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How did your son do on methotrexate? I was curious if he had side effects and how it worked for him?

How did it work for you?

Have any of you tried this as a treatment? If so, how did it go? Was it covered by insurance? Thanks.

Hi Everyone, After 4 surgeries, wound care and 6 long months my son still has a perianal abscess. A fistula was not detected on MRI 2 weeks ago. The abscess is open so it is not too painful right now but he is a 15 year old about to start school and hopefully sports in mid August. His fecal...

So far, we are still managing the abscess healing. His most recent two MRI's did not show fistulas at this time. We see him again at the end of this month. For now, we are weaning off Entocort and seeing how his fecal calprotectin numbers look as we do. I am still keeping the idea of LDN in...

Thanks, it looks much better today and I couldn't see any pus! I cleaned it again and put in the antibiotic ointment. I plan to watch it very closely and then return to the surgeon Monday if needed. I also got the name of an adult colo-rectal surgeon from a friend whose husband had an abscess...

I just called my son's surgeon today because although his perianal abscess is almost healed, an area of inflammation occurred that is excreting some pus. I can irrigate it and apply gentle pressure to get it all out but it does return. I am so afraid this will continue when it is healed and...

He was on them for a long time. He has been off for about 5 weeks. He was on them for 2.5 months throughout all 4 surgeries to drain this and for about 6 weeks after the final drainage. There is no apparent cellulits, pain with palpation or other signs of infection in or around the wound...

Hi Everyone, After 4 surgeries for a perianal abscess, the penrose drain finally worked. It was removed about 6 weeks ago and I packed it per directions from a wound care nurse that I work with. All along there is occasional pus. It is almost healed now and I was concerned because of this...

It makes a lot of sense to me to try local injections of these meds. They are less effective for perianal issues than proximal disease and studies are showing they work better this way. It would be a win-win for those who don't have serious proximal disease and those who do but the IV...

There are studies if you google (local administration of remicade or tacrolimus for perianal fistula) this that inject remicade into fistulas. They also inject tacrolimus. There is some good success with this. It is higher than with IV admin for fistula healing. It is also more localized and...

It is administered by an injection into the fistula track. His fistula healed with antibiotics but we want a plan if he gets another one. He takes Pentasa for terminal small bowel crohns that is superficial. He is also now on Entocort and weaned down to 6mg. If he gets another fistula, the...

Google topical remicade and tacrolimus. If you are allergic to remicade, perhaps tacrolimus could work. I doubt you could use injectable remicade in fistulas if you are allergic as some will always go systemic. Do you notice that your perianal disease flares with proximal disease or are they...

Hi Everyone, I have read some promising research about topical administration of both remicade and tacrolimus to heal perianal fistulas. My son has Crohns limited to the distal small bowel and only on the inner surface but had a perianal fistula this spring. He has normal bowel movements but...

Hi Everyone, I have read some promising research about topical administration of both remicade and tacrolimus to heal perianal fistulas. My son has Crohns limited to the distal small bowel and only on the inner surface but had a perianal fistula this spring. He has normal bowel movements but...

The research I have read seems to indicate that numbers as high as you have certainly warrant more endoscopic testing. You may want to suggest they do an upper GI and a video capsule endoscopy? My son has had FCP close to 700 but his disease is only in the small bowel and therefore the video...

Me too! My general doctor sent me to a GI once my son was diagnosed with Crohns because I had been diagnosed with irritable bowel years ago and he felt I now needed a colonoscopy given my son's diagnosis. My colonsoscopy was normal including the ileum. Perhaps I still could have waited until...

Thanks for the information. We have been covered so far. If they won't cover it that often, I would be willing to pay for a while because it really does seem to give us the information we need. I think this is becoming a better and better tool for IBD and hope your insurance covers it soon!

All of my son's other blood work is always normal. I was hoping to get it done every month while they wean him off Entocort. This way we know how he is really doing and then if all goes well, continue monthly for a while before looking every 3 months. Is this an expensive test. It really...

Hi Everyone, We got great news today. My son has been on 9mg Entocort for 6 weeks. His fecal calprotectin number in early December on early March were in the 690 range. After 6 weeks, it is now 106! We see his doctor on June 3rd. He wants him to stay at 9mg until that time and will then...