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Dear Melissa! Im so sorry to hear about your son. Its scary to know there are medications out there that could help and they wont give it to you, its heartbreaking. How i went about convincing my doctor, I purchased 2 books on LDN and brought it to the doctor, i had read and underlined the most...

CarolinAlaska! Sorry for the late reply. How did things go for you? My appointment went well in the end. I ordered 2 books from Amazon: The Power of Honest Medicine, by Julia Schopick The LDN Book, by Linda Elsegood Both are about LDN and they are rather convincing. I think it makes it feel...

I have just been given the go ahead to start LDN! (low-dose naltrexone) I am so happy right now and i finally feel hopeful that things are gonna work out :) But I'm on 30mg Prednisone still after a bad flare, since march this year….So my question is has anyone else started LDN while being on...

CJ you are a true warrior! Can't even imagine all the things you've gone through. I'm so sorry to hear about all the surgeries. It's true that in the last few years so many things have advanced when it comes to medications. And they are still learning about the immune system and questioning if...

Today is a good day…..I have just been given the go ahead to start LDN!!! (low-dose naltrexone) I am so happy right now and i finally feel hopeful that things are gonna work out :-) But I'm on 30mg Prednisone still after a bad flare….So my question is has anyone else started LDN while being on...

Hello :-) I understand that LDN (Low-dose naltrexone) is not officially accepted as a treatment for Crohn's everywhere but that some doctors still prescribe it to their patients, especially when presented with enough Scholarly evidence that it works. I am based in Germany and i want to ask my...

LDN (Convince Doctor) I understand that LDN (Low-dose naltrexone) is not officially accepted as a treatment for Crohn's everywhere but that some doctors still prescribe it to their patients, especially when presented with enough Scholarly evidence that it works. I am based in Germany and i...

I really appreciate all the feedback you guys have given me!! :kiss: Unfortunately i'm not in a good state mentally. The prednisone is really messing with my mind and it has been very hard for me to make decisions lately. I went from high energy manic to completely deflated and depressed...

Oh I'm still quite confused if i am to be honest! :-( Was suppose to start Stelara last week but i asked to wait for a few days. Needed time to think after consulting other doctors too! Thank you guys so much for listening!! It's so hard to make these decisions by yourself. I'm still...

Thank you so much for taking your time to recommend this!!! :heart: I got a 2nd opinion from Britta Siegmund. My Doctor contacted her. They advised me to go on Stelara!! I had been to Campus Benjamin Franklin for treatment for Infliximab (2017) and later for Humira (2018) but under a different...

The doctors did nothing to protect you from Bone loss while you were on Entocort? :-( Are you able to do anything now? Sending Love

Reducing to 40mg on monday. Then 7 dats later to 30 mg etc. bad flare in the hospital. Humira wasnt working. Remicade also failed with lupus like syndrome. Starting Stelara in a few days. While gradually reducing Prednisone. Hoping that everything will go smooth Staying positive! Luciana

Thank You!! I don't drink dairy unfortunately. So will have to get into weightlifting :-)

A quick little question :-) How do you guys protect your bones while on Prednisone? I've taken so much Prednisone in my life i already have slight bone loss, which shows on my DEXA scans. And i want to prevent it from happening any further since i will be on prednisone for the next couple of...

THANK YOU!!!! :-) Turns out Tacrolimus is not available as a drug in Germany?! They did an ultrasound on me today and the inflammation is slowly going down!!! The sigmoid is still quite narrow, but it looks better than a week ago. after 100mg Prednisone i would've expected it to be gone...

THANK YOU!!!! :-) Turns out Tacrolimus is not available as a drug in Germany?! They did an ultrasound on me today and the inflammation is slowly going down!!! The sigmoid is still quite narrow, but it looks better than a week ago. after 100mg Prednisone i would've expected it to be gone...

I stopped Azathioprine because i wanted to get pregnant and i felt really well and i remained in remission for many years after without any medication. But i did not get pregnant, but divorced instead hahaha which triggered the last flair which i have still not fully recovered from, not even...

I asked if it was fibrosis, doctor said no...but also said it was so inflamed we have to wait a few days to see if the prednisone will work on this area or not. I asked him already about balloon dilation and stricturplasty ....he said not an option. But he said i need 2nd opinion. Thank you...

Thank you guys sooooo much for your help! And for sharing this information with me!!! I have a lot of discipline!! If you think this can work then i will ask for this. Can i go EEN without formulas...but through own diet and supplements?? Like Juicing veggies (of course strained, no fiber)...

5:55 am still cant sleep 😴