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@DGG: Thanks for sharing. I'm in a similar boat and have tried many meds and have a fistula that has not responded to several different procedures. I had advancement flap surgery in December but my CRS and plastic surgeon (they teamed up) advised against the ileostomy for the first go. Sadly...

I started on the Remicade route and developed an allergy about 2 years in. My doctor had me try Cimzia first (not because of insurance issues) but I wasn't responding well and switched to Humira. I just restarted after two months off due to surgery but the Humira was able to get me to a place...

Hi All, I'm currently six weeks out from advancement flap surgery, aiming to finally get rid of fistulas that have become more than just a pain in the butt. While I'm on Humira and Lialda currently, my ongoing challenge is solid, formed BMs. My doctors want me to aim for constipation but I'm...

I developed a reaction to Remicade over time and had to switch to Cimzia and later to Humira. I wanted to get back on Remicade but my doctor was concerned giving the small reactions I was showing earlier (blotchy skin at end of the infusion time, itchiness in the throat, etc.). They ended up...

It's hard to say but, if fistulas are the issue, Remicade has more cases to support how it can help with fistulizing CD. I was on Remicade for a while but developed an allergy to it over time. While it seemed mild (mild skin blotchiness near the end of each infusion, some throat itchiness), my...

I'm guessing you may have fecal matter that normally comes through your fistulas? If so, for BMs, you can try holding gauze with light pressure over them to avoid the pain of fast-moving fluid as the prep goes on (and diverting most of it to where it normally would come from). In addition to...

@justbreathe8 - I am 3 weeks and two days out and I think today I turned a corner. The first few days post-op weren't too bad since the local anesthesia was still in effect (combined with pain meds); however, it's been rocky since then and I've been pretty much restricted to the house, although...

As a 33 year old, active woman just a few weeks into recovery after advancement flap surgery (and trying meds - including Remicade & Humira, setons, etc. over several years), know you're not alone in your struggle or frustration. There are good and bad days but keep your eyes on your goal of...

Diaper cream is a must (I like Desitin Maximum Strength) and gauze it up. I am two weeks post advancement flap surgery (after several other procedures) and I've come to order my gauze from Amazon.com to save money, as I'm putting on fresh dressings every few hours. Good luck and sympathy from...

Wondering if anyone has had an attempt to close a fistula with their own tissue/muscle... I have had a few surgeries to get rid of two fistulas, with one that is almost large enough for the surgeon to put their finger through (and a real treat for me). Due to the placement, muscle structures...

I have two fistulas, and one that drained quite a bit. I dealt with it for many years after a doctor told me that surgery was risky and to more or less be glad it wasn't worse. About two years ago I started the journey to try to get rid of them - first with oral drugs, then with Remicade and...

Hi All, New to the Forum but happy to find others on Cimzia. I started a six weeks ago after being on Remicade for a year and a half (and developing enough of a consistent reaction that my doc wanted me to change). So far, so good on Cimzia. I have fistulating Crohn's, so I'm currently...