Just an update..

[HorseLover!!]

Haven't posted an update for a while, so thought I'd post one today, I have not that long ago started back at work which is in a way good but at the same time bad :ybatty:.

I still haven't been able to get through to my gastro about things that have been going on I can't get hold of my IBD nurse which is annoying :yrolleyes: I have a horrible feeling that the Aza is no longer working for me but because I can't get hold of anyone and I can't take any time off work I'm kind of stuck with it, I am still taking it as I don't want what happened last time to happen again . I am still in the middle of a flare which is really annoying especially if I am taking a med that might have actually stopped working :confused2:

I also went to see a psychiatrist about my problems at home, it went well until she started to ask about me and my mum then I just cried throughout the rest of the appointment .

But on a good note I think that being back at work has helped me probably because I am back out working with the animal that I absolutely love
HORSES!! :heart::heart:

 

[Jennifer]

Sorry for the late reply HorseLover!!. I can't recall how long you've been taking Aza. It can take a few months to be at therapeutic levels. Some time has passed since your post, have you gotten a hold of your doctor or IBD nurse yet? Keep bugging them if you haven't.

Hope the therapy is a good experience overall. Glad that you're feeling better about going back to work and I hope it works out for you.

 

[steph_irish]

Hey there, glad to hear from you. Not impressed that your not getting the help and support you need, I agree with Jennifer keep bugging them. I hope you get what you need from the therapy sessions, there are days when they will be tough and others when they will make you feel great. Please keep in touch

steph

 

[PVail]

Its always a battle with doctors but do persist. I believe the aza is quite mild and does take a few weeks to work . Iin my experience you gotta a stay on it for a extended period .
Its is extremely frustrating when your not getting answers but remember it is so important to stay calm ,as this will directly effect the insides.
So the way I look at it now is ,I know I got it ,it aint going away so I take the meds and try to enjoy everyday that I feel good. Take the bad days as they come.
I too am in the middle of a bad flare , I fractured two ribs a couple of weeks ago just getting up , doc had no explanation . I was furious and in a lot of discomfort. but i am also very stubborn and have remained at work through it . It does me good to work and fill my days with people( well sometimes).
Hope you get help soon and try to stay calm .
Peter

 

[HorseLover!!]

Thanks everyone for the support I've been on Aza for about a year now, I am still trying to get through to my doctor and my IBD nurse but so far nothing :ybatty: but I will keep trying until I do get through to someone .

I will keep you posted on what happens

HorseLover!! :wink:

 

[Tuff]

Hi HorseLover. I haven't been posting much lately, but your post caught my eye.
Have you by any chance gained weight since you were prescribed Aza? I went into a flare because my doctor did not increase the dosage after I gained some weight, and the dosage became insufficient. I went to a new doctor, and the first thing he said was, the dosage is wrong. I'm now starting to come out of the flare. For me, food makes a big difference in how I'm doing as well. I can't have any caffeine either. A food diary might help to pinpoint your problems.
It will get better, hang in there!!

 

[HorseLover!!]

My weight has been bouncing up and down for a while now, everytime i do gain weight i just can't keep it up for very long until it goes back down again but recenlty I've lost some weight which is really annoying but i am trying to get it back up to what it was . I have been bugging them for a while now to get them to change my doctor or at least let me see someone else this one time but they just haven't done it :ymad: Food yes definitley makes a big difference there is so much I can't without it making me ill I don't drink any caffiene. I definatley think I will have to go back to making a food diary

 

[bettyboop12]

Have you by any chance gained weight since you were prescribed Aza? I went into a flare because my doctor did not increase the dosage after I gained some weight, and the dosage became insufficient. I went to a new doctor, and the first thing he said was, the dosage is wrong. I'm now starting to come out of the flare. For me, food makes a big difference in how I'm doing as well. I can't have any caffeine either. A food diary might help to pinpoint your problems.
It will get better, hang in there!!

Hi, your comment just caught my eye. I have been having stomach problems for the last week or so and considering going on ensure for a bit. I am on aza and have been for about 15 months. I have put on half a stone recently and was thinking my 100mg may not be enough.

 

[PVail]

Hi
and yes I have also put on wait since taking Asacol for a couple of years . probably because the D has backed off alot since then.

 

[Tuff]

Betty, I don't think half a stone would make much difference. The dosage is 1.4 to 4 mg per kilo of body weight. If your condition has suddenly got worse, you should let your medical team know.