Have you taken part in a Crohn's advocate program? What was your experience?

[David]

Has anyone here taken part in a Crohn's or other IBD Advocacy program? If so, what was your experience?

Thanks!

 

[tots]

I have not heard of one. Curious though.

Lauren

 

[David]

This is an example though there are plenty of others: https://www.crohnsandcolitis.com/advocate-program

 

[Lisa]

Never knew this existed until now...so no.....don't think my Mom ever had any support either as I was growing up.

 

[my little penguin]

Nope never heard of it in 4 years ......

 

[Salad_Shooter]

A personal friend of mine, and an attorney who suffered from severe CD, founded an advocacy program .... Advocacy for Patients with Chronic Illnesses/Advocacy for Patients. Her name was Jennifer Jaff. So yes, I was a part of that program until her death in 2012, and I have not joined another one since then.

When I was a member, I found the information and the assistance to be invaluable.

 

[Jennifer]

Not officially no but it sounds like what we basically do for each other on the forum.

 

[Madhu]

I second Jennifer. I found all info and comfort needed in this forum.

 

[fuzzy butterfly]

I agree it is pretty much the same as here,from what i see on the link. Only difference is we have a whole wealth of knoweledge at our fingertips. No matter what time of day or night, because we are worldwide there is always someone awake.. and willing to help. I for one will be sticking to this site. It is the best i have come across,and the only one i use.Thanks to all of you on here.