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Just out of curiosity, why put you on 6-MP if the Remicade is working? Of course, it's all very personal, but for me, Remi did far more than 6-MP ever did. On the upside, if it does work for you, it's generally way less expensive than Remicade!

Depends on what immunosuppressants you're on. The only time I've suffered from really achy muscles is with Remicade. Most of the other drugs, like Imuran, took a couple of months before they really built up enough in my system to have much of an effect, so it just depends what you're taking...

My pain during a Crohn's flare is usually very intense, to the point where it's difficult for me to move easily a lot of the time. However, I have a now 15 year old brother, and when he was about 10 or 11, he was having mild abdominal symptoms. At first, everybody assumed it was Crohn's because...

My docs haven't discussed anything specifically for treating the brain fog yet, but it's gotten a lot worse for me in the past couple of months, and I haven't seen the relavent doctors since then. I'm in a little bit of a bind right now as I've moved states, to a much smaller town, and I'm...

Caffeine always sends me straight to the bathroom. But, I can manage other types of caffeine, like tea, with relatively minimal difficulty, while coffee always gives me pretty severe nausea as well. It doesn't seem to make a difference if it's black, or any other variety of drink, if there's...

I still have my gallbladder, so I don't know on that front. However, I've noticed that while I have a large number of bowel movements in a day during a flare, when my Crohn's is in remission, especially right after a flare, I do tend to go a couple of days sometimes without a BM, and often with...

25° and the snow is coming down hard. Yikes. My joints and I are in no way prepared for winter weather.

Yeah, I have the bp drop and the hr increases. I mostly rely on the Florinef, and only take the Midodrine on the really bad days...it keeps me upright most of the time, and I haven't noticed any severe side effects from either. However, my hr still tends to run a bit on the higher side than is...

Definitely got a mind of it's own! I was feeling totally fine at school the other day, then out of the blue, I stood up and passed right out. That woke my classmates up for sure! :D Anyways, I take Florinef daily, Midodrine as needed, and my neurologist also gave me a prescription for Klonopin...

Thanks for the welcome! Nice to see someone else around here that understands the POTS issues, even if it isn't necessarily in combo with IBD/SpA. :)

I'm a university student at the moment, going into my senior year. Other than a flare my first semester as a freshman, I'd had things pretty well under control with Imuran, but this past few months, I've got into a relatively bad flare, lost 20 lbs, passed out and ended up in the ER twice in...

Definitely staying hydrated helps. It always takes multiple tries to get an IV in me though, no matter the location. I usually come home from the hospital bruised in more than one place, no matter how much water I drink before hand. Sometimes they wrap my hands in warm compresses before, which...

Hm. I've never had a reaction that severe to it, but I just had my first infusion back on Remicade after several years on other meds, and I was pretty cold, my hand with the IV in it went numb after the first twenty minutes or so, plus I had really achy muscles for several days post-infusion. I...

I, too, have tried to give blood and been turned down. The first time because I was anemic, and the second time, because of the Crohn's itself. I don't think it's specifically tied to the medications you're taking, at least in the US, because they didn't ask about my medications once they found...

Hi, all! So, I've been diagnosed with Crohn's for 10 years now, but been symptomatic for closer to 15. I also suffer from SpA and a form of dysautonomia called POTS. Yay me! Anyways, I've been through about every med possible, everything from 5-ASA to 6-MP, Prednisone, MTX, Bentyl, Flagyl...