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  1. D Bergy

    Looking for direction - just got blood results

    I think your positive response is likely for the same reason as mine. Mycoplasma is using up your essential amino acids and fatty acids. The two supplements are a good shorter term solution but if you have enough mycoplasma to reduce those acids then you have far too much. The longer term...
  2. D Bergy

    Diagnosed after 40?? Anyone???

    Well, just getting older in itself causes some changes which include a less effective immune response and slower recovery from pretty much anything. I was under a record amount of stress also at that time which further lowers immune response. Those things contributed to the disease progressing...
  3. D Bergy

    Diagnosed after 40?? Anyone???

    I was diagnosed around my mid forties, but in retrospect I had some sporadic symptoms since my mid twenties. Nothing too serious prior to my mid forties. I have never had an MRI of my guts but plenty of CT scans. I have a slight glow at night. Not really. It is my understanding that the CT...
  4. D Bergy

    Looking for direction - just got blood results

    Mycobacterium avium subspecies paratuberculosis is often if not always involved with Crohns. The studies seem to point that direction and my personal experience tells me it was involved in my Crohn’s also. The bacterium has also been suspect in type 1 diabetes, Lupus and some thyroid...
  5. D Bergy

    Looking for direction - just got blood results

    By the way, the Cryptolepis tastes like an old inner tube boiled in dishwater. Not tasty. When I started taking it I experienced some initial brain fog for a couple of days and after that nothing in the way of any other negative effects. Just upped my dose and has not caused any problems. If...
  6. D Bergy

    Looking for direction - just got blood results

    I do not believe you have Crohns Disease, at least not yet. I do think you have one of the microbes that I have been battling that is involved with my particular case of Crohn’s. Its not rare or unusual but can wreak a lot of havok when it gets out of control. It sounds like mycoplasma to me...
  7. D Bergy

    Alternatives to cholestyramine & Questran (UK drug shortages)?

    It occurred to me that since my doctor never mentioned any possible side effects of Cholestyramine that others may not be aware of them either. The drug can cause a vitamin K deficiency which can increase bleeding. Vitamin K is needed for normal blood clotting and for proper bone formation...
  8. D Bergy

    Alternatives to cholestyramine & Questran (UK drug shortages)?

    I don’t know about availability in the U.K. however I found this drug digging around on the net. Colesevelam is another bile acid sequester that appears to be used for the same purpose. Dan
  9. D Bergy

    What is inside the fecal stream that is driving inflammation.

    I think the speculation about different causes is because there are different causes and often multiple causes. Thats why its a difficult thing to get under control. Based strictly off of my own alternative treatment results, mycoplasma pneumonia and H-Pylori were larger factors concerning...
  10. D Bergy

    Hair loss

    Unless it is a Humira side effect, I know nothing about it, it is likely malnutrition. A few years ago when I was really ill from Crohn’s, I lost a lot of hair just because I was absorbing so little. Thats with taking good whole food multivitamins also. If everything is going right through...
  11. D Bergy

    Fecal transplants result in flares in crohn's disease, study stopped.

    Naturopaths get rid of C-Diff just using a few drops of food grade hydrogen peroxide mixed in water. Its not that difficult to kill either C-Diff or E-Coli using any oxidizing treatment although C-Diff is the easier of the two being a true anaerobe. But you run into that standard of care...
  12. D Bergy

    I can’t cope with this.

    You do not necessarily have to use the recommended dose either although don’t use more than recommended. I use one packet a day because thats all I need. The instructions say to use one packet twice a day. I don’t like the fact that it blocks cholesterol but you can minimize that by using...
  13. D Bergy

    I can’t cope with this.

    Get a different doctor. It is ridiculous that your doctor will not prescribe questran. I also had my ileocecal valve removed and have my Crohn’s well under control but without that valve you simply cannot have much bowel control without the medication. If you are flared, even that won’t help...
  14. D Bergy

    What are you grateful for today?

    Grateful for being symptom free for several years, feeling good and being semi retired. No more stressful jobs or midnight shifts.
  15. D Bergy

    Completely freaked out by what I read about parasites...pleae help, long time with strange symptons.

    I would suggest getting a Metagenics GI Effects stool test. My understanding is its one of the better tests for parasites. We all have them. Its a matter of what you have out of the ordinary and how much. Good luck. Dan
  16. D Bergy

    ? about what to buy for after sergery.

    Back scratcher for the hospital. Best thing I had as laying in a hospital bed makes your back real itchy. Good luck. Dan
  17. D Bergy

    Olive leaf extract has some interesting properties.

    I have been taking olive leaf extract for a cold I acquired. Didn’t start until I was well into it. The cold is gone but it was followed by my typical reaction which is increased mycoplasma as evidenced by lung congestion and my typical die off reaction when I kill some of it. I didn’t know...
  18. D Bergy

    Power foods

    Glad you are having good results managing your Crohn’s. That is no small accomplishment. I would rethink using distilled water though. Water is super reactive when it comes in contact with minerals. This is why it is considered a universal solvent. If water is devoid of minerals, which...
  19. D Bergy

    What is inside the fecal stream that is driving inflammation.

    I would think it is the fecal stream that feeds the existing bacteria responsible for the inflammation. In some instances I also would speculate that some foods have components that are similar to some secretions output by certain bacterium which increase inflammation. That is the hypothesis I...
  20. D Bergy

    Remicade anti-TNF therapy has not yielded expected declines in hospitalisation and intestinal resection rates in inflammatory bowel diseases

    There is nothing inherently wrong or bad in a profit driven system. Its basically like gravity in that it is a force that is naturally there. It is a matter of having the incentives for profit put in the proper place and a truly free marketplace of ideas and products. One where small...
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