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Crohn's Disease Forum

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  1. U

    Cow's Milk (MAP)

    I don't use the forum often and not sure how quick to expect a reply
  2. U

    Cow's Milk (MAP)

    Hello, I'm sure most of us have heard about MAP. I have but didn't want to cut out dairy. I made the decision, based on limited research (cos sometimes I'm too tired to look into too much detail), to use Cravendale milk (in UK) as it has extra filtration. In my mind I thought this was a good...
  3. U

    Transanal endoscopic surgical proctectomy

    Only just stumbled across it myself. Don't know if it's adopted in UK at all. But hoped someone on here would know something.
  4. U

    Transanal endoscopic surgical proctectomy

    Has anyone undergone this method of surgery? I recently read this article and thought it sounded more promising than open surgery. What do you think? http://www.synergypublishers.com/jms/index.php/GJGH/article/download/33/42
  5. U

    Proctectomy a week on Thursday

    Has anyone had a successful proctectomy?
  6. U

    Are crohn's symptoms generally getting worse?

    Hi, I started with mild crohn's which after a nice break returned as mega evil crohn's. My nan told me about her old friend who had crohn's and was fine. My friends grandma has crohn's and seems to be symptom free and swears by a garlic clove a day. These ladies of the older generation might...
  7. U

    Go to hospital or not?

    Glad i went in but in some ways i feel worse. They found two abscesses which are fistula, they are an infection so now i'm having antibiotics and waiting for the surgery to heal. My crohn's is very bad and they are thinking of putting me on infliximab but they want to perform various scans...
  8. U

    Go to hospital or not?

    I went to A&E this morning. Although it's been a long day with a lot of waiting, at the moment i'm really glad i came. I'm on fluid drip and iv steroids, i've got some bum numbing product i can use as often as i need. All the nurses/doctors have been really nice and understanding. It seems i...
  9. U

    Go to hospital or not?

    How have you found the care to be once in hospital? I know each hospital is different. I don't know if any of you have been to bradford royal infirmary. I worry that i wont get to a toilet in time, that i'll pick up viruses from other patients or from their visitors. I worry that although i may...
  10. U

    Go to hospital or not?

    I have large bowel crohn's near the appendiceal orifice. I'm hoping that consultation on tuesday will review my current state. But for the timebeing i couldn't survive without codeine. I tried reducing the occasional dose a few days ago but my pain and BMs just got worse. I really don't like...
  11. U

    Go to hospital or not?

    Last night I decided that I needed hospital help. I have lost a lot of weight recently (45.6kg frm 57.5kg im 5ft4). I found that Elemental 028 Extra was actually causing me lots of abdominal pain plus pretty much going straight through me. It also seemed to aggravate the pain in my bum. I...
  12. U

    New to crohn's forum

    Thanks for welcome. I have now listed my attempted treatment on my signature so hopefully it'll show when i post this. It's a bit long to type out again (i use my phone) :)
  13. U

    New to crohn's forum

    Thanks for the welcome :)
  14. U

    Please recommened elemental liquid diet products

    I have tried modulen and elemental 028. I think they say elemental is pre-digested but modulen is partially digested. I found modulen didn't help my crohn's at all. It reduced the severity of abdominal pain but the pain was more frequent. Lots of people cope well with it though. I tried it...
  15. U

    Prednisolone/cinchocaine suppositories

    The lovely topic of suppositories! I used to find talking about these things really embarrassing to talk about, but then you realise there is no point in getting embarrassed. Now it's my favourite subject! I have been prescribed them by my GP to help reduce inflammation of anal skin tags. I...
  16. U

    Prednisolone and Elemental 028 Extra

    I have tried modulen before but not alongside prednisolone. I was doing it as a liquid diet for 6 weeks so now i've gone off it. Elemental tastes better to me now and is more practical (being in cartons) as i'm too weak to make up my own modulen shakes. I have tried having toast but it doesn't...
  17. U

    Prednisolone and Elemental 028 Extra

    Thanks for your reply, that's quite interesting. I will speak to my GP about this tomorrow. I'm avoiding my gastro doc at the moment because she doesn't understand why i'm worrying about wanting relief now. She wants me to start immunosuppressants. I have said I will consider it but for the...
  18. U

    Prednisolone and Elemental 028 Extra

    Prednisolone is the course of treatment which I am following until I go to consultation with a new doctor/hospital on the 19th. I'm hoping they will put together a long term remission treatment plan but for the moment i'm using prednisolone. I am taking 40mg a day all at about 7am after having...
  19. U

    New to crohn's forum

    Hi I've been using crohn's forum for months as a useful source of information, but I have found there are questions I can't find answers to so thought i'd join and ask around. I've had crohn's (near the appendiceal orifice) since 2007. First time was 'mild' and prednisolone did the trick with...
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