The cardiologist has decided that it is likely my elevated heart...

Hello, I've had a high heart rate for a long time now, for a while no one seemed to think too much about it until one of my GPs decided she wanted it looked into further. I was sent to a Cardiologist and had an ECG which came back fine except for the rate being elevated, and then he sent me...

Hello there, I'm so sorry you're going through such a rough time. Crohn's a really brutal illness, and I think many of the emotions that you are feeling are quite normal for people dealing with chronic illnesses. If you've just had open surgery then this will increase those feelings, surgery...

Hello Sometimes when they perform surgery on women with Crohns there is a risk of affecting fertility as they are operating very close to the reproductive organs. They will always take care not to damage these organs, but some surgical techniques carry more risk of causing damage than others...

I'm so sorry to hear you are struggling so much, I think if we're honest with ourselves we all have times where we wonder how much more of the rubbish this disease hands out we can deal with. Has your doctor discussed any alternative treatments with you or has he just left you to deal with...

In my case my diagnosis was complicated by me having other health issues but yes it was a very frustrating time for me and it's more common than many realise I think. In terms of pain relief, if you feel you do need something stronger then your GP can prescribe some gentle laxatives like...

Hello and welcome to the forum, I'm so sorry to read you are going through all of this but I'm really glad you've found us, everyone here is friendly and supportive and we are all in the same boat. Unfortunately your story is not an uncommon one, it very often takes a while to get a...

Hello and welcome to the forum. Crohns is unfortunately notorious for being difficult to pin down and to get a grip on for some people. It's a very individual condition with no "one size fits all" solutions. From what you say, it sounds like the GI is going from the scan pictures from...

Remicade doses are dependent on weight, so if your weight is higher than before your dose will be increased, similarly, if your weight decreases, your dose will be lowered. Sometimes if they notice signs of inflammation in the blood tests etc they may order a higher dose to counteract this but...

Hello, This is NOT something the forum staff have put in, we are still a community forum and the admins are currently working on getting it removed as soon as possible. Please see http://www.crohnsforum.com/showthread.php?t=79802 for more information and don't click on any of the links or...

I'm not starting a new biologic, I'm still on the same one as before, I've got to give it longer to work.

Hey guys, just a quick update, I've just been to see my consultant and we are persisting with Vedolizumab for the time being (infusion nurse will not be amused by that one). I've had some blood tests done but other than that it's just wait and see what happens now, if the Vedolizumab...

Here's me 10 weeks post jaw realignment surgery (they break it and move it forward). Unless you know me well it's quite hard to see a difference until I smile, but I can see the changes in my face and it has really worked well. I'm healing well, there's just some puffiness in my cheeks as you...

I understand your concerns but unfortunately the longer you wait to start treatment the more chance there is of things getting worse, if you hold off for too long then you may end up needing a higher dose of steroids or more aggressive medications to get things under control. When you go on...

Oh you've been through the mill and back haven't you. Firstly, you are not stupid and I'm really sorry you've been made to feel that way. No one should ever be made to feel like that when seeking help. A gasteroenterologist should be able to tell if what you have on your lips is orofacial...

Hello and welcome to the forum! I'm so sorry you're going through all of this but I'm glad you've found us. Please don't be nervous, everyone here is very friendly and we will always do our best to help, we might not always be able to answer everyone but we will be a shoulder to cry on at the...