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*hugs* to all.

Have they conducted any scopes or scans or fecal tests to see how well the Humira is working?

I'm glad to hear your sig went well Wendy! It sucks that you're going to have to change things up a bit. :( Unfortunately, this is the hard part of early stage trials as the companies have to work through kinks and regulatory issues. Knowing the folks at Qu Biologics like I do, I have little...

"Nothing" is not a correct answer. I'd get a second opinion regarding methotrexate, various mesalamine formulations, and I would strongly suggest researching enteral nutrition and medical marijuana.

I can't comment on his essential oil use. However, would you like to share what meds he is on, what supplements he takes, and what his symptoms are? Some of us may be able to offer some perspective there to help reduce those flareups.

Did you have an anaphylactic reaction to the remicade?

This is an example though there are plenty of others: https://www.crohnsandcolitis.com/advocate-program

:( I hope so too! It's too bad you're allergic to remicade. It's pretty darn good for perianal Crohn's.

Well, the narrowing is likely a combination of scar tissue and inflammation. The Cimzia can reduce the inflammation, but not the scar tissue. As such, if there is a lot of scar tissue, the balloon dilation + Cimzia or other biologic would be the better approach in my opinion if this GI feels...

I have no problem with a balloon dialation being done to attempt to wide the intestines, but you also need to be on something like Cimzia or Remicade, or whatever to stop the active inflammation.

I'm not sure I can see how it would help someone with IBD. What's the theory?

Welcome Thomas, I'm glad you decided to join :) When you say you have crappy days, what are your symptoms?

Welcome to the community. Have the doctors mentioned Crohn's as a possibility? Based upon everything you describe thus far, I'd suspect it's something else.

Thank you! I'll be sure to check my local Whole Foods next time I go.

Welcome to the community. Out of curiosity, where is the fistula and abscess located? I wish you all the best.

Greetings and welcome to the community. I'm sorry to hear about all the suffering you've endured :( I hope Dr. Rubin is able to get you some answers! I wish you all the best.

Welcome to the community. I'm sorry to hear about everything you've been through; I can't imagine how rough it has been. We're here for you anytime you need us!

Welcome to the community. Please keep us updated as to how you're doing.

Does anyone have any links for paleo friendly bread or tortilla-like food that can be purchased pre-made? Thanks!

This is what people don't understand though. Because you chose not to control the inflammation, over time this lead bacterial overgrowth, scarring, blockages (which are life threatening situations people die from) and finally, resection. You're now removing parts of your intestines and will...