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  1. Catherine

    What is YOUR weather like today??

    It was wet here today. Spend the morning lodging hail damage claims on behalf of my clients. Fire between Bendigo and Melbourne is contained. We are heading into our peak fire period Feb/Mar in Victoria. January will be wetter than average at my place..
  2. Catherine

    “Silent” Crohns and treatment

    I have bump a thread of mine it in Parent of children with IBD section. It details my daughter journey to Crohn dx. She very few if any symptoms when we were trying find why iron were low. Had trouble trying to link the thread.
  3. Catherine

    Our journey to dx looking back 2 years on

    I am bumping this post for Andrew83 as I'm having trouble linking on my phone. Andrew this our journey to getting dx of crohn disease and no treatment. There really wasn't any symptoms that scream corhn in the first 2 years.
  4. Catherine

    “Silent” Crohns and treatment

    You could try EN to get you remission instead of steroids. This is formula in place of all food for least six weeks. Its often the first treatment used when you dx Crohns as a child.
  5. Catherine

    Silent Crohns

    S has not had regular GI care since leaving high school. She last colonoscopy was whilst doing year 12. She completed one year university and then decide to travel. At the age 19 decided she to travel to UK on the working holiday visa. I arrange a visit to GI before she left. Arranged...
  6. Catherine

    Silent Crohns

    CT colonography was very unpleasant, but went well. Now the awaiting for answers GI believes they inflammatory polyps from previous flare. They are normal healthy bowel colour, just very big. Size wasn't mentioned but if the large bowel diameter is 3inch these polyps would have been 2inch...
  7. Catherine

    Silent Crohns

    She is on azathioprine 200mg. Last scope was approx 6 years ago. S is now 24 and I have no say in her medical care. All blood tests and fecal cal test look good. The bowel itself looks clear accept for large polyps which will need surgery to remove. According to the GI the polyps are due to...
  8. Catherine

    Silent Crohns

    Thanks MLP She is not enjoying second day of no food. The type of CT doesn't sound very pleasant but should give answers. The GI is thinking surgery of some type will be necessary.
  9. Catherine

    Silent Crohns

    I haven't post much in recent years. A little bit of background my oldest daughter was dx with Crohn's aged 16, she went undx for a number years due to lack of bowel symptoms. She spend the last few years working around Australia and travelling world. She did her colonoscopy prep yesterday...
  10. Catherine

    Iron Deficiency Anemia

    Has anyone the mentioned the possibly of anemia of chronic disease with concurrent iron deficiency anemia? Do you have the iron numbers?
  11. Catherine

    Stelara

    Ferritin can also be a marker inflammation. Has hemoglobin level increased at all?
  12. Catherine

    Moving forward with allergy testing

    Testing was done by Allergist in the medical suites of a private hospital. The patch testing would be for contact dermatitis for wool fabric and/or raw wool. Avoid wool is not an option as she entering her 2nd year of Applied Fashion. She is already taking Zyrtec daily which makes her...
  13. Catherine

    Update on my Sarah

    Sarah is still in Tasmania, Hobart end. Current contract ends in mid March. I know her GI did calprotectin and stool testing test before she left due to Anemia. Her blood results had not improve on the previous test. It looks like the Crohn is not remission.
  14. Catherine

    Moving forward with allergy testing

    We have decide to move forward with allergy testing with youngest (18). She get hayever. Get hives from grass, sunscreen and wool. We had our first appointment at the allergy clinic. Skin pricks negative for cat & dog hair, dust mite, rye grass, egg, milk, peanut, soy bean, wheat. No...
  15. Catherine

    The Worried Mum's/Dad's/Carer's Club!

    I know of one child who died from leukaemia following a dx Crohn's but that child was miss dx with Crohn's disease when it was leukaemia along. This a number of years ago.
  16. Catherine

    NG tube assistance

    Sheedon reminds me of my middle daughter, thankfully not my daughter with Crohn's. Like Sheedon she has a chair that's she always sits in to do her homework. She is a very black and white person. She was13 years old when she was dx as Asperger. Can't tell that upper high school wasn't hard...
  17. Catherine

    Wisdom Teeth Infected?

    Going to tell you a friend story. This not meant to scare you but he was not given antibiotics for a small dental procedure whilst on Remicade. A few week late during a routine GI appointment he mentioned severe back pain and GI ordered a MRI. The technician performing the MRI left the room...
  18. Catherine

    H's Brother

    Do you access to the blood results? Do have any previous lab results? If so compare the results and post any results where there has been a change. Look at hemoglobin levels, ferritin, and any other iron numbers you can find. Just compare the results. You are looking for a trend either way.
  19. Catherine

    Severe Anemia with Crohn's

    What is the hemoglobin level? Is it going up? Did increase after the transfusions? If the anemia is Anemia is cause by low level irons it should response to iron transfusions. If the Anemia is Anemia of Chronic Disease it is unlikely to response to iron transfusions. You need to get the...
  20. Catherine

    Update on my Sarah

    Update on the Sarah. Sarah gots blood test done at the near by station at the monthly RFDS clinic. She headshome early December, and she will be home for two weeks. Before starting her new job in Tasmania before Christmas. I need to try and get a specialist appointment due that time, wish...
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