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Crohn's Disease Forum

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  1. PVail

    Crohn's in stomach?

    Hi Hopefullx3 Thats an awful lot to deal with. For four years now I have mild to moderate Crohns and have only recently had upper stomach problems. I was having terrible sweats and supper stomach pain after eating, beltching all the time , feeling really nauseus and when I went to get checked...
  2. PVail

    Missing work?

    So I have managed to stay at work now for a year without taking any official sick leave . I now use my holidays and save up the bank holidays too. Its not ideal but i can manage. Ive been flaring pretty bad now for about a month and had two ribs crack with no apparent reason. Very uncomfortable...
  3. PVail

    Just an update..

    Hi and yes I have also put on wait since taking Asacol for a couple of years . probably because the D has backed off alot since then.
  4. PVail

    Just an update..

    Its always a battle with doctors but do persist. I believe the aza is quite mild and does take a few weeks to work . Iin my experience you gotta a stay on it for a extended period . Its is extremely frustrating when your not getting answers but remember it is so important to stay calm ,as this...
  5. PVail

    Pentasa & Omeprazole

    Hi so ive been on Asacol for a few years now in the TI at the end of the small intestine as it enters the large bowel. This works ok as long as i stay consistant with the dose each day . About six months ago i got real sore stomach and bad acid reflux. Turned out to be a H,Pylor i(helicobactor)...
  6. PVail

    The top three things you hate about having Crohn's

    1. The total lack of understanding my doctor has had over the last four years that something was actually wrong. 2. The fact that IBS is actually used as an excuse for a diagnosis when its obviously not. 3. Crohns is very clever as it wears you down mentally as well as physically hiding...
  7. PVail

    Rigid stomach and nausea

    Thanks Shamrock, the fracture was after and was quite unusual in itself. I was working on my bicycle and was getting up and turning at the same time when I felt the pressure and a crack in my ribs. very painfull and was totally surprised by it . I immediatley went to A&E and got Xrayed . two...
  8. PVail

    Rigid stomach and nausea

    Hi folks . Ive been feeling not too bad for a while but for a few days now my lower abdomen has become quite rigid and im pretty nauseous most of the time. the pain is LRQ and comes and goes as usual. not sleeping well at all and feel very bloated .Bowel movements have really slowed down and I...
  9. PVail

    Exercise?

    I started cycling a year or so ago and its the one thing that i would say that has had the biggest effect on my health in general. Generally i have LRQ pain 24/7 and all the rest of the symptoms that go with IBD. I found even a gentle relaxed cycle will inhibit a feeling of well being and will...
  10. PVail

    Hi all - just diagnosed

    That made me laugh Steph. Airport or not , I get searched everyday as I work in a harddrive company and just take the spares in once and leave in your locker along with a couple of days of meds ,that way you have peace of mind. Us Irish aint bothered with security lol:dance:
  11. PVail

    Smartphone suggestions?

    Iphone is great, syncs with all my other devices at home and I have an App called "Toilet finder" which will locate loo's anywhere in any country in europe via GPS. Excellent phone lol Peter
  12. PVail

    Hi all - just diagnosed

    Hi Steph . Im really glad you got a diagnosis in that I know how extremly frustrating this is battling with GPs. Four years it took me to get diagnosed and eventualy im managing much better witth the aid of medication. I hope now you will get the correct medication to ease your symptoms. All I...
  13. PVail

    IBS is not a diagnosis

    IBS well what does it mean ? What is a syndrome ?. I believe its a real cop out by the health service. For a few years I was in agony everyday ,had all the visual symptoms of IBD everyday , I was scanned non stop in the lower bowel and not much showed up . I was put on Asacol and within a month...
  14. PVail

    When to goto hospital?

    Well you should definetly go see your local doctor as you are obviously having a lot of discomfort. I remember being like this before I went on any meds. It certainly aint a nice place to be but I believe that a trip to the ER might not help . You probably need a regime of drugs to help with...
  15. PVail

    Pain in fingers/hands?

    The pain i had was in my ankles and wrists. Across my back was bad and found out that this was caused by spasms in my bowel. The wrist pain has gone now completely. I cycle regularly and take it quite seriously . the focus and concentration certainly help too. The yoga if you do it everyday...
  16. PVail

    Pain in fingers/hands?

    Hi tummygirl Ive had pain in the wrists and hands for a couple of years now. Found out that taking Asacol can cause this ans i agree that since been on it Ive had these pains and tingling in the arms . Now i have discovered that im loosing more water and need to keep more hydrated than i...
  17. PVail

    Just need a vent

    Having this condition is soo frustrating and people no matter what they think cannot understand how devastating it is . I suppose people / friends get frustrated not being able to help and find it hard to believe that you can have a variation in your illness all the time. It drives my wife mad...
  18. PVail

    Symptoms worse at night?

    Im pretty much grounded in the mornings until lunch time ,in that I cant really go anywhere because of unpredictable bowel movements . The pain im now used to and have come to live with it . Im only working because my work has many toilets on each floor and basicaly its a safe place for me. So...
  19. PVail

    Your story of staying active?

    I started cycling shortly after i got sick at the start . It has been my saving grace in many ways . I feel more energized and always eat better when i cycle. I ve had some really bad times that have lasted for weeks and the thought s of getting out in the fresh air always helps me through ...
  20. PVail

    Riding horses while on medication?

    Holly , theres no reason not to do what you enjoy just know your limits. I started cycling shortly after I got sick. I found physical exercise a big benefit in many ways. Now I go mountain biking twice a week and i find when I dont ,I get more GI problems. I think building up to it and you will...
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