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Crohn's Disease Forum

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  1. L

    SIBO and Motility Issues

    First of all, disclaimer. I don't recommend doing anything I have done, talk to your doctor. Ok. I think I can trace the start of my Crohns to a bout of walking pneumonia I had in about 2006. I started having more frequent symptoms in 2010. But, its really tough to pinpoint because when...
  2. L

    SIBO and Motility Issues

    Hey Kav, I will write back shortly
  3. L

    Mild crohn's and SCD

    I am in your situation. I have been managing my crohns with supplements alone. My symptoms have improved greatly. My biggest worry is that the disease could be progressing and I am showing no symptoms. Dr's are always trying to force you on meds. I was on Apriso at first for about a year...
  4. L

    Juice cleanse

    Everyone here will probably tell you to juice it yourself, but that is a ton of work. If you are in the DC area there is a place in Bethesda that is pretty good. They will ship you bottles of Juice frozen. I found the quality to be good, meaning, when I tasted the celery juice it tasted like...
  5. L

    Interesting Development

    If you hit the website, it doesn't really talk about digestive treatments. I wonder, if the cure for crohns will be found by accident when some company tries to treat something else.
  6. L

    Family history of Crohn’s.... anyone??

    ditto, no family history. But that doesn't mean much. They weren't great at diagnosing it until recently.
  7. L

    Confused and scared

    One thing to remember, is many of the people posting on a forum are at the worst end of the Crohns spectrum because they are suffering. There are plenty of people with mild crohns that manage it completely with supplements and diet. Take it one step at a time. Get the tests. Consult your...
  8. L

    Thoughts? Experiences?

    vitamin K2. A lot of literature says you should take it with D3. IF you hit up google and search D3 K2, you will find that they commonly are sold together in one pill. I take 5000 iu of vitmain d3 with 100mcg of K2 in the mk7 form.
  9. L

    Thoughts? Experiences?

    I tried accupuncture, did't really work for me. But everyone is different, so its worth a shot. I don't think there is any downside as long as you go to a reputable person who uses new needles every time. I agree with delta. I do alot of other things that help a little. D3 K2 I think is a...
  10. L

    SIBO and Motility Issues

    Sorry, emotional distress certainly does make things worse. My personal take is that your Dr. sounds like she knows what she is doing. More and more GI's are looking to surgery as a last resort because there is no going back. The connection between diet and crohns does have some evidence. I...
  11. L

    Ayurveda for crohns disease

    vpentakota gives sound advice. But each person much make there own choice. There are risks with biologics, read the potential side effects. Some people have success, some people don't. It has a been a life saver for some. Arurveda has worked well for some people also. Liquid diets have...
  12. L

    Frustrated

    In support of the capsule test. I had every test on the planet and they all came back normal. Mri contrast, upper, lower, ultrasound, fecal test, and the list goes on. I switched GI doctors he did a capsule and found the inflamation/crohns. I have the mildest case of crohns, my symptoms are...
  13. L

    Elemental Nutrition contains everything that it is not supposed to.

    maybe the connection could just be the fact that SCD and elemental give the gut a certain type of "rest". People have had success with intermittent fasting also as well as elimination diets.
  14. L

    Carbon 60

    thanks, please keep posting your observations about c60. Its appreciated. Using much of the anecdotal supplement use information posted here I have been able put myself into remission and drastically improve my moderate crohns. I am at about 90%, just need to get rid of that last 10%!
  15. L

    Carbon 60

    can you post information on what brand you are using? drops or pills, etc? Thanks
  16. L

    Does diet really help?

    I have read so much on diet my brain hearts. I have a PhD in nuclear engineering and I feel like I have read more about crohns that I should be given a PhD in Crohns! As I am sure most people here have. As for does diet work. I don't think you can get a definitive answer to that. I have...
  17. L

    Vsl#3 No longer Sold in United States or Canada

    Visibiome is the new vsl3
  18. L

    Capsule endoscopy or MRI ?

    before the capsule I thought I had something called bile acid diarrhea.
  19. L

    Capsule endoscopy or MRI ?

    I had the blood tests for both and also had an ultra sounds of every organ.
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