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Kyle has had his first 3 Remicade infusions and is still not feeling better. Bloodwork is increasing slightly. Gi said today to increase dose of remicade to 500mg and we will go back in 6 weeks. He also wants to add Methotextrate. How do you ever know you are doing the right thing? We never...

I am having an awful time right now with getting my son to go to school. Some days he will go and then the nurse will call About 1-2 hours into the day. It also seems that on weekends he does not have symptoms. I would never call him a liar but am getting concerned about school. He has...

Pasobuff, we also go to Albany med and see dr qualia. Also have had surgeon dr cenete. We are in the beginning doses so we are going back in 2 weeks. Deb. 8th. I hope this helps him.

My son's first treatment was yesterday. He took it like a champ with Tylenol and benadryl also given. He did get a little dizzy while inputting the iv but other than that all went well. He had a rough night last night though. Cramping in his stomach was off and on from 9:00 to about 2:00 in...

The remicade treatment went good yesterday. He was up until 2:30 this morning though with stomach cramping. He also had a little diarrhea. how long does it take for this to work? Kyle is home again from school. Missed a lot of school. It is time to talk to them about getting him a tutor to...

Remicade to start on Wednesday. Fingers crossed. Thanks for all of the information and advise. Kyle is ok with beginning the treatments. He just wants to feel better.

Procedures yesterday showed slight ulcerations near sit if surgery and small bowel. Doc recommends that we begin remicade. We are waiting on the insurance company at this point. B12 shots to begin right away. Back to work for me today and school for Kyle. We have been out since the 9th.

Kyles last procedure was done in October and they said he had some ulceration near the site where his surgery was. Since he is still having symptoms and before starting remicade they would like a baseline to go by. Kyle has had so many colonoscopies as I am sure many others have also. I will...

Thanks to everyone for the information. Kimmidwife I appreciate your concern and believe me I have had many discussions with Kyle. I do and will continue to keep a close eye on him. Going tomorrow for yet another colonoscopy and upper scope. Remicade treatments will begin next week. Thank...

New to crohns forms. I have 3 wonderful children. Kyle is my oldest at 14. He was diagnosed with crohns disease in january of 2010. July of 2011 he had resection surgery and was on Pentasa and Budesonide. His symptoms are mostly cramping and diarrhea. Sometimes he will wake in the morning...